One patient with glioblastoma still alive nine years later
by rrojas76 on Tue Feb 01, 2011 07:58 PM
In Oct. 2008, I was diagnosed with rectal cancer. After Chemo-radiation, surgery, and more chemo, I was declared cancer free. Now, two PET Scans have shown abnormal activity in the same area. Flex Sigmoidoscpies with biopsies have come back negative for cancer, CEA levels have been good, but they have always been good even when I was diagnosed. My Dr. now says the mass is in the presacral area, and ordered a CT guided biopsy. I am waiting on results. Does anyone else have any information or experience in anything involved with the presacral area.
by funkygibbon on Tue Feb 01, 2011 08:58 PM
I had rectal cancer and 25 hits of radium treatment before i had my rectum removed in Jan 2009, had a PET scan 6 months later which showed up a tumour on my coccyx, operation to remove the coccyx took place Dec 2009,Op involved 4 consultants on standby my ongologist,a neuro surgeon because of proximity of spinal cord an urologist incase of bladder damage plastic surgery fill hole where rectum was during op took 20biopsies from the tumour which all come back benign so instead of carrying on and removing the coccyx they whacked my stomach back together and sent me on my way , been back in April 2010 a further 10 biopsies taken once again all benign,had bloods taken in sept 2010 and cancerous levels were high ( not sure what tests ) ,in Oct 2010 had a MRI scan which led to a colonoscopy and a CT scan and finally a PET scan which showed up cancerous cells on the tumour on my coccyx and 2 small spots in my lungs, the oncologist thinks the coccyx tumouris breaking up and has spread to my lungs , they intend to remove the coccyx within the next 3 - 4 weeks, my oncologist explained its very hard to determine how much scar tissue they will have to remove ( scar tissue and damage caused by the radiation and gap left when rectum was removed ) so until he starts cutting he wont know how much he will have to take away and will it involve me having a water bag to go with my #### bag , hope this helps
by kobrien88 on Tue Jun 12, 2012 01:07 AM
I was diagnosed with rectal cancer in Oct 2009, had surgery and chemo and now under surveillance. For the past 3 yrs i have had 2 CT scans, each 1.5 yrs apart. In the most recent CT scan, a small mass was noted in the presacral region, but has shown no change in size or density from the previous CT. My onc says he has no reason to be concerned, that it is probably scar tissue from the surgery, but if I wanted to, I could have a PET scan done to determine if there are any cancer cells. I am on the fence right now. I was wondering what the results of your biopsy was. Wish you the best.
by rrojas76 on Tue Jun 12, 2012 02:39 PM
The PET scans always alert to my area. But biopsies inside and outside the rectum wall have come back negative. My rectal surgeon says this is just inflammtion of scar tissue, and the best thing to do is to keep an eye on it. It would be up to you for the PET scan, my oncologist always requests one and my surgeon feels there is no need for another one, since he knows what the problem is. I wish you the best.
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