Driving with GBM 4

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RE: Driving with GBM 4

by TeamxRogers on Wed Feb 16, 2011 02:39 PM

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You were suppose to quit driving? LOL J/k! But, Daddy'O didn't. He kept a low profile and stay on back streets (We live in the sticks) but when he was stable, he was driving.

RE: Driving with GBM 4

by lsmith on Wed Feb 16, 2011 03:26 PM

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I think in most cases with GBM's it's whether or not there is a history or a risk of seizures.  My husband is 7 years and 9 months out now.  He isn't driving currently because of risk of seizures.  It is our choice.  Technically, if you have had a seizure within the last 6 months you shouldn't drive.  It's more of a safety and insurance thing... Some states it's a law and some it isn't.  I live in Ohio, it is not.  But if my husband was driving and something happened due to a seizure "they could take everything we owned" if he had a seizure in the past 6 months.  So, we choose to be safe.

I will tell you my husband did drive off and on for the first 5 years.  Mainly in town but on the highway when I was with him.  If you don't have a risk of seizures and/or haven't had any... I would totally drive!  Enjoy!  Be  healthy and be safe!  Oh, and keep walking a working and out and look into a mostly raw healthy vegan diet... just saying, my husband would like to have many others who survive as long as he has!  :) 

RE: Driving with GBM 4

by Roselvr on Wed Feb 16, 2011 04:47 PM

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I agree with I Love Gary. Honestly; I tend to side with the wife here or caregiver; because if they've driven with you & are having concerns then there may be a reason why they are concerned that you & your doctors don't realize.

Take my hub with a different cancer (oral); his radiation oncologist always said no driving while being treated & I think it's a good rule of thumb. The main reason was due to medications; but even the days he didn't take the ativan or pain killer; his driving was not great once treatment started & he hated that he couldn't drive.

One day I let him drive home; he tried to sandwich my car between 2 cars- there must have been a 10ft gap- if that. I'm on the passenger side; watching these cars get closer to me & I was scared. He wasn't paying attention to when he had to get over to make a right from the fast lane.. there were a few other things where I could tell he was not on the money & while it killed me to have to say something; I did. I told him he hadn't driven in 6 months & needed to practice around our community & he did. He stayed locally a few trips.

Best suggestion I have is to get someone else to go drive with you; take someone who can give you honest feedback. If they have concerns then you know something is still off.

RE: Driving with GBM 4

by mccleave on Wed Feb 16, 2011 05:30 PM

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On Feb 15, 2011 6:17 PM MkScott wrote:

I was diagnosed with GBM 4 back on September 21, 2010.  They removed what they could of the tumor and since then I've gone through the radiation and temador.  I'm currently on an Avastin/Temador treatment right now.  I take Avastin once every two weeks and the Temador for 5 days then off for 28 days.  I'm 37 years old have great energy, walk 2 miles every morning and work out.  Just had a recent MRI that showed there was no new enhancements with my tumor.  Checked with both of my oncologists about me driving and they thought it would be fine as long as it's local and not on highway.  Just curious if anyone out there with GBM 4 has been driving.  My wife is the one who is upset about me driving.  Please let me know.

Hi,

My husband was diagnosed with GBM 4 on 1 June 2010. The removed the tumour.  He seems to have travelled the same medical path as yourself, except for the Avastin.  He is starting his 7th 5/23 cycle next week.  He was given strict instructions from oncologist not to drive for 6 months after surgery and if he suffered a seizure within that 6 months, the 6 month period would start from that point again.  Luckily, no seizures, so he started driving on 1 Dec 2010 and all has been well since.  There is no change in his driving capabilities. 

loving wife

Michelle

RE: Driving with GBM 4

by birdsong on Wed Feb 16, 2011 11:46 PM

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My husband (GBM 4 diagnosis almost 4 years ago) does drive. Frankly, it worries me because his ability to concentrate is not what it used to be. There have been a couple of minor accidents and obviously that has affected our insurance premiums. On the other hand, when he was not driving it was just too much for me (emotionally and schedule-wise) to take him everywhere he needed to go. The best I can hope for now is that his driving will be kept to a minimum and just local trips. 

RE: Driving with GBM 4

by jeffa on Thu Feb 17, 2011 01:09 AM

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On Feb 15, 2011 6:17 PM MkScott wrote:

I was diagnosed with GBM 4 back on September 21, 2010.  They removed what they could of the tumor and since then I've gone through the radiation and temador.  I'm currently on an Avastin/Temador treatment right now.  I take Avastin once every two weeks and the Temador for 5 days then off for 28 days.  I'm 37 years old have great energy, walk 2 miles every morning and work out.  Just had a recent MRI that showed there was no new enhancements with my tumor.  Checked with both of my oncologists about me driving and they thought it would be fine as long as it's local and not on highway.  Just curious if anyone out there with GBM 4 has been driving.  My wife is the one who is upset about me driving.  Please let me know.

Hello,

I had a golfball sized tumor with GBM removed Sep 09 Have gone through Radiation, Temodar, Clinical Trial XL 184 - have had 2 recurrances now on Avastin and CEENU.  Was driving with no problem at all.  Developed hemianopsia last November.  While DMV, Oncologists  and Optomologists have given me OK to drive- with some sfty scanning techniques.  I chhose not to.  I don't want to hurt anyone.  It's not worth it.  I walk, get rides from friends and take taxis.

 

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