One patient with glioblastoma still alive nine years later
by justasking on Wed Jan 05, 2011 07:23 PM
Hello everyone. I have a friend who was recently diagnosed with SCLC. She had her first chemotherapy treatment last Monday - supposedly a light dosage. Her reaction was so severe that her oncologist "basically sent her home to die". I gather that, for SCLC, her cancer is not advanced but I don't know what stage she was placed at. I do know she has one tumor, possibly one lymph node involved, no cells in the fluid surounding the tumor, and no cancer found in other parts of her body. She was given Taxotere and Carboplatin. I don't know amounts, and I don't know what protocol she was given to handle the nausea. (We live in different states.) In any case, she was admitted to the hospital Thursday, and spent four days there. Her oncologist told her that if she couldn't tolerate what she was given, she couldn't tolerate any chemotherapy - and refered her to hospice. Suggestions on where to go from here would be much apreciated.
by robrated on Wed Jan 05, 2011 07:43 PM
What a horrible and insensitive reaction that oncologist gave your friend! I would suggest to your friend that she find another place to service her needs. There are atleast two different types of chemos that I am aware of she can take. The most effective is carbon-platinum. I would also suggest she recieve a power port. The power port relieved my father of alot of his suffering. They usually give anit-nausea medicine intervienously prior to chemo. She may have had a reaction to the anti nausea medicine. I would also recommend your friend go to her appointments with a advocate or care taker so this does not happen again. I am so sorry her doctor was intolerate. What a tool. My father SCLC is advanced and extensive and he has never stayed in the hospital over night once. Not for chemo or radiation. This is very strange, you may want to get permission from your friend and question this doctor.
Best of luck, sorry your struggling.
by noraboyer on Thu Jan 06, 2011 02:02 PM
I am so sorry to hear about your friend. I am a firm believer in another opinion. If your friend has small cell lung cancer extensive stage and is newly diagnosed the standard of care in most academic institutions is either a clinical trial or a platinum based chemo with etoposide. Nora
by seglines on Fri Jan 21, 2011 10:06 PM
She should get another opinion. Its her life.
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