Best doctors for stage 4 gasteric cancer

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Best doctors for stage 4 gasteric cancer

by rahul.essarferr on Tue Jan 25, 2011 07:10 AM

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Hello Friends

 

First of all my blessings for all the people and there families who are fighting with this disease.

I would like to get some help for my wife who is recently diagnosed by stage 4 gasteric cancer with the metastisis in ovary. My wife is 28 years old and we are currently in New York as we are visiting a phsycian in Memorial sloan kettering hospital who today told us that the chemotherapy is the only solution for my wife treatment we came from India to USA for the treatment and after hearing this we really got dishearteaned. So i would request all the people who have been or still in this type of cancer to help us to take a decision on choosing the right treatment and right onclogist to fight this type of cancer.

 

I would really appreciate in any kind of help like tips for food intake, treatment type etc....

 

Thanks to everybody who took some time out to read my post.

RE: Best doctors for stage 4 gasteric cancer

by Thereishope on Wed Jan 26, 2011 04:53 AM

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 Dr. Jaffer Ajani at MD Anderson in Texas is supposedly one of the best gastroenterologists in the world.  It would take about 2 weeks to get an appointment over there.  Also, try the Budwig diet which is a combination of flaxseed oil and cottage cheese or plain yogurt.  You can go to this website at youtube to see how it's done by Sandra Olsen at:

http://www.youtube.com/watch?v=RSoddptWL0s

 

And there are alternative treatments that you can find more info  at cancertutor.com

So sorry to hear this happening to your young wife.  Hope she beats her cancer!

 

Ivy

RE: Best doctors for stage 4 gasteric cancer

by muigi84 on Wed Jan 26, 2011 05:05 AM

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Though we do not go to this doctor, I was told that she is very good and thinks outside the box. We might go to her for a second opinion.

Dr. Allyson Ocean, NY Presbyterian Hospital

http://www.med.cornell.edu/research/aocean/biography.html

RE: Best doctors for stage 4 gasteric cancer

by muigi84 on Wed Jan 26, 2011 05:09 AM

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also, please know that there is no standard protocol. When my mom was first diagnosed, we saw 3 different doctors who all recommended 3 different chemo regimens: cisplatin/ irinotecan, EOX, and Folfox.

They all have varying side effects and no one will tell you their's is better than the other. They mostly go by the way they were trained, and aggressive side effects does not correlate to being "better" or higher chances of working. Another thing you might want to do if Texas is too far, find out the chemo regimen they use at MD Anderson for and see if a local dr can treat you with that protocol.

RE: Best doctors for stage 4 gasteric cancer

by momwithkids on Sun Jan 30, 2011 10:38 AM

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My wife was diagnosed with Stage IV stomach cancer in March of 2007.  We live in Connecticut and were fortunate to visit Sloan Kettering for a third opinion and were referred to Dr. Shah there who I credit with saving her life. 

Here is her story:

My 43 year old spouse was diagnosed with Stage IV in March of 07.  She initially presented with acute pain at her GI Junction that was relieved with over the counter prilosec and diet modification; however, we were not satisfied that the pain was simply caused by reflux and demanded an endoscopy which identified the stomach cancer.  The news got worse as further scans revealed a single tumor in her liver; they were 3cm and 4cm respectively. Wow, moving from Stage I to Stage IV sure did not take long.

She immediately started on ECF (Epirubicin, Cisplatin, and 5FU) and after four rounds (each three weeks long) the tumors were no longer detectable on scans and she was classified as being in remission.  After many second (and third and fourth) opinions it was decided not to do surgery in her case and she continued on ECF for another two months.  She experienced nausea with these treatment but a drug called Emend worked really well to decrease the symptoms. 

Post her initial round of treatments the scans were still clear and we changed her chemo regimen to Oxaliplatin and Xeloda (initially 5,000mg/day but quickly reduced to 4,000mg/day); she continued on this regimen for another 4 months before switching to just 5FU delivered every two week through her port (she was on this for the next 4 months). 

After more than a year of chemo, our oncologist suggested a break and to 'see what happens,' however our second and third opinions disagreed and she started again on Xeloda (also known as capecitabine) which she takes orally.  Unfortunately about 8 months into her treatments she developed a blood clot on her pancreas and had to start on coumadin - this was not a problem until we switched back to Xeloda which cannot be combined with coumadin so now we inject her daily with a lovenox type drug (this drug cost a pretty penny).

So here we are a year and a half post diagnosis and she remains on chemo with the advice of multiple oncologists (from Dana Farber, Sloan Kettering, Yale New Haven, and Columbia) all suggesting that she basically stay on a chemo treatment for as long as her body can tolerate it.

