Gallbladder Cancer with lymph node spread

80 Posts | Page(s): 1 2 3 4 5 ...78 Next 

Gallbladder Cancer with lymph node spread

by EileenM on Wed Dec 01, 2010 10:22 PM

Quote | Reply

Hi i have been on here looking at all your stories for the last month  and you have so much courage and really hope you can provide the same to my family, my mom first got gallstone pain in Jan 10 but got medication which masked it after- her doctor then advised her to have it out while she was fit and well she is 72 and in great health. Oct 4th she went for the routine op only to be called in on Nov 1st to be told they found the gallbladder was cancerous after pathology testing. This totally blew us out of the water- She waited 2 weeks to be called for more tests (We thought surgery was a given) not so! We have now been told that the cancer is in the lymph nodes near the gallbladder bed and at the other side near the kidney, so chemo is the only available treatment to her, she has currently no symptoms or no weight loss and has a very positive outlook but is very frightened, all cancer is scary but this one seems to have a very bleak prognosis, while is stunning as she is so well, it does not seem real yet it is! - Has anyone gone through similar? Appreciate any feedback- We are in Ireland but this cancer is very rare (only 6 last year in the country) so finding it very hard to get good news.

RE: Gallbladder Cancer with lymph node spread

by DiarmuidD on Wed Dec 29, 2010 02:32 AM

Quote | Reply

On Dec 01, 2010 10:22 PM EileenM wrote:

Hi i have been on here looking at all your stories for the last month  and you have so much courage and really hope you can provide the same to my family, my mom first got gallstone pain in Jan 10 but got medication which masked it after- her doctor then advised her to have it out while she was fit and well she is 72 and in great health. Oct 4th she went for the routine op only to be called in on Nov 1st to be told they found the gallbladder was cancerous after pathology testing. This totally blew us out of the water- She waited 2 weeks to be called for more tests (We thought surgery was a given) not so! We have now been told that the cancer is in the lymph nodes near the gallbladder bed and at the other side near the kidney, so chemo is the only available treatment to her, she has currently no symptoms or no weight loss and has a very positive outlook but is very frightened, all cancer is scary but this one seems to have a very bleak prognosis, while is stunning as she is so well, it does not seem real yet it is! - Has anyone gone through similar? Appreciate any feedback- We are in Ireland but this cancer is very rare (only 6 last year in the country) so finding it very hard to get good news.

Hi EileenM

(Just found your post today)

I am one of the people who have been dagnosed and received treatment for gall bladder cancer. I'm 48 now and I live in Cork  Ireland. My story began last April and after surgery I was told about the cancer.

They removed my gall bladder, a section of my liver and some lymph nodes. There was a tumour in the gall bladder and one of the nodes was showing abnormal cells. So after recovering from the operation I began chemo (Gemzar whch was given as an IV  4 cycles of treatment for 3 weeks and 1 week off). During this I was very tired, food didnt taste right and I was eating little but often, BUT no other real problems! I then had a few weeks break after which I started a combination of Chemo in tablet form Exloda and Radiation theraphy for five weeks. Again I was just tired. I had an MRI at the start of Dec and the result last week shows that I'm clear. So please don't let all this get you down. There are a lot of people beating this. Just a few years can make a huge advance in treatments and drastically improve the outcomes. Remember your mum has a good outlook she is able stay positive and that is the key to beating this. You can help her by not worrying too much. I found that my family and friends really took the news hard at first, but as time went on I was able to let them know I was in safe hands and doing well. I found it a great help to see my wife and daughters were getting on with their everyday lives. Because only then, was I really able to relax and concentrate on getting through this.

Very glad you posted your story, its good to contact another who is going thru this. Hope I have helped you and your mother with my story. If you need any more info re: my surgeon/oncologist/treatment. let me know. 

DiamuidD 

RE: Gallbladder Cancer with lymph node spread

by EileenM on Mon Jan 03, 2011 10:26 PM

Quote | Reply

Hi Diarmuid- first of all congratulations on your great news it is a massive relief i am sure. You were very lucky, did they do the liver resection at the same time as the gallbladder op? I am assuming you did all this in the mercy hospital? That is where my mom had all her tests done but unfortunately they could not do the liver resection for her- she starts the chemo next Monday and i am hoping it does not have too negative effect on her- you are so lucky to have all this behind you.

