Infant Radiation for Enlarged Thymus Gland 1940's & 1950

121 Posts | Page(s): Prev 1 2 3 4 5 ...1213 Next 

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by Margytex on Fri Mar 23, 2012 07:56 PM

Quote | Reply
Hi Brenda, In 1950 as an infant I had 10 radiation treatments on my Thymus. My mom said it was because I had an enlarged thymus and was a "Blue Baby". I would turn blue. In 1995 at age 45 I was diagnosed with breast cancer, had a mastectomy and chemotherapy. I also have had a perodiectomy (Wharthon's tumor), thyroidectomy and parathyroidectomy due to cancerous and benign tumors respectively in 2001 and 2004. three of my high school girlfriends who were radiated for enlarged thymus as infants also have had thyroid and breast cancer. Can't help but think there is a connection to the radiation as a baby.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by JUDIANNE on Fri Mar 23, 2012 08:14 PM

Quote | Reply

Sending you an update on myself. I had a full removal of my thryroid and parathyroid glands on 2-10-12. No cancer was present at all. I spent one night in the hospital and that was it. My voice box was injured when I was intibated for the surgery and have had a very gravely and hoarse voice ever since. The surgeon said it could take up to six months to come back to normal. It does not hurt at all.. so it's not that big of a deal. I have been put on 100mgs of a synthetic thyroid pill daily, and 3 huge calcium pills daily due to having the parathyroids removed. I go next week for my 6 week blood test to see where both of these levels are with the current meds. I was told the taking of the calcium was a temporary situation, just until the parathyroids they sliced and transplanted back into a muscle around my neck area start producing calcium on its own again. I had a total of three benign tumors removed at the same time the thyroid was removed. Two were attached to my thyroid gland and one as on the back of my neck (this has been the third time for that one to be removed as it keeps growing back). To my advantage, I have lost 27lbs so far since the surgery. Other than that I seem to be doing just fine.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by hodgsonprgmail on Sat Jun 23, 2012 11:47 PM

Quote | Reply

On Feb 03, 2011 9:23 PM BAguirre wrote:

Hello, my name is Brenda and Im researching Infant Radiation for Enlarged Thymus Gland in 1940's & 1950's. I have some questions for anybody who was radiated during these times for enlarged thymus gland.

What were your symptoms?

Were your parents given a different diagnosis?

How did your parents discover the actual diagnosis?

How many radiation treatments were given? Every how often?

 

At the age of three months I had infant radiation for an Enlarged Thymus Gland.  I am sorry that I don't have more details than this, but I believe my mother said I had several rounds. That was in 1945.

In 1983 I was diagnosed with breast cancer in my left breast.  My family does not have a history of this disease. I had a Mastectomy followed by reconstructive surgery three months later.

The little well in the front of my neck has always been very sensitive: a scarf tied too tightly, for example, sends me into a panic.

(In the early 90s I met a CNN reporter who had radiation as a child and later he had cancer of the throat.  He emphatically claims the cancer was caused by childhood radiation and did a story on it.) 

Eating, choking, sneezing is not an uncommon ritual for me when eating and/or drinking.  (Common response, "It went down the wrong pipe."

Recently I had tests on my Thyroid due to a high % of calcium in my blood.  The results?  A nodule on my thyroid and one on my kidneys.  The endrochonologist suggested in three months we test again.  Tests have been completed, and I will see her next week for the results.  I will keep you informed.

It gives me comfort to read similar stories. Thank you.  

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by houndmaster on Wed Jul 25, 2012 12:53 AM

Quote | Reply

On Jun 23, 2012 11:47 PM hodgsonprgmail wrote:

On Feb 03, 2011 9:23 PM BAguirre wrote:

Hello, my name is Brenda and Im researching Infant Radiation for Enlarged Thymus Gland in 1940's & 1950's. I have some questions for anybody who was radiated during these times for enlarged thymus gland.

What were your symptoms?

Were your parents given a different diagnosis?

How did your parents discover the actual diagnosis?

How many radiation treatments were given? Every how often?