Through it all she has completed her Master's in early childhood education, received her teachers certificate and started back to work fulltime.  She remains in good health, has lost no weight and is motivated to continue the battle.  Initially she did have some nausea but a drug called emend took care of that, lost her hair (and has now grown it back and she used a good quality wig which helped her deal with it), lost layers of skin on her feet (this grew back to), lost some sensation in her hands and feet (feeling came back but not to where it was prior to seeking treatment).  As important as anything, her attitude has remained strong with a confidence that she can BEAT IT.  So far she has.  Praying hasn’t hurt her any either. 

That is her story so far.  She is very lucky as we caught it early and have had access to multiple professional opinions from leading cancer centers.  Also, that my mother in law (her mom) is an organizational wiz and we all have color coded binders with every test, every scan, every physician note, and every step of her treatment – this is a MUST HAVE to keep track of it all and be able to present the entire case study to physicians for their opinions (they will only be as good as the information they have to review). There are other success stories on this site.  We continue to take it a day at a time.  Since August of 07 we have had no signs of the cancer returning and sincerely hope it never does.

Update: In November of 2009 she discontinued chemo due to some side effects becoming too much for her, pain and tired often.  She continues to be positive and scans clear.  Here is hoping for a cure!!!

I hope this information helps: 

Mar 07  - Diagnosed with Stage IV (two tumors stomach 3cm – liver 3-4cm)

Apr 07  - Starts Chemo ECF (Epirubicin, Cisplatin, and 5FU)

Aug 07 - Scans clear, continues ECF

Oct 07  - Changes to Oxaliplatin and Xeloda (xeloda is pill form of 5FU)

Nov 08 – Scans clear, continues Oxaliplatin and Xeloda

Mar 08  - Switches to just 5FU (delivered through port)

Aug 08 – Switches to just Xeloda (oral chemo); scans clear

May 09 – Remains on Xeloda only – scans remain clear 

Nov 09 – Discontinues chemo post 2.5 years of treatment.  Scans remain clean.

Aug 10 – Still in remission.  Remains on Coumadin and has pain in feet after being on them all day. Alive and well!

 

IT was Dr. Shah at Sloan that recommended  (strongly) not to do surgery since the cancer had already spread and the surgery would only be a try to chase it through her body and surgically remove it from any site where it developed.

I would highly recommend him for your situation.

STEVE (aka momwithkids)

 

 

RE: Best doctors for stage 4 gasteric cancer

by momwithkids on Sun Jan 30, 2011 10:40 AM

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Dr. Shah has a book that he wrote on Stomach cancer.  You can google it, I think I bought it on Amazon for about $20.

RE: Best doctors for stage 4 gasteric cancer

by molatti on Fri Jun 03, 2011 08:33 AM

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On Jan 30, 2011 10:38 AM momwithkids wrote:

My wife was diagnosed with Stage IV stomach cancer in March of 2007.  We live in Connecticut and were fortunate to visit Sloan Kettering for a third opinion and were referred to Dr. Shah there who I credit with saving her life. 

Here is her story:

My 43 year old spouse was diagnosed with Stage IV in March of 07.  She initially presented with acute pain at her GI Junction that was relieved with over the counter prilosec and diet modification; however, we were not satisfied that the pain was simply caused by reflux and demanded an endoscopy which identified the stomach cancer.  The news got worse as further scans revealed a single tumor in her liver; they were 3cm and 4cm respectively. Wow, moving from Stage I to Stage IV sure did not take long.

She immediately started on ECF (Epirubicin, Cisplatin, and 5FU) and after four rounds (each three weeks long) the tumors were no longer detectable on scans and she was classified as being in remission.  After many second (and third and fourth) opinions it was decided not to do surgery in her case and she continued on ECF for another two months.  She experienced nausea with these treatment but a drug called Emend worked really well to decrease the symptoms. 

Post her initial round of treatments the scans were still clear and we changed her chemo regimen to Oxaliplatin and Xeloda (initially 5,000mg/day but quickly reduced to 4,000mg/day); she continued on this regimen for another 4 months before switching to just 5FU delivered every two week through her port (she was on this for the next 4 months). 

After more than a year of chemo, our oncologist suggested a break and to 'see what happens,' however our second and third opinions disagreed and she started again on Xeloda (also known as capecitabine) which she takes orally.  Unfortunately about 8 months into her treatments she developed a blood clot on her pancreas and had to start on coumadin - this was not a problem until we switched back to Xeloda which cannot be combined with coumadin so now we inject her daily with a lovenox type drug (this drug cost a pretty penny).