RE: Gallbladder Cancer with lymph node spread

by Maudsie on Tue Jan 04, 2011 09:39 PM

Quote | Reply

On Dec 29, 2010 2:32 AM DiarmuidD wrote:

On Dec 01, 2010 10:22 PM EileenM wrote:

Hi i have been on here looking at all your stories for the last month  and you have so much courage and really hope you can provide the same to my family, my mom first got gallstone pain in Jan 10 but got medication which masked it after- her doctor then advised her to have it out while she was fit and well she is 72 and in great health. Oct 4th she went for the routine op only to be called in on Nov 1st to be told they found the gallbladder was cancerous after pathology testing. This totally blew us out of the water- She waited 2 weeks to be called for more tests (We thought surgery was a given) not so! We have now been told that the cancer is in the lymph nodes near the gallbladder bed and at the other side near the kidney, so chemo is the only available treatment to her, she has currently no symptoms or no weight loss and has a very positive outlook but is very frightened, all cancer is scary but this one seems to have a very bleak prognosis, while is stunning as she is so well, it does not seem real yet it is! - Has anyone gone through similar? Appreciate any feedback- We are in Ireland but this cancer is very rare (only 6 last year in the country) so finding it very hard to get good news.

Hi EileenM

(Just found your post today)

I am one of the people who have been dagnosed and received treatment for gall bladder cancer. I'm 48 now and I live in Cork  Ireland. My story began last April and after surgery I was told about the cancer.

They removed my gall bladder, a section of my liver and some lymph nodes. There was a tumour in the gall bladder and one of the nodes was showing abnormal cells. So after recovering from the operation I began chemo (Gemzar whch was given as an IV  4 cycles of treatment for 3 weeks and 1 week off). During this I was very tired, food didnt taste right and I was eating little but often, BUT no other real problems! I then had a few weeks break after which I started a combination of Chemo in tablet form Exloda and Radiation theraphy for five weeks. Again I was just tired. I had an MRI at the start of Dec and the result last week shows that I'm clear. So please don't let all this get you down. There are a lot of people beating this. Just a few years can make a huge advance in treatments and drastically improve the outcomes. Remember your mum has a good outlook she is able stay positive and that is the key to beating this. You can help her by not worrying too much. I found that my family and friends really took the news hard at first, but as time went on I was able to let them know I was in safe hands and doing well. I found it a great help to see my wife and daughters were getting on with their everyday lives. Because only then, was I really able to relax and concentrate on getting through this.

Very glad you posted your story, its good to contact another who is going thru this. Hope I have helped you and your mother with my story. If you need any more info re: my surgeon/oncologist/treatment. let me know. 

DiamuidD 

Hello DiamuldD -- thanks for adding your story.  Your treatment for your cancer sounds pretty much like mine except after the liver/lymph surgery, I had the xeloda and radiation first, then the Gemzar.   This therapy is as good as it gets, and quite effective.  Hopefully you will be having follow-up scans and blood tests fairly frequently (every 3 months or so) for a while, since you, same is me, are still at some risk for recurrence. But...so far so good!  Bravo!   You and Eileen are BOTH in Ireland, I am glad you have found each other here.  Please do write us again and give updates.

Maudsie

RE: Gallbladder Cancer with lymph node spread

by DiarmuidD on Wed Jan 05, 2011 12:43 AM

Quote | Reply

On Jan 03, 2011 10:26 PM EileenM wrote:

Hi Diarmuid- first of all congratulations on your great news it is a massive relief i am sure. You were very lucky, did they do the liver resection at the same time as the gallbladder op? I am assuming you did all this in the mercy hospital? That is where my mom had all her tests done but unfortunately they could not do the liver resection for her- she starts the chemo next Monday and i am hoping it does not have too negative effect on her- you are so lucky to have all this behind you.

Hi there

Yes, I had my operation in the Mercy here in Cork and the plan at that point was just to remove my Gallbladder. As the MRI showed I had something abnormal inside it, they told me that there may be a need to go further and after the op I was told that the section of the liver was taken as well as some lymph nodes. They told me prior to the operation that this may be necessary. It wasn't for a few weeks after that I was told of the cancer and the need for chemo. The whole treatment consisting of operation / chemo / radiation & chemo was I found easy to get through. I had chemo in the Mercy and radiation in the CUH. The doctors and nurses were brilliant, it was very heartening to see the way they took care of everyone.

The key to getting the best results as a patient I think is; to let the doctors and nurses know how it is effecting you and take it easy on yourself. Ask for them to explain each step to you. If you need some extra support don't be afraid to drop in to one of the cancer support drop-in centers. I did this and they are fantastic. The Cork ARC cancer support house was the closest to me. All of the adult members of the family are welcome there.

There were a hand-full of times during the treatment that I was feeling down (I wanted just to go to bed and curl up in a ball and be left alone to sleep it off) this I'm sure caused everyone to worry more for me. But... the batteries just needed to be recharged. I never slept so much in my life, I could sleep for a few hours get up for an hour or two and go back for another eight or ten. If I was told I needed to undergo this all over again. I wouldn't be at all worried. If my experience is anything to go by your mother is in the best of hands.

