Survivors with inoperable GBI IV

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Survivors with inoperable GBI IV

by dukefan on Mon Nov 22, 2010 04:55 PM

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Are there any GBI Multiformme Grade IV , inoperable tumor(s) survivors with a year out from diagnosis?  Need some encouraging words right now.  Husbands new chemo, Etoposide seems to have side effects that are causing him to be weaker with alot of stomach problems, even though he is on sooooooo many meds.   Praying all of you on cc are having a day of peace and comfort. 

RE: Survivors with inoperable GBI IV - Raising hand...

by rcassick on Mon Nov 22, 2010 05:05 PM

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...and yelling 'here!'

I passed by 1 year mark a few weeks ago and am still going strong. I only had one tumor though and it was caught pretty small (half dollar sized), but it was deep in on the left side in the short term memory area.

Never taken the Chemo you are using though so I can't comment on that...

RE: Survivors with inoperable GBI IV - Raising hand...

by dukefan on Mon Nov 22, 2010 05:22 PM

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Just slap me!  I remember you went your year mark and totally forgot.  My husband's tumor was the size and a "lime" at the beginning and he did have great results with the Temodar and Avastin for a long time.  So pleased you are still doing so well, your messages are so inspiring to me and others.  Please continue to help us get thru this.  My prayers daily go out to all of my cc friends.  Continued blessings of "going strong" 

RE: Survivors with inoperable GBI IV

by sonia09 on Tue Nov 23, 2010 04:33 AM

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I was where you were last year... my mum (age 68) was diagnosed last January (2009) with an inoperable tumor in her left parietal lobe. She lost all mobility on her affected side from the biospy and we feared the very worst, not even expecting the 6 - 8 months the docs gave us.

Anyway we're still here at 22 months. Unfortunately however, her decline has started, and last month she lost her speech and some amount of vision. We're very scared of what comes next, and how fast it can come. The good news is that we had a great 20 months (even though she never walked even a step) and I love every memory of those days.

Hope you and your husband get lots of time together.

 

RE: Survivors with inoperable GBI IV

by Tina88 on Tue Nov 23, 2010 08:50 PM

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My husband will be 24 months December 22, 2010.  He has come a long way but goes to work each day.  Just had an odd thing happen where he lost his memory for an hour and did not know the days events and was very scared.  It all depends on the person.  The younger the better.  My husband is 51 and he is doing very well.  It is a hard road so pray alot.  You can ask me anything.  Love, Tina  PS.  Read my profile.

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