So here we are a year and a half post diagnosis and she remains on chemo with the advice of multiple oncologists (from Dana Farber, Sloan Kettering, Yale New Haven, and Columbia) all suggesting that she basically stay on a chemo treatment for as long as her body can tolerate it.

Through it all she has completed her Master's in early childhood education, received her teachers certificate and started back to work fulltime.  She remains in good health, has lost no weight and is motivated to continue the battle.  Initially she did have some nausea but a drug called emend took care of that, lost her hair (and has now grown it back and she used a good quality wig which helped her deal with it), lost layers of skin on her feet (this grew back to), lost some sensation in her hands and feet (feeling came back but not to where it was prior to seeking treatment).  As important as anything, her attitude has remained strong with a confidence that she can BEAT IT.  So far she has.  Praying hasn’t hurt her any either. 

That is her story so far.  She is very lucky as we caught it early and have had access to multiple professional opinions from leading cancer centers.  Also, that my mother in law (her mom) is an organizational wiz and we all have color coded binders with every test, every scan, every physician note, and every step of her treatment – this is a MUST HAVE to keep track of it all and be able to present the entire case study to physicians for their opinions (they will only be as good as the information they have to review). There are other success stories on this site.  We continue to take it a day at a time.  Since August of 07 we have had no signs of the cancer returning and sincerely hope it never does.

Update: In November of 2009 she discontinued chemo due to some side effects becoming too much for her, pain and tired often.  She continues to be positive and scans clear.  Here is hoping for a cure!!!

I hope this information helps: 

Mar 07  - Diagnosed with Stage IV (two tumors stomach 3cm – liver 3-4cm)

Apr 07  - Starts Chemo ECF (Epirubicin, Cisplatin, and 5FU)

Aug 07 - Scans clear, continues ECF

Oct 07  - Changes to Oxaliplatin and Xeloda (xeloda is pill form of 5FU)

Nov 08 – Scans clear, continues Oxaliplatin and Xeloda

Mar 08  - Switches to just 5FU (delivered through port)

Aug 08 – Switches to just Xeloda (oral chemo); scans clear

May 09 – Remains on Xeloda only – scans remain clear 

Nov 09 – Discontinues chemo post 2.5 years of treatment.  Scans remain clean.

Aug 10 – Still in remission.  Remains on Coumadin and has pain in feet after being on them all day. Alive and well!

 

IT was Dr. Shah at Sloan that recommended  (strongly) not to do surgery since the cancer had already spread and the surgery would only be a try to chase it through her body and surgically remove it from any site where it developed.

I would highly recommend him for your situation.

STEVE (aka momwithkids)

 

 

Hi Steve,

I'm glad I came across your post as it gives me a little bit of hope.  Recently my 38 year old husband went from a couple of headaches to hospital emergency from a brain hemorrhage to finding out he had Stage IV stomach/esophagus cancer with mets to his lungs and brain.  Last week he started on Epirubicin, Cisplatin and Xeloda. 

My questions to you is why the switching between 5FU to Xeloda if they are the same?  Also, when did she start having the hands/feet reactions?

Thank you,

Molatti

RE: Best doctors for stage 4 gasteric cancer

by BruceF on Wed Jun 08, 2011 05:31 PM

Quote | Reply

I would also recommend Dr. Shah.  My Mom was diagnosed with Stage IV in Feb 2010.  Started a clinical trial he is running in March 2010.  And she's been doing great. 

Link to the trial information: http://clinicaltrials.gov/ct2/show/NCT00515411

RE: Best doctors for stage 4 gasteric cancer

by momwithkids on Mon Jun 20, 2011 11:49 PM

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You are where you want to be.  Dr. Shah at Sloan saved my wifes life by recommending just chemo to take care of her Stage IV gastric cancer in April of 2007.  She is alive and well and remains in remission.  What might not seem agressive treatment (not recommending surgery), I am convinced saved her life. 

Tell Dr. Shah that Lisa B. (from CT) says hello and she is doing fine. 

Best of luck with treatment, it is tough, but not too bad.

 

RE: Best doctors for stage 4 gasteric cancer

by momwithkids on Mon Jun 20, 2011 11:51 PM

Quote | Reply

The Xeloda has some properties that react differently then the 5FU.  My wife originally wiped out the cancer with 5FU delivered through a pump round the clock for 4 months. 

The foot stuff began after around 3-4 months on the chemo.

My continued blessings!

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