Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by wbrhine on Fri Dec 03, 2010 04:11 AM
My father is 69 years old. His MRI shows a 3 cm tumor in his thalamus. We are waiting for further tests to be done to diagnose fully what the tumor is and how to proceed with treatment. I know that Emory in Atlanta is a leading neurology center for advanced medicine and research. What other centers are known for neuro-surgery and treatment of mid-brain tumors? Has anyone had experience with a tumor in the thalamus area of the brain? Thank you all for any responses!
by Joan_l_3 on Fri Dec 03, 2010 04:44 AM
Probably the most well known and prestigious brain cancer treatment center is the Preston Robert Tisch Brain Tumor Center @ Duke in Durham, NC. Senator Ted Kennedy received treatment there after he was diagnosed with a brain tumor.
I don't know if this institution is the best, but it does have that reputation.
Good luck to your father.
by wbrhine on Fri Dec 03, 2010 05:11 AM
Thank you so much! I truly appreciate the info! :)
by heart_and_soul on Fri Dec 03, 2010 05:38 AM
Having a neuro-oncology dept is the key. Other good ones include Cleveland Clinic, NIH, Dana Farber, UCSF, MD Anderson. If you can't get to one of these or another like it, you may be able to get a consultation from one of them. They often have a team approach called a "Tumor Board" where they review scans and files and make recommendations. It's good to get a second opinion from another doctor or team, no matter where you are. ANy peace of mind is so gratefully received on this journey.
by wbrhine on Sun Dec 05, 2010 05:13 AM
Thank you for the information! I have requested board reviews via online forms for many of these institutes. FYI for anyone that reads this - University of California San Diego has a neurology board that conducts weekly review meetings, and you may request scans be reviewed very easily on their website.
by wbrhine on Sun Dec 05, 2010 05:30 AM
Question... my dad at the moment has slurred speech, memory/ word recall difficulty, and now has numbness in the fingertips of his right hand, and his right leg is slightly dragging. I know these are all common sympoms. My question is IF the tumor is removed or treated successfully, will my dad's ability to speak, write, and walk normally return eventually?
by McC00 on Thu Dec 16, 2010 01:18 AM
My best friend, 53 yrs old was diagnosed with GBM 4, deep in the thalamus, inoperable. If your Dad's tumor is operable, and they can get most of it out, with chemo and radiation there is a possibility that some functions might return,but it all depends on the size of the tumor, and how far it extends into the brain. My friend had the same symptoms, but with chemo and radiation, we were able to extend our time with him, wich was wonderful. Each case is different, and I hope your Dad's is operable, and they get the whole thing!Keep getting as much info as possible, stay positive, and fight the good fight!
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