Sorafenib

Its me again MTAJ57; And yes I am still here, after about 90 days of sorafenib it looks its its doing its job, still have some side effects, but a day or two off seems to ease them, feet and hands are sore as heck, but benadril has eased the itching quite well. Just had a new CT and the doc said I am stable with nothing new and nothing growing in my lungs for 3 months. I asked him for the first time, if I would be here in a year, and he said yes, if I continue to respond to the drug. Also, I am sorry the people are out $5900 for sorafenib, why not try it again,the side effects are better then then being dead, plus $5900 for a $4333 bottle of sorafenib is outrageous...Mel

Hi, this is Hopeful25. Would like to know more about the effects of Sorafenib. How effective has it been for you.

You are very correct. I also had a CT-Scan and my tumors were also shrinking. I also have a problem with my feet and hands. At the present time, I am taking one pill a day. This seems to be were my feet can tolerate it. If I go to two pills, my feet become very sore. I will be having another CT-Scan in two weeks and I will find out whether my original results were for real or a one time wonder.

Your response hit the nail on the head. Would you rather have sore feet or be dead! In my situation, I am taking one-pill a day. Even two pills within a couple of days causes severe discomfort. I am schedulded for a CT-Scan in a couple of weeks and I will find out whether my reduced dosage is working

Hi.. I am 65 and had my L kidney removed last April. Recently a tumor has shown to have grown back in the same area and I am on Sorafenib. Every place else looks good for now. I am getting bad reactions....face is so sore and red...and very itchy scalp and also my blood pressure was so high I ended up in the hospital. So now I am on 2 pills a day....but still have these side effects. How is it going for you by taking 1 pill a day? How long have you been on it? I've only been on it for about a week or so. Any info is very much appreciated....thanks. sewingnana

 

On 11/19/2006 Sewingnana wrote:

Hi.. I am 65 and had my L kidney removed last April. Recently a tumor has shown to have grown back in the same area and I am on Sorafenib. Every place else looks good for now. I am getting bad reactions....face is so sore and red...and very itchy scalp and also my blood pressure was so high I ended up in the hospital. So now I am on 2 pills a day....but still have these side effects. How is it going for you by taking 1 pill a day? How long have you been on it? I've only been on it for about a week or so. Any info is very much appreciated....thanks. sewingnana

Hi.. I am also a 66 year old gal. Iam trying to get the courage up to go onSorafenib. I had an angio sarcoma removed from my scalp last March I had nothing showing on cat scan after that.  I have had my lungs collapse after radiation, three times. My recent cat scan shows lesions on spleen and liver. They now are offering me the trial study.  I read that you have very itchy scalp, and high Blood Pressure. Others mention sore feet and hands. I suppose these things are not life threatening. but at this time I still feel o.k. will It stop one from driving, sleeping? I guess I havent faced the alternatives yet. Hope all is still going well for you.   ..need some encouragement,         B.King