hello everyone...we are new to this message board. i was poking
around for information and stumbled in. i have read many of the
stories from parents of children with dpg. my son also has this
terrible disease and we are in the same boat as many of you. i
came upon kaylasmom and was intrigued to find an alternative
treatment to be working so well. im interested in learning more
about the rut6/cal phos regimen as well as where i can get the
mixture. like many others we have gone down the radiation,
chemotherapy, decodron road only to get to this point and, not in
so many words but be told there is nothing more. this makes the
treatment of ruta6+ all the more interesting. we are
experiencing some degrading symptoms; speech is more slurred,
more difficulty swallowing and more limited mobility. we are
looking for anything anywhere on the planet that gives positive
results. the ruta6 seems to be the one.....kaylas mom? where can
i get some of it, if you read this PLEASE send me an email so we
can talk some more......prayers and best wishes to all families
experiencing this!