One patient with glioblastoma still alive nine years later
by Cottagelife on Fri Feb 04, 2011 02:32 PM
Good morning everyone.......Has anyone ever gone the route of alternative medicines for AML. Weve almost run out of options at this point and may go another way since conventional therapy is not working. My husband has MDS/MPD unclassified which progressed to AML, he also has Myelofibrosis and this new diagnosis of FLT3-ITD gene mutation which causes the AML not to go into remission and to cause it to grow aggressively. Hope there's someone out there who can shed some light.
Life isn't how to survive the storm But how to dance in the rain!!!!
by Roselvr on Sun Feb 13, 2011 02:39 PM
I'm sorry; I know how grim AML can be; I lost my dad to it 5 years ago. They know so much more now then back then.
All I could find was this article http://goo.gl/HPe4s I scanned the article; it says MD Anderson. I don't know what they're doing at Thomas Jefferson in Philly but I met a guy with AML (not sure what sub type that has survived longer then thought. I kick myself for not getting his email address
Nexavar® Confirmed Effective for FLT3-ITD-positive AML -
by Cottagelife on Sun Feb 13, 2011 03:23 PM
Thanks for your reply, He did try Nexavar but no results. We go back to hospital on Monday to see if there is anything else they can offer us. Running out of options. Yikes
by Roselvr on Sun Feb 13, 2011 04:51 PM
I'm sorry. I'm pretty sure they are doing stuff with AML in Washington State at University of Washington. It's where I've seen a lot of Google alerts come from. I'm also seeing alerts out of Mass General
This is the original article I saved http://news.bbc.co.uk/2/hi/7706487.stm
I also found a Leukemia research foundation
I wish you luck. I know what this cancer is like. My dad ran out of options but wanted to fight until the end. I'm so sorry.
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