Is your mother getting her treatment in the Mercy? If so ask the nurses if they remember me? I was there from June to September 2010, (Peggy should as she arranged my appointments). If you would like my phone number email. I will send it on to you, I don't mind if ye would like to meet me and my wife, I live very close to the Mercy hospital. I would like to help if I can.   

Remember stay positive above everything else.

Diarmuid D.

RE: Gallbladder Cancer with lymph node spread

by DiarmuidD on Wed Jan 05, 2011 01:48 AM

Quote | Reply

On Jan 04, 2011 9:39 PM Maudsie wrote:

On Dec 29, 2010 2:32 AM DiarmuidD wrote:

On Dec 01, 2010 10:22 PM EileenM wrote:

Hi i have been on here looking at all your stories for the last month  and you have so much courage and really hope you can provide the same to my family, my mom first got gallstone pain in Jan 10 but got medication which masked it after- her doctor then advised her to have it out while she was fit and well she is 72 and in great health. Oct 4th she went for the routine op only to be called in on Nov 1st to be told they found the gallbladder was cancerous after pathology testing. This totally blew us out of the water- She waited 2 weeks to be called for more tests (We thought surgery was a given) not so! We have now been told that the cancer is in the lymph nodes near the gallbladder bed and at the other side near the kidney, so chemo is the only available treatment to her, she has currently no symptoms or no weight loss and has a very positive outlook but is very frightened, all cancer is scary but this one seems to have a very bleak prognosis, while is stunning as she is so well, it does not seem real yet it is! - Has anyone gone through similar? Appreciate any feedback- We are in Ireland but this cancer is very rare (only 6 last year in the country) so finding it very hard to get good news.

Hi EileenM

(Just found your post today)

I am one of the people who have been dagnosed and received treatment for gall bladder cancer. I'm 48 now and I live in Cork  Ireland. My story began last April and after surgery I was told about the cancer.

They removed my gall bladder, a section of my liver and some lymph nodes. There was a tumour in the gall bladder and one of the nodes was showing abnormal cells. So after recovering from the operation I began chemo (Gemzar whch was given as an IV  4 cycles of treatment for 3 weeks and 1 week off). During this I was very tired, food didnt taste right and I was eating little but often, BUT no other real problems! I then had a few weeks break after which I started a combination of Chemo in tablet form Exloda and Radiation theraphy for five weeks. Again I was just tired. I had an MRI at the start of Dec and the result last week shows that I'm clear. So please don't let all this get you down. There are a lot of people beating this. Just a few years can make a huge advance in treatments and drastically improve the outcomes. Remember your mum has a good outlook she is able stay positive and that is the key to beating this. You can help her by not worrying too much. I found that my family and friends really took the news hard at first, but as time went on I was able to let them know I was in safe hands and doing well. I found it a great help to see my wife and daughters were getting on with their everyday lives. Because only then, was I really able to relax and concentrate on getting through this.

Very glad you posted your story, its good to contact another who is going thru this. Hope I have helped you and your mother with my story. If you need any more info re: my surgeon/oncologist/treatment. let me know. 

DiamuidD 

Hello DiamuldD -- thanks for adding your story.  Your treatment for your cancer sounds pretty much like mine except after the liver/lymph surgery, I had the xeloda and radiation first, then the Gemzar.   This therapy is as good as it gets, and quite effective.  Hopefully you will be having follow-up scans and blood tests fairly frequently (every 3 months or so) for a while, since you, same is me, are still at some risk for recurrence. But...so far so good!  Bravo!   You and Eileen are BOTH in Ireland, I am glad you have found each other here.  Please do write us again and give updates.

Maudsie

Hi Maudsie

The treatment is excellent I've got nothing but the highest praise for this, the hospital staff, nurses and specialists. I'm very glad to hear that you are doing so well.  Well done you!

Don't know why my radiation and chemo were opposite to yours. I can only assume that it doesnt matter and must work either way. I'm scheduled to have scans every six months for the next two years. I will be very happy to give updates.

Our bodies are amazing we can adjust to and recover from a lot more than we expect. Sure, help is needed from time to time and that is what the specialists are for. But the recovery is more in our hands than we realize. Having a positive outlook is our greatest asset at anytime. As an old friend of mine used say. "Don't ever forget, no matter how bad it gets, It could always have been worse". He pretended to be a pessimist but I took this as being the most optimistic statement I ever heard. 

If you dont mind my asking where are you from?

