I Just Found Out That I Have Vaginal Cancer

I would like to know if there is anyone that has had stage 1 vaginal cancer. What the treatment was for you. This is very scary for me.Thank-you Lynda

i too have been told i have VAIN. i understand how scary it is. im in the UK. where are you from? i only ask as where you live depends on the treatment you receive. i had a total hysterectomy 2 years ago (after cervical cancer and other gyny probs). had vault smears (from top of vagina) 6 monthly afterwards and each time ive ended up in hosp having more surgery. now my doc wants me to consider a vaginectomy or radiatherapy (both of which means penetrative sex will be impossible). im scared and confused. ive never slept around, dont have HPV, and always gone for smears etc. and im only 42. i have a few months to decide on the treatment i have next as doc said hes 100% sure its not going to spread (very few cells at the moment), and also as i detest being in hospital and everything to do with this awful disease. i thought it would all be finished when i had the hysterectomy. not for me, and i am now in the one in a million position that it keeps recurring. have you had treatment? how is it going? anyway ive rambled on for quite a bit now so am going to go. paula

I went through treatment for vaginal cancer almost two years ago. I would be happy to chat with you about it. If there's a way to give you my personal email I will do it. I don't know how this website works.

Judy

i dont know how this website works either but i would love to hear from you. i dont know what to do about all this. am so worried and scared bout it all. paula

Paula--I'm posting my website here, so you can email me----- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----. I hope this gets put through to you.
Judy

Have you been diagnosed?What were your symptoms? I have just made the decision to see a different Dr. than who I saw two years ago,because intercourse is still so painful and the Dr.'s recommendation to "relax more" didn't make any difference whatsoever. If anybody else is reading this, please let me know what your initial symptoms were. Thanks. I'm really scared about the possibility of a cancer diagnosis. Laurie

would still love to talk to you, but cant get your email address via this site, and cant post mine either. not sure what else i can do? any ideas? paula x

i just wanted to ask if you have been for a smear recently? if not, then insist on having one done asap. painful sex is associated with lots of different things, cancer is not the first thing doctors will look for if you have had regular smears. where bouts are you? im in uk. i think you are wise to change your doctor as 'relax more' is hardly a sound diagnosis! dont be too worried about having cancer, it is rare and is usually detected early and is very treatable. ive had gynae problems for 21 years and im still here! if you have any other questions, let me know but in the meantime dont worry!! paula x

I guess you saw that I tried to put my email address online. I didn't realize it was against the rules. I, too, wish we could get in touch but I don't have any good ideas. I am almost two years from treatment and am doing well. My doc told me that recurrence happens 80% during the first two years. I don't know if there's a difference between treatment in California opposed to UK. I had radiation and chemotherapy. Judy

I guess you saw that I tried to put my email address online. I didn't realize it was against the rules. I, too, wish we could get in touch but I don't have any good ideas. I am almost two years from treatment and am doing well. My doc told me that recurrence happens 80% during the first two years. I don't know if there's a difference between treatment in California opposed to UK. I had radiation and chemotherapy. Judy