Tonsil Cancer with metatstatic Secondary in neck

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Tonsil Cancer with metatstatic Secondary in neck

by JillCGB on Fri Apr 01, 2011 09:46 PM

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My husband has been diagnosed with a possible primary tumour in his tonsil and a metatstatic secondary in his neck.  We live in the UK and have been told that they arent quite sure where the primary is but the tonsil is the most likely site.  The secondary is inoperable as it has adhered itself to the carotid artery and other structures in his neck.  He is having his tonsils removed in 2 days along with biopsies of this tongue, back of nose and oesophagus (if needed).  We are very worried and would like some assurance that he will be ok and we will come through this

RE: Tonsil Cancer with metatstatic Secondary in neck

by brenda40 on Sat Apr 02, 2011 02:03 AM

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Hi Jill,

I'm so sorry for what you both are faced with.  We have been fighting the battle for over 2 years.  I would be happy to talk with you if you are interested.  We live in the US.

My number is 513-368-6472.

Brenda

RE: Tonsil Cancer with metatstatic Secondary in neck

by brenda40 on Sat Apr 02, 2011 03:47 PM

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Hi , I sent you a private message regarding your husbands diagnosis.  Let me know you you would like to talk.

Brenda

RE: Tonsil Cancer with metatstatic Secondary in neck

by steph_rn on Sat Apr 02, 2011 04:05 PM

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It's a tough battle, Jill!  But it can turn out alright....I was diagnosed almost 3 years ago.....had surgery and radiation and really am "almost" normal.  My cancer was base of tongue.......with a met to a lymph gland in the neck.  I have had a good 3 years.......and hope for many more!

Steph

RE: Tonsil Cancer with metatstatic Secondary in neck

by brenda40 on Sun Apr 10, 2011 02:36 PM

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On Apr 01, 2011 9:46 PM JillCGB wrote:

My husband has been diagnosed with a possible primary tumour in his tonsil and a metatstatic secondary in his neck.  We live in the UK and have been told that they arent quite sure where the primary is but the tonsil is the most likely site.  The secondary is inoperable as it has adhered itself to the carotid artery and other structures in his neck.  He is having his tonsils removed in 2 days along with biopsies of this tongue, back of nose and oesophagus (if needed).  We are very worried and would like some assurance that he will be ok and we will come through this

Hi Jill,

Just checking in to see how things are going?  Any new news?  Thinking about you.  Brenda

RE: Tonsil Cancer with metatstatic Secondary in neck

by JillCGB on Mon Apr 11, 2011 07:53 PM

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Hi Brenda

We go back to the hospital on wednesday.  Mike is recovering well from his tonsil surgery and we are just waiting for confirmation that he will be receiving chemo and radiotherapy without surgery.  Its tough going but we will get through it and come out the other side.

Thanks for your thoughts.  I'll keep in tough

Jill x

RE: Tonsil Cancer with metatstatic Secondary in neck

by GoldDustWoman on Wed Apr 13, 2011 03:27 AM

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Hi

My husband went through the same treatment you and your husband are facing.  I read a book written by a British author who also went through the same treatment - it's called Bangers and Mash by Keith Hern.  (And let me just say, being an American, I had no idea what Bangers and Mash was! LOL :)   You should pick it up, it will give you an idea of his experience.  But please remember that everyone's experience is different.  My husband had 7 weeks of treatment and was feeling really good and eating most foods 3 weeks out.  He's 9 weeks out now and except that he's a little less energetic than before, he's completely back to normal.  Stay in touch with us here and make sure your husband gets a PEG tube!

RE: Tonsil Cancer with metatstatic Secondary in neck

by LoriBett on Wed Apr 20, 2011 05:24 AM

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Hello Jill,

Your husband diagnosis sound much the same as my own. My left tonsil and a secondary mass in my neck rapped around my acarotid artery.   It was 6 years ago I had my tonsils remove a piece of my tongue and uppe pallet.   I hade 36 raditation treatments, and chemo.  The treatment took 7months. In out of hospital. lost 50 pounds, weight was 96 lbs at 5'7". It a lot to go thru. The treatement kicks you. Learn everything you can about what you/he can do for himself.  Get the facts about swallowing while going thru treatment.  clean your mouth and use special bite plate with the treatments. Chances are he will loose his, his taste and his syliva glands.  Drink lost of water with no minerals.  Drink high cal. shakes, get something to numb the throuat so he can keep swallowing know mater what. You can loos the reflex if it is not uses thru the treatment, even if ghe has a feeding tub he still needs to swallow everyday.     I have many side affects form the treatment, but I am still here and I work full time (Quality engineer) and I can do most everything.  I not the same me and never will be but the taste has gotten better over time or I have learned to enjoy what little taste buds I have.  Just be there for him a love him or tell him you love him everyday and one day there will be a better day. I didn't beleive it at the time and my doctors didn't either, but a year after I found out I had cancer, my husband died while mowing the grass at 58.   There is no assurance in this life,  but the best chance  your husband has is to believe he will get better and you believe it too and then you learn everything you can do to treat him and care for him and then tell him the best thing he can do for you and him self is take really good care of himself while going thru the treatment.  good luck to you and if you have any questions that come along as the treatment progesses send me a notice.  I will be glad to share what ever I know. 

Take care and my prayers are with you both.

RE: Tonsil Cancer with metatstatic Secondary in neck

by JillCGB on Wed Apr 20, 2011 07:14 AM

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Hi LoriBett

Thanks for your message.

Mike has a visit to the specialist dentist today (Wednesday) to have some teeth removed and next week he has his radiotherpy mask made.  His treatment starts the week after.

Its comforting to hear stories like your when we hear of someone who has gone though it and come out the other side.

He has had his tonsils removed and finds it difficult to swallow certain food.  We wont give in and I will do as you say and find out all we can.

Wishing you well

Jill x

RE: Tonsil Cancer with metatstatic Secondary in neck

by gerardthered on Fri Apr 22, 2011 12:29 PM

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On Apr 02, 2011 4:05 PM steph_rn wrote:

It's a tough battle, Jill!  But it can turn out alright....I was diagnosed almost 3 years ago.....had surgery and radiation and really am "almost" normal.  My cancer was base of tongue.......with a met to a lymph gland in the neck.  I have had a good 3 years.......and hope for many more!

Steph

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