One patient with glioblastoma still alive nine years later
by pmdoughtie on Sat Apr 09, 2011 11:50 AM
Hi all, I am new here. My husband just had a CT scan yesterday and was then rushed to see the gastro dr. who said there are spots on his pancreas and liver. He is scheduled for endoscopy Monday. The Dr. said it could be cancer of course, or a "wrong" image on the ct scan, or an infection/inflamation. Well, he has lost weight in the past few weeks (20 lbs) been nauseous, had bad abdominal discomfort, been unable to sleep, had gas pains, diarrhea, low-grade fever and fatigue. He was diagnosed with diabetes type 2 maybe 8 mos ago or so and been taking medication for that. He took antibiotics a few weeks ago when his primary dr. thought he could have a bacterial infection as our whole family had been sick but it didn't make any changes. He did smoke for years but not in the past 5. He does not drink - maybe 4 drinks a year. He was overweight but again, he lost at least 20 lbs recently and is now just slightly overweight. I am afraid and the vibe at the Dr.'s office was quite ... depressing. I was doing ok until the nurse gave me those pitiful looks. Anyone had this experience - some people say it could be fatty liver but i don't think so and the dr. didn't say that either. Any help/advice would be great. We have a 5 yr old and a 16 yr old and if this is cancer, of course we want to do whatever possible to help him live as long as possible.
by helgoland on Sat Apr 09, 2011 01:51 PM
How sorry I am to read about your family's very difficult situation. I believe it is human nature to think of the worst case scenarios. There are so many different health situations that this could actually be...In addition to this webpage, there is another website which addresses specific health concerns if there are more questions for the pancreas. It is John Hopkins Pancreatic Discussions. It is very active and you will also receive informative responses. I hope all works out for your family.
by loriannie on Sat Apr 09, 2011 03:02 PM
The diabetes is now thought by some to be a symptom of pancreatic cancer, or to be caused by the cancer. My husband was treated for almost a year for sudden onset diabetes, could not get it under control. Low and behold it was PC, please don't waste any time finding out exactly what you are dealing with.
by pmdoughtie on Sun Apr 10, 2011 02:47 PM
Thank you. I will look at the John Hopkins discussion page also. Today he has a low fever of around 100 and chills. They gave him percoset 5/325 to take every 6 hours but after 4 hours he gets the chills again. Our 5 yr old has a fever today too so it may have been from her as I assume his immunity is low right now??
by pmdoughtie on Sun Apr 10, 2011 02:49 PM
I had read that about diabetes and now in retrospect we see more signs that were thought to be something else. I am glad that the Dr's are moving quickly. He has the endoscopy/biopsy tomorrow.
by Josephine123 on Sun Apr 10, 2011 04:14 PM
Don't know where you live, but if possible you need to get to one of the major cancer centers as soon as possible. I'm fairly new to the diagnosis with my Husband (March 1 this year) but have spent a lot of time on the internet and groups such as this one. And the folks with the best results have been treated at the best places.
You can actually have a lot of your treatment at home, followng the protocol from one of the big places.
Prayers for you and your family.
by pmdoughtie on Sun Apr 10, 2011 04:30 PM
We live just north of Richmond. Right now he is seeing doctors from Bon Secours. We are approximately 1.5 hours from the DC area. Do you have any suggestions in this surrounding area/DC? Also, if we get the diagnosis we are expecting, do we immediately go to one of these cancer centers? I have no idea what to do! Are there any other groups that you recommend? I am a stay at home mom so I do have time to research, etc.
My dad had leukemia but he was 85 at the time and went immediately to palliative treatment as he was not strong enough for any other aggressive treatment.
Thank you all for your comments and advice - it helps a lot to hear from you.
by wifecaregiver on Mon Apr 11, 2011 03:22 AM
From experience the best thing to do is not panic and assume anything. Reading a lot can be discouraging. My husband went to the dr last month and was told he had a 7cm mass on his pancreas, the office staffed looked at us with pity, and since my dad died of pancreas cancer I thought the worse. He had a fever and stomach pain. Turned out he had a rare curable tumor called neuoroendocrine tumor, had a major surgery, and now he's home recovering, no need for chemo, and expected to live well. Try to stay positive and don't worry him with the "what ifs" because its amazing how influential wives can be. Every spot is not cancer, and every cancer diag is not death. My husband lost 30 pounds over the last month and now he's gaining weight back. Be strong, positive and encouraging to your hubby. Hope the dr visit tomorrow brings way better news than you expect. Take care.
by pmdoughtie on Mon Apr 11, 2011 03:27 PM
Thank you - I am so happy to hear of your good news! And you made a good point with my attitude having an influence on my husband.
by poinksy on Tue Apr 12, 2011 07:40 AM
This could be anything. Auto immune pancreatitis mimics pancreatic cancer and many people have been told they have pc when it is aip. Symptoms are the same and scan images reveal masses. As for the liver could be scarring or anything. Of course your worried but try to remain positive. Take Care
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