Does Anyone Else Wonder What To Do Now That The Treatments Are Over?

Dear Jan: I just read your message from over a year ago. Wondering how you are doing. I am a Stage IIIC ovarian cancer survivor diagnosed in December 2003. Just had a CA125 of 53.5, and will have a MRI tomorrow. I am scared and wonder if you ever had an elevated CA125, or recurrence. It is very helpful for me to converse with survivors. Thanks, and God bless you. Betsy

Hi Betsy, I understand your fears my friend. My C-125 usually is in a normal range and has been for quite sometime. Around 6 or 7. I have had no recurrence thus far. Very lucky. Get in touch anytime kiddo if you like. I am eight years now. And as you probably know you can go as high as maybe a 30 and all can be well. Wishing you good test results my friend. Hugs and be well.

Hi. I have not quite gotten there yet. I had my right breast removed with reconstructive surgery 1st then I went through 12 weeks of A&C Chemo and now I am on Taxol for 12 weeks every week. I have 5 more to go. I was stage 2 Her2-neu/positive. I am wondering what happens when I finish. I am in a study where they monitor me for 5 years but that is only every 3-6 months. I would continue to try to keep myself healthy and research more and more about the disease. I would keep track of how I am feeling and be sure to call the doctor when something is not right.

My daughter was 17 yrs. old when she was diagnosed. She had chemo, radiation, surgery and a little more radiation. She is 5 1/2 yrs. out cancer free. I pray things will go as well or better for your granddaughter. Pat

Hi Pat, thanks for your message. I run an on-line support group for mes chondro. We have 50 members. Maybe you or your daughter would like to join. It's free and it could be beneficial if your daughter ever needs to obtain new info.
With Hope, MiMi
http://health.groups.yahoo.com/group/MesenchymalChondrosarco

Candace,

My name is Wayne. You will see some other post on Cancer Compass that I have made to a few other people.

I am 31 years old. I do not have Cancer. My Mother, who had cancer, sent me the link to the site and for about two weeks now I have been hooked in.

I am hoping that my message reaches you. My message is GREEN TEA Catechins!

There are so many studies being done around the world on the benefits of green tea catechins and cancer. Catechins are the molecules in green tea that are beneficial to humans.

I would like you to learn more about catechins by visiting www.originbiomed.com and clicking on the link that says Polyphenon.

I would be happy to discuss your questions.

Finally, Finally, I believe I can make a difference in people's lives through Polyphenon.

Lots of love.

Wayne
PS. I have a cousin named Candace who I haven't seen since for over 16 years. I miss her lots!

Hi Nancy,

My name is Wayne. I have a B.Sc in Kinesiology with a minor in Nutrition.

For the past 4 months I have been working with a company who manufacturers natural health products formulated with green tea catechins.

I am sure you are aware of the benefits of green tea catechins and cancer patients.

Polyphenon is produced by Mitsui Norin Co, Japan. About 25 years ago their lead scientist Dr. Yukihiko Hara was the first person in the world to successfully extract the catechin molecule from the green tea leaf. Polyphenon is the result of his efforts.

Dr. Hara has been providing evidence that Polyphenon works both inside and outside of the human body and now the U.S. National Cancer Institute and many other Cancer Institutes around the world are using Polyphenon in their clinical studies and trials with the goal of developing preventives for cancer.

Origin BioMedicinals is now offering people in North America this marvelous substance. We have take Polyphenon and put into a capsule. We call it Polyphenon 100.

I hope that this message reaches you and that you help your friends, patients, and clients in gaining a better quality of life.

Lots of love.

Wayne

This letter is in response to Wayne.
O have heard that Green Tea, will help.
I have been taking the Essaic's Tea, since I was in radiation. ( I was diagnosed with stage 3 B.C. on Feb.)
2 weeks ago, I had another biopsy, and it came just fine. weather it was the essiac's Tea, or prayer... i am not really sure! But i do believe in both! :)
As far as coping after treatment. it's hard to stay positive. I am 49 years old, lost my business, due to scheduling for chemo & rads treatemnt. and trying to start all over at 49 is a real treat!! LOL.... not to mention, trying to get life insurance!
I got refused coverage from one of the major companys in the U.S. Even though right now I am cancer free. Just the " label" As having had Cancer is a problem.
I like many others wonder.... what the hell , do I do now?? But i keep plugging along....
Best regards, to everyone that is in the samne boat

A friend of mine who has mesenchymal chondrosarcoma has asked me to research possible treatments. I have done a search of PubMed and the U.S. clinical trials database, but am interested in finding alternatives. Could you please suggest where I can locate legitimate alternative treatments, other sources of information in U.S. and abroad, and other patients and their families, who might have ideas on new treatments?

Thank you very much.

Dan

Hi Breeze,

Sorry for the long delay.

It sounds like you still have some hope! As my Mother always tells me...Never, Never, Never, give up hope.

In regards to green tea...Green Tea is good for you. Green Tea Catechins are the molecules in green tea that provide the health benefits. If you type Polyphenon into google, you will see a few links where Polyphenon is being studied as a preventative to certain cancers. Check it out.

My Mom was diagnosed with CLL(a rare blood cancer) and I have been giving her Polyphenon 100 capsules. She did go to her doctor not too long ago and got a good review. Hopefully the Polyphenon capsules are providing some benefit.

I hope this message reaches you well. Thank you for responding to my post.

HOPE is a powerful thing!

Wayne