BRAC II Genetic test Postive

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BRAC II Genetic test Postive

by Tamatha on Wed Feb 23, 2011 11:59 PM

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Good evening

I am sending this first off to let you know that I did meet with the genetic counselor to get the results of my genetic test that was taken back in December.  I test positive for the BRAC II gene.  There was a mutation chance in that gene.  My oncologist was glad and almost excited that this kinda explains why a 47 year old woman would get pancreatic cancer at such a young age.  My mother had inflammatory breast cancer, her grand mother had breast cancer, mom also had a 2nd cousin that died of pancreatic cancer.

Because I tested positive they said that is is requested that I get my overies out.  I had a hysterectomy but they left my overies.  That was in 07.  At that time there was no cancer in my family.  So I will be getting them out in June. I have two children and they wil only do a portion of the test since I was Negative on the BRAC I.  My oncologist also suggested that I take tamixifen 20 Mg.  He said that my taking tamixifen that it will reduce my chances of getting breast cancer.  Also if I get the overies removed then that will lessen the chances for that too.

Has anyone on Cancer compass tested positive with the BRAC I or BRAC II.  If anyone has any infor let me know I would greatly appreciate it.

Thanks

Tammy

RE: BRAC II Genetic test Postive

by phman10 on Thu Feb 24, 2011 02:01 PM

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My wife was diagnosed with Pancreatic Cancer three and half years ago which they could not operate on.  Last year her older sister was diagnosed with stage 1 Breast Cancer and she was tested for the BRAC II and tested Posiitve.  She was treated and she is fine.  My mentioned this to her oncologist and he had my wife tested for the BRAC II and she tested positive.  My wife has been on Chemo for over three years, and thank G-D she is doing ok.  Her PET Scans and Tumor Makers have been good overall. 

Paul

RE: BRAC II Genetic test Postive

by barb1214 on Fri Feb 25, 2011 01:00 AM

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Hi Tammy,

I thought you might be interested in the story of Libby Znaimer. She is from a well known Canadian family (I live in Canada) and has had both breast and pancreatic cancer. She is the spokesperson for the Pancreatic Cancer Canada. She is positive  For BRAC II and talks about it and her treatment in this article:

http://www.healthzone.ca/health/newsfeatures/article/845023-

Barb

RE: BRAC II Genetic test Postive

by OvarianBrcaII on Fri Feb 25, 2011 01:57 AM

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In April of 2010 my 27 year old daughter was diagnosed with breast cancer, stage Ic.  Because of her young age, she was tested and BRCAII positive.  She had a mastectomy and chemo, and is now being monitored, on tamoxifen.  I was then tested, and I was the one who gave her the defect, also being BCAII positive.  I had my ovaries tubes, uterus out as a preventive measure.  Everything looked good, but a week later they called and said I had a very very small ovarian cancer, but it was stage IC because I had malignant cells in the "washing' of my peritoneal cavity.  I had six chemo rounds Aug through November.  In December, I had a bilateral mastectomy as a preventive measure--thankfully no breast cancer found.  I am getting my hair back, and I feel good, my final breast reconstruction surgery scheduled for Mar 31st.  I'm so glad I had my ovaries out, because a year from now I would have otherwise discovered my ovarian cancer and had a poor prognosis.  I do worry about pancreatic cancer, but I found that link to the Canadian ladie's story very encouraging.  I do have a wonderful oncologist (went to the same one as my daughter), and I think it is so very important to have doctor's that you feel comfortable expressing not ony your questions, but your fears.  The odd thing is we have zero family history of cancer, neither on my Dad or my Mom's side-absolutely none. My Mom is almost 93 years of age, and my Dad died at 80 of a stroke.  i worry quite a bit about my daughter--she is so young, and such a worry about what to do about her ovaries; she would like to have a child but that sounds too dangerous.  so for me, I'm grateful that I have a good prognosis, but worry all the time about my daughter's future, and I feel guilty about passing it on to her.  My best wishes to you--hang in there.

RE: BRAC II Genetic test Postive

by Tamatha on Fri Feb 25, 2011 05:23 PM

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On Feb 25, 2011 1:00 AM barb1214 wrote:

Hi Tammy,

I thought you might be interested in the story of Libby Znaimer. She is from a well known Canadian family (I live in Canada) and has had both breast and pancreatic cancer. She is the spokesperson for the Pancreatic Cancer Canada. She is positive  For BRAC II and talks about it and her treatment in this article:

http://www.healthzone.ca/health/newsfeatures/article/845023- -thanks-to-groundbreaking-research-broadcaster-conquering-deadly-disease"" target="_blank" rel="nofollow">http://www.healthzone.ca/health/newsfeatures/article/845023- target="_blank" rel="nofollow">http://www.healthzone.ca/health/newsfeatures/article/845023-

Barb

Thanks Barb

This is very good information that you provided.  I feel the saime way as Libby.  I will never say that I am totally cured even when I make it to five years.  I think now with the BRAC II Gene mutation that I have I will always have to be on my guard.... Watchful.  As if I am a Marine doing "Night Watch"  It will forever be in my mine.  Thanks so much for this....

 

RE: BRAC II Genetic test Postive

by Tamatha on Fri Feb 25, 2011 05:23 PM

Quote | Reply

On Feb 25, 2011 1:00 AM barb1214 wrote:

Hi Tammy,

I thought you might be interested in the story of Libby Znaimer. She is from a well known Canadian family (I live in Canada) and has had both breast and pancreatic cancer. She is the spokesperson for the Pancreatic Cancer Canada. She is positive  For BRAC II and talks about it and her treatment in this article:

http://www.healthzone.ca/health/newsfeatures/article/845023- -thanks-to-groundbreaking-research-broadcaster-conquering-deadly-disease"" target="_blank" rel="nofollow">http://www.healthzone.ca/health/newsfeatures/article/845023- target="_blank" rel="nofollow">http://www.healthzone.ca/health/newsfeatures/article/845023-

Barb

Thanks Barb

This is very good information that you provided.  I feel the saime way as Libby.  I will never say that I am totally cured even when I make it to five years.  I think now with the BRAC II Gene mutation that I have I will always have to be on my guard.... Watchful.  As if I am a Marine doing "Night Watch"  It will forever be in my mine.  Thanks so much for this....

 

RE: BRAC II Genetic test Postive

by achurch13 on Sat Feb 26, 2011 02:51 AM

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Hi Paul,

I read the message about your wife. What stage is your wife? What chemotherapy is she currently taking?

My aunt is 57 y.o. and has Stage 3 Locally Advanced P.C. She is currently on Gemzar and Tarceva, but is considering the Nanoknife procedure.

Thanks,

Ashley

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