 

At the age of three months I had infant radiation for an Enlarged Thymus Gland.  I am sorry that I don't have more details than this, but I believe my mother said I had several rounds. That was in 1945.

In 1983 I was diagnosed with breast cancer in my left breast.  My family does not have a history of this disease. I had a Mastectomy followed by reconstructive surgery three months later.

The little well in the front of my neck has always been very sensitive: a scarf tied too tightly, for example, sends me into a panic.

(In the early 90s I met a CNN reporter who had radiation as a child and later he had cancer of the throat.  He emphatically claims the cancer was caused by childhood radiation and did a story on it.) 

Eating, choking, sneezing is not an uncommon ritual for me when eating and/or drinking.  (Common response, "It went down the wrong pipe."

Recently I had tests on my Thyroid due to a high % of calcium in my blood.  The results?  A nodule on my thyroid and one on my kidneys.  The endrochonologist suggested in three months we test again.  Tests have been completed, and I will see her next week for the results.  I will keep you informed.

It gives me comfort to read similar stories. Thank you.  

As a 6 month old infant, I was given radiation treatments by the OB/GYN who delivered me for what he told my parents was an "enlarged thymus gland." He further told them that if the treatment was not done, I ran the risk of suffering from "guiantism," which, of course, was a blatant lie.

I didn't find out about this until I reached my early 30s and was contacted by the hospital where the procedure had been done in Chicago. They were conducting  "follow up" research to determine if I had suffered any type of ill side effects. I believe they merely did an x-ray of the upper thoracic area. A few weeks later I was sent a letter giving me a completely clean bill of health, further stating that I had "nothing to worry about."

Around the age of 35 I developed mild osteo-arthritis in my knees and ankles; about a year later, mild psoriatic plaque began forming on my elbows, knees and ears - both diseases generally related to immunity problems.

In 1997, while driving, I became faint, somewhat disoriented and short of breath. By that time, being a marathon runner, I knew I was in pretty good shape, but worried that I might be having a "cardiac incident" or possible small stroke. After stopping the car and breathing deeply some of the cool November air, I felt normal again and continued on to my destination.

Roughly 12 hours later, in the morning in my home, I endured the same symptoms; this time I went to the emergency room. They ran every test they could think of, including chem panels, EKGs, CT scans and an MRI. After 10 hours, they sent me home and told me to come right back if the symptoms reappeared. Eventually, they passed me off to an endocrinologist who told me I was hypercalcemic because of an adenoma on one of my parathyroid glands.

During the operation, my surgeon noticed that the right side of my thyroid was completely shriveled up and non-functioniong and that the left side was full of what later proved to be non-cancerous nodules, so he opted to take it out along with the parathyroid gland. He stated that he had seen many cases like this among patients who had received radiation treatments of the thymus gland as children or infants.

I'm sure that the doctor who ordered the radiation felt as if he were doing both my parents and I a favor by doing so. Simply put, the medical establishment had a new "toy" to play with and weren't shy about using it. As can be seen by these many testimonies on these pages, it was the trusting patients who paid the price for their scientific curiosity; doctors seldom pay for any of their mistakes. 

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by mdogg1950 on Fri Nov 09, 2012 04:10 AM

Quote | Reply

I was irradiated for an enlarged thymus gland in 1951 in Dubuque,Iowa when I was less than a year old.  In 1976 or 1977 there was a 60 Minutes type program that discussed this subject. I wrote to my home town hospital and received a reply that I had received a "low level" dose of radiation. I can't recall how many roentgens the dose was, but I think I still have the letter somewhere in my "archives". I had a thyroid scan in 1977 that was normal. I am very healthy (and I thank God), but perhaps I should have another scan as I am 62 years old now. Best wishes, Matt

 

 

 

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by tlowe6 on Tue Nov 27, 2012 11:24 AM

