One patient with glioblastoma still alive nine years later
by VickiG on Wed Dec 01, 2010 02:58 PM
I am the caregiver for my husband who is going through liver cancer again. September of 2009 he had a liver/kidney transplant after beating liver cancer the first time. Now the cancer has returned to many places and things are getting bad. I feel like the rug has been pulled right out from under me.
by Kimberly_Y on Thu Dec 02, 2010 12:56 AM
I'm so sorry that you have to go through what you are going through. Just wanted to let you know that I am sending positive thoughts your way. Remeber to take care of yourself and take one day at a time.
All the best to you and your husband.
by Snake65 on Thu Dec 02, 2010 02:13 AM
I can understand your struggle in coping with caring for your husband. I am also a caregiver for my brother who has stage 1 lung cancer. He is improving after being on Essiac Tea, a health supplement from Canada.
Maybe you should try that for your husband as it is accepted by many western doctors in USA. You can google this item to find out more.
In the meanwhile, try to pray as it does help in calming you and your husband. I am not sure if you are a catholic. My brother is a free thinker but I have drag him to church and he is quite normal quite in terms of the physical and mental condition. He is calmer and able to accept things .
Take care and do not give up cos something good may emerge . In life, sometimes we have to give up certain things but we do gain in the process.
GOD bless !
by Broken on Thu Dec 02, 2010 04:22 AM
Yes sir, as a former caregiver, that's what cancer does. It pulls the carpet, rugs or whatever right out from under you and you go skidding through the entire ordeal. Hopefully, you'll keep your wits about you. I am so sorry to hear that this is your husbands second time. Just know that this site has many great people that will help you all along the way. When I speak about these cyber poster that we'll never see, I can see them sort of like "Great Wizards" posting their "Words Of Wisdom" the good with the bad. It has taken many a year of trials & tribulations in their jorney to advise us of the cures & potions that have worked for them. I don't think they probably look like your typical looking wizards that we've come to know from TV but you can tell who they are by the way they so gueninely, loveingly, caringly & gracefully guide us through our dispare to see that we are not alone.
My prayers are with you & your husband.
by Bob_d_4 on Fri Dec 03, 2010 02:13 AM
When my wife's Colorectal Cancer came back in her lungs, I had been dianosed with Non-Hodgkin's Lymphoma. It was a very dark time. But no matter what happens you will get through it. Use this forum to ask questions or just vent. Try a support group, they are everywhere.
You are not alone, there are a million of us out there that have been through what you are going through.
by Desna on Fri Dec 03, 2010 04:02 PM
I too no about cancer coming back. In 2005 I had my Pacreas tail and spleen removed (islet cell tumor). In 2007 it spread to my Liver. They removed my gallbaldder and 2 sections of my Liver. Then in 2009 tumors appeared in the Pancreas recected area and in the Liver rescected area. I was no longer able to have surgery. I am now in a clinical trial and still hanging in there. I did six months of chemo which I finished in May 2010 and am still taking a trial drug once a day along with octreotide injection once a month.
All we can do is hang in there and hope that each treatment will someday be the one to cure these cancers.
My thoughts go out to you and your family, as I can say I know what you are going through. My family and friends have been so supportive.
I live day to day with a positive attitude and am happy to still be around to share all the joy my two children (ages 20 and 17) bring me.
by EstherMSKCC on Fri Dec 03, 2010 04:13 PM
I am sorry to hear that your husband's cancer has returned and spread. I am an employee of Memorial Sloan-Kettering Cancer Center and am aware of the difficulties associated with being a caregiver to someone with advanced cancer. I am writing to share some resources that may be helpful to you in coping as a caregiver.
National Cancer Institute: Overview for caregivers of loved ones with cancer and caring for the caregiver:
How to cope as a caregiver: http://www.cancer.org/Treatment/Caregivers/index
CancerCare is another good resource that offers information, counseling, and support groups for caregivers of patients with cancer: http://www.cancercare.org/get_help/special_progs/caregivers.
I hope this information is helpful and wish you and your husband the best of luck as you help him through this very difficult time. --Esther
by VickiG on Fri Dec 03, 2010 06:16 PM
You really seem to know just what I am going through. My husband's cancer was in the liver and they were able to shrink it so he could be on the transplant list. He was listed on 9/11/09 and rec'd his liver and kidney 9/29/09 thats just how bad his liver was, he also has hep c. His cancer has come back to the scalp( which got so big it was pressing on the brain) adrenal glands, spleen, spine and now new liver. Went through 20 treatments of radiation and cyberknife. Wednesday the doctor was talking about hospice, but I wouldn't do that now. Hospice will not let him continue with his chemo meds that he takes daily. He has pain in his legs and back and I found out the pain meds he is on is a very low dose. It seems like everyone just wants him to give up and die when he is not ready and wants to continue treatment. He tells me he needs to take care of his family, we have two daughters 21 and 18.
Take care of yourself and keep that positive attitude it really does help.
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