Keep in touch and take care

 DiarmudD 

RE: Gallbladder Cancer with lymph node spread

by stella13 on Wed Jan 05, 2011 12:26 PM

Quote | Reply

Has been very encouraging to read peoples survival stories because the doctors paint such a pessimistic view.  I went in for routine gallbladder removal in November 2010, one week later I was told I had cancer and that it looked like it had spread to liver.   Five days later I went in for surgery again, this time for liver resection, bile duct removal and while they were there they took out nymph nodes and glands.  Also while I was under they did this new radiation treatment.  They dont really know it it is in the other part of liver because so microscopic but they seemed to think so.  They havent really been encouraging but it has been good to go on internet and read other peoples comments.  They did find cancer in one node but glands were fine.  Strange thing is apart from being sore from surgery I feel fine.  Havent given up and will keep on fighting.

RE: Gallbladder Cancer with lymph node spread

by Maudsie on Wed Jan 05, 2011 02:12 PM

Quote | Reply

Hello DiarmudD -- I live in the U.S., in North Carolina.  I am also an RN, which helps since I understand most of the medical lingo.  My diagnosis was in July of 2008.  I receive my cancer treatment at Duke University Hospital, one of the top in the country, which is also where I worked before I retired.  As far as the protocols go for this cancer, I have seen it given both ways: gemzar first or the other way around.  Both thought to be equally effective, I guess.  Difference seems to be in follow-up: my docs wanted scans every THREE months for the first few, along with blood tests (liver function and CA19-9 mostly).  Since the scans are not without risks themselves, your docs have elected to spread them out a bit. (by the way we do mostly CT scans here, not MRI, for cancer detection)  You might ask, however, if you should have your blood tested more often, no risk there.....

 

I too found the treatment, all of it, not too hard to tolerate.  I do know of someone who had a really hard time with the xeloda in particular... we are all different in how our bodies work and react.  However, a good attitude and outlook is a MUST, as you have said.

I will keep in touch...you, too!

Maudsie

RE: Gallbladder Cancer with lymph node spread

by Maudsie on Wed Jan 05, 2011 02:22 PM

Quote | Reply

On Jan 05, 2011 12:26 PM stella13 wrote:

Has been very encouraging to read peoples survival stories because the doctors paint such a pessimistic view.  I went in for routine gallbladder removal in November 2010, one week later I was told I had cancer and that it looked like it had spread to liver.   Five days later I went in for surgery again, this time for liver resection, bile duct removal and while they were there they took out nymph nodes and glands.  Also while I was under they did this new radiation treatment.  They dont really know it it is in the other part of liver because so microscopic but they seemed to think so.  They havent really been encouraging but it has been good to go on internet and read other peoples comments.  They did find cancer in one node but glands were fine.  Strange thing is apart from being sore from surgery I feel fine.  Havent given up and will keep on fighting.

Hi Stella.  So sorry to hear your news, I know how shocking it is to go in for a routine procedure, thinking everything is fine, and find out afterwards that you have cancer.  This is how many of us found out about our GB cancer.  It sounds like the surgeons did a good job removing what might be suspicious tissue, (actually there are no "glands" involved here, it's all lymph nodes) and I hope they are planning follow-up as soon as you are healed: chemo, with or without radiation, is a must.

Please let us know how you are doing, and bring questions or concerns if you have any.

Maudsie

RE: Gallbladder Cancer with lymph node spread

by EileenM on Wed Jan 05, 2011 11:36 PM

Quote | Reply

hi every one - i am glad you are all doing well- Diarmuid i think you are not allowed give your email on this site- but would be nice- My mom is not doing her treatment in the mercy as it is quite a journey for us- and as you need to go to hospital if your temp goes over 38 etc. we are using the hospital most local to us which is Tralee (did you have to be hospitalised at any stage during treatment?) we have been assured they are doing the same treatment as the mercy would- they are joined with Cork, So all information will be fed back to Mr O' Sullivan( irish i cant spell) he is a wonderful surgeon- you were so lucky you had this care initally. My mom got the report back to her GP- it read a lovely 72 year old woman ( she was thrilled with that) it also said the cancer was not in the liver and the lymph node involvement is due to a spill during the gallbladder removal- that she is an excellent candidate for the chemo. This is positive news i think- (maudsie you may know more from your experience on these sites) Mom has an consutation tomorrow for a wig- did you lose your hair during treatment? Thanks so much to all for replying- Stella i wish you luck with your treatment- I pray a positive attitude helps in the fighting of this. I have to be honest this new year i was not happy as i do dread what this year holds- i just pray we can all be here this time next year giving advise on recovery. Take care all.

80 Posts | Page(s): 1 2 3 4 5 ...78 Next 
Subscribe to this message board discussion

Latest Messages

View More

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.