Quote | Reply

I was treated in 1952 with radiation on my thymus gland.I was only told it was for shrinking the thymus gland. My thymus gland was large according to Drs. I was a new born when done.I dont know how many treatments where given.I was born in Martins Ferry Ohio hospital.I have just recently found out I have double pnuomia and do not have enough t cells to fight off lung infections.I will have to have treatments that could cost 20,00-30,000 per month.The dr said I will not be able to fight off infections( I have had double pnuomia for several months now cant get rid of it). Thanks Twila

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by egraceh on Tue Dec 04, 2012 08:52 AM

Quote | Reply

Thank you for monitoring this situation.  I had infant radiation for an enlarged thymus when I was 8 months old.  This was 1948 in Logansport, Indiana.  I was dying and was given the last rites.  My thymus was so large that I could not eat and was "failing to thrive."  There is no record of how many radiation treatments that I had, but my mother (now deceased) indicated that if was only one or two.

I am one of the lucky ones.  I have had relatively few problems, except for psoriasis which has been problematic on occasion.  When I was younger, my thyroid would become either over-active or under-active, but that has settled down.  I self examine my neck and upper chest regularly because I am aware of the risks.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by norahdaniel on Sun Dec 30, 2012 09:13 PM

Quote | Reply

I was born in 1952. My mother told me (in the eighties, I believe) that my my thymus galn had been radiated because it was "enlarged" when I was an infant. I understand now that the enlarged thymus is a medical myth. When I was ten years old, I was diagnosed with hypothyroidism and began taking thyroid and later synthroid. By the time I was 18, my thyroid had shut down completely. My MD had me stop taking synthroid cold turkey to "jump-start" my thyroid, which seemed to work. When I was 55, I had emergengy surgery to remove a very large kidney stone. My urologist figured out that it was caused by a particularly bad case of parathyroid disease.  I had the surgery to remove the parathyroid gland with the tumor. In the meantime, I injured my left knee and because my bones were weakened by the parathyroid disease, arthritis set in. Because I was so young, I cycled through a number of treatments before having a failed scope sugery followed by a total knee replacement. I also underwent three additional kidney surgeries, a direct result of the inital stones caused by the parathyroid disease. I now have renal disease and high blood pressure.

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by jkliman on Sun Dec 30, 2012 11:24 PM

Quote | Reply
I wonder if there is interest among us to start a yahoo group and try to gather information, and be a support to each other. I was radiated as an I can't. I just went through breast cancer treatment last year. I have nodules on my thyroid but no cancer.I am 59, and wonder what the future holds for me. There was a fairly long term study done at the University of Rochester following over 2000 infants that were radiated and their sibling, over an almost 50 year period. My brother and I participated in the study. It seems like it would be good to have a site with resources.. Joyce Kliman

RE: Infant Radiation for Enlarged Thymus Gland 1940's & 1950

by KauaiNancy on Mon Dec 31, 2012 09:00 AM

Quote | Reply

Hi Joyce,

I would be very supportive of joining a yahoo group to gather information on good resources on those of us who were radiated on our thymus as infants. I would love to see the results of the Rochester study. I have read two medical papers through PubMed and was given another during a consult at Stanford for another matter, my heart. So far, you're the only person I've read about who was in an actual study. The papers that I read were very general. If we could post actual data from all of our sources it would be great. The problem would be trying to keep it to academic or medically sound sites. I am 68. Have had 2 different breast cancers, 18 yrs apart, (both with radiation - wouldn't have done that route had I known about earlier infant radiation), melanoma, and last year appendicial cancer. Thanks to excellent treatments, all in remission. Most recent breast cancer was 8 yrs ago. Chemo drug Adriamycin damaged my heart muscle pretty severely, but diet and drug treatment manage it quite well these days. Just a new normal for me. When did Rochester stop the infant thymus radiation .... in 1956? I'm trying to find out if Vancouver General Hospital in Van., BC, Canada has done any follow-up studies. Please keep us posted how we can help to make this group a reality. Hopefully you'll get lots of interested people. Aloha, Nancy Grantham

121 Posts | Page(s): Prev 1 2 3 4 5 ...1213 Next 
Subscribe to this message board discussion

Latest Messages

View More

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.