One patient with glioblastoma still alive nine years later
by neva1223 on Wed Feb 16, 2011 01:11 AM
I had whipple surgery in august of 2009.I have lost 87 lbs because i have trouble keeping food down. constant vomiting is a daily event since surgery. always feeling run down;I wonder if i will ever feel any better. Does any one have same problems i do?
by emilys on Wed Feb 16, 2011 01:44 AM
I had a whipple in 1999.. You need to eat slower, and throughout the day. Small bites, graze. Your GI system is different now, and you probably have slow gastric emptying. I order a bowl of soup when I go out, and can't even finish it. You need to lessen the amount of food you eat. The run down feeling is permanent. Sorry, but you need to rest alot.....and learn to accept that is what your life is now. Keep your chin up, it's not easy to adapt to.
by belle1044 on Thu Feb 17, 2011 12:15 AM
I had Whipple in February 2001. Life is certainly different now but at least I am here to talk about it! I never had any vomiting but have close to constant indigestion. Don't eat much and don't sleep well either. There is some over the counter for indigestion, I think it's Zegerid, that seems to help me more than anything. You really do need to try to eat small amounts several times a day. Sometimes I don't have anything more than a bowl of cereal or a salad all day long. If that's what I have to do to keep from feeling miserable then that's what I'm going to do. Don't know what to say about the run down feeling. I am 51 now and can't say that I feel run down all the time but I do know that I am anemic and do IV iron a few times a year. That doesn't seem to help though. Hang in there and I hope things get better for you.
by jake59 on Thu Feb 17, 2011 12:41 AM
I had my whipple in april of 07..I still can't eat like I used to and I learned to eat little meals if I don't my stomach feels awful. I only vomited in the hospital when they had me eat something and vomited for two weeks after I was home. If I try to eat to much sometimes it will come right up..that has only happened about three times since the surgery. I still get burning sensations in my stomach & throat and my taste has been altered...I have a metal taste in my mouth...does anyone else have that or burning sensations. I lost alot of weight and only started to some of it back this year. I was lucky my whipple was begnin. Hang in there everyone is different its a very tough surgery to recover from...You have to remember your insides will never be the same...Hope you start to keep food down...
by neva1223 on Thu Feb 17, 2011 12:51 AM
thanks for responding;I feel so alone sometimes it seems like no one understands how hard it is.the doctor said i have very slow gastric emptying.someti mes it takes two days for food to leave my stomach.I eat very small meals,its hard for me to skip ameal since im diabatic.Im on nexium and zantac and creon.the doctor thinks i may have a blockage going back to university of virgina.for another scope .afraid of another surgey my right lung collapsed when i had last surgery.im 60 years old now.
by jake59 on Thu Feb 17, 2011 01:00 AM
I know what you feel about feeling alone...no one can understand unless they had the whipple done..I was 58 when i had it done..I just had another EGD scope done about a month ago and they didn't see anything that would cause my burning in my stomach or throat. I am on prilosec, Zantac, and now they are trying neurontin because they think that when the surgery was done that some nerve ending could of been effected. I am 62 and I thought by now things would be better...I am so thankful not having cancer. I've read alot of these post and god bless them all. I hope all works out for you.
by sledd on Thu Feb 17, 2011 01:27 AM
Oh my gosh. When I read our note talking about the burning in your throat I thought "That's what it is". I have been having heartburn lately and could not figure what I was doing wrong. I get it especially when I have eaten sweets or chocolate just before going to bed.
I have also had two episodes of diarrhea and throwing up first thing in the morning which I can't figure out why. Maybe I ate too much (it was a pot luck dinner) or ate too many different foods.
Whould appreciate hearing from someone who is having similar things happen
by emilys on Thu Feb 17, 2011 01:31 AM
I had a metal taste in my mouth, and I found out I was taking in too much iron. Take liver pills, dandelion root or milk thistle, it will help. Take care
by emilys on Thu Feb 17, 2011 01:35 AM
the burning in my throat was acid reflux, and now I take Aciphex. Seems to work great for me. I hope you can find things to help you. But prilosec and zantac didn't work for me. I am 55 now and had my whipple when I was 44.
by Islander15 on Thu Feb 17, 2011 10:47 AM
I had a whipple in October of 2010. I'm also on Creon 6000 and I suffer if I don't take it. I also had heartburn and take Omiprozole OTC. That works for me. My problem is that my gag reflex is right there at the edge. Brushing my teeth is the worst. It sets off the urge to vomit and I have to walk around the house and give it time to subside. I seem to do better with light foods like canned fruit, toast, low sugar and small portions. I can eat, but I feel sluggish and run down if I overdo it. What does your doctor say about the constant vomiting? Mine does not consider that an acceptable condition to be lived with. Does he/she have an explanation for why you still have it after two years? I have found that with a gastrooncologist, a chemo guy and a radiation guy all involved, that I have to take control or no one steers the ship. Go see your gastro guy and and insist on help. I agree with the other posters that things are different now and you have to listen to your body for what works and what doesn't, but as bad as you feel, your doc needs to help you. Jean
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.