Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by bayshepherd on Fri Dec 10, 2010 02:48 PM
My boyfriend has just been diagnosed with Stage 4 Pancreatic Cancer that has metastisized and is in his liver as well. Does anyone have any info on any alternative therapies that have worked? Protocel looks like a possibility. Please help...we are desperate.
by Joan_l_3 on Fri Dec 10, 2010 11:24 PM
Sorry, I don't know anything about Protocel, so all I can say about it is that that sort of alternative medicine rarely does anything except use up a lot of your money.
If you truly are interested in possibly getting help, my suggestion would be to go to one of the institutions well known in the diagnosis and treatment of pc. Those would be Dr. Robert Fine @ Columbia in NYC, MD Anderson in TX, Johns Hopkins in Baltimore, Dr. Picozzi @ Virginia Mason in Seattle.
Stage IV does not necessarily mean immediate death. There is a man who posts here at times but more often on the Hopkins board; he was Stage IV at diagnosis and has had chemo since diagnosis, with some breaks and is NED now. So there is always hope. Give it a chance.
by gsailor on Sat Dec 11, 2010 01:26 PM
I have stage 4 pancreatic cancer and chemo has been effective for me, I have survived for nearly four years, I have tumours in my lungs and pancreas. There are several different types of combination chemotherapy drugs that are effective at halting the growth of tumours but pancreatic cancer is not curable at this point. I have looked at alot of alternative "cures" but all of the ones I have looked at were bullcrap. A good web site is Sciencebasedmedicine.org , also quackwatch.com is a good one. Almost every alternative claims they have the cure, chemotherapy is still the best bet.
by fxrchopper2003 on Sat Dec 11, 2010 02:00 PM
SSSooooooo well put, my friend! It's nice to eat healthy anyways for life whether you have cancer or you don't, however lets get real so people can still be treated with the meds if they're out there!!!! Chemo assists in the inhibition of the progression of cancer. (period)! Good response, and as fas as the ones that ry to sell the vitamins on the messageboard shouldn't be allowed on the board, especially when there are so many vulnerable! Blessings and Good Health to You always!
by bayshepherd on Sat Dec 11, 2010 06:38 PM
GSailor...Thanks so much for your candor. I think the diagnosis sends one into high gear seeking anything/everything that might work. I went to quackwatch.com and did some reading as suggested. Your personal experience is what helps the most and I thank you for that. We are headed in the direction of chemo I believe and now it's a matter of getting connected to the best hospital and doctors for this particular cancer. Good luck with your battle and God Bless.
by Shemay on Sat Dec 11, 2010 06:46 PM
STEPHEN BARRETT/QUACKWATCH has been thoroughly discredited many times.
Quote from the Court Case: Stephen Barrett, M.D. vs. Tedd Koren, D.C. and Koren Publications, Inc.
"The most damning testimony before the jury, under the intense cross-examination by Negrete, was that Barrett had filed similar defamation lawsuits against almost 40 people across the country within the past few years and had not won one single one at trial.
During the course of his examination, Barrett also had to concede his ties to the AMA, Federal Trade Commission (FTC) and Food & Drug Administration (FDA). "
In the 1990's, Stephen Barrett put his medical license on ice and launched many legal and smear campaigns against several of us: homeopaths, activists, and doctors with far better credentials than himself ... often hiring himself or one of his cronies as an 'expert' in the very lawsuit he launched! This totally backfired on him in his ill-fated suit against King Bio where the judges nailed he & Wallace Sampson as being biased and unworthy of credibility.
Because he had failed his Psychiatric Boards, he was never board certified so now, with no active medical license, there was no regulatory body above him as he waged lawsuit after lawsuit and concurrently smeared physicians and scientists and activists he was suing on his perjorative websites.
