One patient with glioblastoma still alive nine years later
by BettyBoop1 on Wed Mar 30, 2011 09:58 PM
I am having pain around the tailbone area. I have had a CT Scan, so a pilonidal cyst is ruled out. I have had Xrays of the tailbone. It is the tissue that is just above the rectum opening. It is very sore and hurts when sitting especially after long periods of time. I feel a knot inside when i sit in the bathtub. Almost as if i am sitting on a small golf ball. Today the pain has spread to both sides of the tailbone area. If pressure is applied to the tailbone it too is very painful. After sitting down even for a few minutes, it is soooooo painful when standing up, its the letting the pressure off the area that is breath taking. My doctor does not know what to think. I am really in pain. Has anyone experienced this type of pain, or know of anyone who has? I know its not in my head, and i am in alot of pain. Please help!
by mznini on Fri Apr 01, 2011 05:36 AM
hi, im new to this but was checking out the board and read your story and your not alone, im going thru something similar and am to get xrays done next week. mine is a little higher than your area right on my tailbone and the pain radiates outward and down each side of my bum. haha...didnt kno how to put it. then it proceeds upward from tailbone. it hurts to sit or lie down it is a constant pressure and pain and even my pain pills are not helping. sometimes i put a icepak on to try and relieve the pain or a hot, hot bath. my doc so far has no answer except they think it mayb siattica or nerve damage from chemo. at least you get relief when you stand im not so lucky mine disipitates a little but its still there. im standing with you bettyboop if i get any new info i will pass it to you. if you get any ideas or info please let me know, godblez
by ilovemytwins on Wed Apr 06, 2011 01:44 PM
I started having this problem about 3 years ago. They did find a very small tumor however they say it is not causing my extreme severe pain. I was originally diagnosed with lyme and treated for it. I didnt have it . I have MGUS which is not supposed to cause pain. I cant get up sometimes and have to lift myself out of chairs. I have pain in allot of other areas of my body however my pain started where your is.
by julier2 on Mon Apr 11, 2011 10:25 AM
Hi, you just decibed me to a tea! I'm 55 had Prata gland & Tonsil Cancer Jan. 2006 about 2 years ago I started feeling this pain in my tailbone so pain full I thought I was the only one. After setting, oh to raise myself up so slow because of the pain really can bring tears to your eyes. My GP said I could have a little arthritics. (I'm not so sure) anyway I had the high radiation to head/neck. I wonder if that has anything to do with it? The only difference is I don't feel a knot. So BettyBoop I feel you pain its not in your head I wonder how many more of us or out there? Take Care
by MamaB on Fri Apr 22, 2011 10:19 PM
Hi BettyBoop, I had this type of pain before I had a ruptured disk on L4/L5. Like you said, the pain is almost unbearable!
I have had 7 lumbar surgeries and about to have the 8th one! I have some broken fusions and the nerves down my left leg is pinched again.
Ice is wonderful! I don't recommend heat. Leave an ice pack on for 20 or 30 minutes and then off for about that long...........the soft packs can be sat on.
I hope you will soon find the cause and you will be able to get over this. Tailbone pain is definitely no fun!
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