by gsailor on Sun Dec 12, 2010 12:32 PM
Another good website is www.sciencebasedmedicine.org , what are you hawking shemay? I have not done any research on your claims but you must be trying to advance some alternative crap that quackwatch has advocated against. What exactly are his ties to the AMA, Federal Trade commision, and Food and Drug administration? Is it all part of the pharma conspiracy to keep all of those alternative cures away from us stupid cancer patients and what cancer is it you are suffering from? What the hell does the Federal Trade commision have to do with anything? Goverment conspiracies to keep cures secret and all the doctors are in on it? I guess that's what they learn in the secret classes at Med school, because the doctors that have treated me(I do have stage 4 pancreatic cancer) brought there students in to see me and study my case while I was in a drug study program all seemed very intelligent. I don't think your facts are as you state them. Homeopathy is pure crap-it won't cure anything, all that takes is a little study to see that it is from a different century, and that it does not make any sense. You can go ahead with your liver flukes, coffee enemas, and stupid little electronic gadgets that make noise, I can read a schematic and those things are just stupid little circuits that don't measure anything, or you could go to John of God and have him do some faith healing on you. I will drink my coffee and not stick it up my butt. Chemotherapy is getting more effective and cancer is a complicated disease that 99.9% of alternative cures won't really do anything but take your money.
by gsailor on Sun Dec 12, 2010 12:51 PM
I went to www.quackwatch.com and looked at the website again, there are many different people that submit articles, it is a tactic to try and discredit the information by smearing the website and not responding to the actual information presented, sort of like killing the messenger or making him the villain. I am angry at all the stupid crap people try to hawk claiming they can cure cancer, and quackwatch presents the methods the alts. use to get money from desperate people.
by chuck1943 on Sun Dec 12, 2010 02:15 PM
I dont mind what people believe in untill they try to make there unfounded methods sound like fact. Many people who come to this site and others like it are scared and dont know where to turn. Some live a long distance from major medical centers or have no or insfficant insurance and cant get first rate medical treatment. These are some of the people who are at risk to believe these claims and not pursue treatment that will actually help them. Those that spend most of there time on line following all of the quacks would be a lot better served to try to help those recently diagnosed with finding real treatment that will help them.
by Shemay on Sun Dec 12, 2010 04:16 PM
Interesting that you would dismiss any of my experiences with alternative protocols while at the same time admitting you have not done any research on my claims. If you had even checked out my profile information you would understand that my intentions have always been only to be of help by informing others of the natural healing diets, supplements andl treatments that have brought myself and countless others that are treated alternatively at the clinic I go to back to good health. Many of the patients I have met there were considered terminal when they first presented. I personally was told by my oncologist that I would not survive without R/Chop. It is now 6 years and nine months since that prognosis and I am healthier with more energy than I'd had for years before developing cancer. By the way we are treared there by a Medical Doctor/Geneticist The only gain I experience from sharing my information (alternative crap as you prefer to call it) is the gratification I receive from hearing from other members who have benefited from my "paying it forward."
Your numerous recommendations to Quackwatch and the Science based medicine links which are so obviously biased against ANYTHING alternative/natural might make one a bit suspicious as to your true motives.
Since I have already posted the links to numerous legal trials where the Quackwatch posse have always lost because they were considered "biased and unworthy of credibility" I'll refrain from duplicating those links here. The following should be of interest though for anyone wishing to learn more about David Gorski of Science Based Medicine. Be sure and read his disclaimer.
David Gorski’s Financial Pharma Ties: What He Didn’t Tell You
By Jake Crosby
His motto is “A statement of fact cannot be insolent,” yet the title of his blog reads “Respectful Insolence.” In other words, even he admits there are no facts on his blog. He has become the online spokesperson for the vaccine industry, a member of the highly trafficked, drug-industry-sponsored “Science”Blogs where he heavily promotes the tobacco science obscuring causes of autism. Posting under the science fiction name “Orac,” David Gorski has become the most outspoken, self-styled “skeptic” in defense of mercury that exceeds EPA limits in vaccines. Another example of a cause of autism he vehemently denies is the MMR - the triple, combined live-virus vaccine implicated in measles virus infection in the ileum, peripheral blood mononuclear cells, and cerebrospinal fluid of children who have autistic enterocolitis. In case anybody’s wondering what David Gorski’s connection is to the autism debate, he has undisclosed financial ties to the vaccine industry. He has made no mention of these connections, despite stating in one of his many defenses of millionaire vaccine industrialist Paul Offit, “A general principle is that undisclosed potential conflicts of interest (COIs) are of far more concern and potentially far more damaging to the scientific process than disclosed COIs.” However, Gorski has steadfastly denied possessing any conflicts, having once told me online without my even accusing him, “You are wrong. I receive no money from pharmaceutical companies and haven’t for 14 years.”
Read more here:http://www.ageofautism.com/2010/06/david-gorskis-financial-p
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