Primary Peritoneal Cancer

DX 1/03. (6) rounds of carbo/taxol after de-bulking. CA-125 was 11 after tx ended 7/03. No signs/sympotms except for several intestinal blocks that required long stays in hopital and NG tube.....I cannot find info on where it may return...everything is about ovarian cancer? I feel lost and my Gyn.Oco is no help for answers. The cancer covered my lymph nodes and all over my spleen (both scraped/not removed)what should I be aware of? I have CA-125 evey 6mo...is that all they go by? Spoke with woman who was same as me for (4)years and now back bad in her lungs....no one said it would go to the lungs....please help. Cynthia

My sister, Betty found out that when she was 38 yrs old, 4 children later just one day she had trouble breathing. She went to the doc. and had an xray done. The Dr. said she had a lot of fluid in her lung and also in the peritoneal Cavity. She was sent to the hospital to drain the fluid. They then tested the fluid and found out that she had ovarian cancer, stage 4. She went through the surgery, the chemo and was clear for 3 years. It came back last year and they could not pinpoint as to where but all they said was in the adominal area. She went on another chemo after second treatment they told her to go home and die with her family. That was nothing else they could do. Betty said I not ready to go yet!!! So we took her to the city and got her another doctor. He put her on the right nutrient and then she was able to receive the new chemo. She still going strong. Betty takes one day at time and we pray for her alot. If your dr. is not giving you any new info you need to try someone else. If you can have a copy of the MRIs, CAT Scans, or x-rays that would help you to keep track of your progress. CA-125 is still good but also have your white and red blood cells checked to see what your norm. is and then you will know if anything is off. It's almost like having to be your own dr. My sis Betty still gets a lot of build up of fluid in her lungs and cavity so they put in a drain to help her release the pressure. I will pray for you and please just keep taking one day at a time. Keep your sprits up. And go out and excerise a little. I hope everthing works out for you. E.

I want everyone to know that there are current studies going on regarding the use of IV Vitamin C as a possible cancer treatment. If you provide your oncologist with the necessary information he/she may consider using IV Vitamin C as an adjunct to conventional chemo. Dr. Mark Levine of the NIDDK and his research team have reviewed cases where IV Vitamin C was the only treatment used and the patients did remarkably well. Dr. Levine is well respected in the medical community and his study is being taken seriously but it lacks physician interest. There is alot of information on the web regarding the history of IV Vitamin C use if you would like to become familiar.Dr. Jeanne Drisko of Kansas University has recieved $375,000 to study the effectiveness of IV Vitamin C on ovarian cancer patients. I hope I have provided enough information to those interested along with some hope.

I was diagnosed with PPC stage 4 in October, 2004. I have outlived my prognosis - my oncologist said he was concerned about my living out the year 2005. I had 2 surgeries that fall, one complete hysterectomy and then 5 days later, I was back in surgery for a perforated bowl. I was very sick for about 6 months and had a pericentisis once a week or more for the fluid build-up in my abdomen. All this time, receiving chemo. I was just starting the 3rd kind when the asitis stopped, so I don't know if it was due to the second or third. I have been without chemo since Feb, 2006 as the cancer is still in the abdomen, spleen, lung lining, and liver. I have CT scans every 3rd month. The cancer has been "stable" since Feb. The blood test proved to be unreilable in me due to the asitis build-up. I drink Xango juice every day - and am thinking of doing the 2 week cancer "cure" with it, along with standard treatment. My oncologist knows about this juice and says it can't hurt me! Has anyone heard of this juice or the cancer center in Boston supposedly for women's cancers. To answer your question: If my information is correct - there are no roadmaps for this dumb disease. Good luck.............Sara

One day before the surgery which I had on 8/19/06, I suggested to my surgeon that I WOULD receive a vitamin C, IV; that it would be administered on, prior to, or during my surgery. He asked what the C would do. I answered that my immune system would thank him and me. He did say that he knew NOTHING about the quantity, etc. he did agree to it, if, he said, the hospital had the Vitamin C. I forgot about my pain, took the initiative, continued to pray for guidance and wisdom, learned thru a friend who made calls to the hospital's (not an HMO HOSPITAL, BUT A NON-PROFIT HOSPITAL) pharmacy that C for IV use was available there. I did not receive the IV until several hours after the surgery. The slow drip took 4 hours which meant that I was in the hospital for that 4 additional hours. I felt that it was worth the efforts, the extra hospital time and cost to emphasize that a patient can be their own advocate; M.D. doctors beware! Finally, I am experiencing more clear thinking than I had after the last (12/2005) surgery. As a result I am now feeling stronger, I am experiencing a quicker recovery. Let's together be a strong force, pushing to educate the medical establishment to use HARMLESS modalities as a means to recovery. Vitamin C is not a money maker, we need to PUSH! read, educate and act!

Good for you to have been your own advocate and educating your MD in the process of the benefits of IV Vitamin C. I hope you are continuing to use it throughout your treatments. Dr. Robert Cathcart has provided some IV dose/frequency for Vitamin C use that is available free of charge to anyone who needs it. I recommend printing a copy of it for your MD to review. I commend your doctor for being open to the use of IV Vitamin C. You may have opened his eyes to the beneficial use of it on his other patients too. I wish you well, please continue to update on your progress.

Dear Cynthia,

     I came across your note on the message board today. I hope you are still doing well. I recently lost my mother to primary peritoneal cancer and I spent three years researching the illness while she was sick. There is still so much that needs to be learned about this illness, but it basically affects the lining of your abdomen. Because it is a cancer of the lining and is fluid based, it can basically travel to any part of the body over time if not well-controlled. Your diet is extremely importan with this type of cancer. Sugar should be avioded completely and lots of food rich in anti-oxidants shoudl be consumed. It is diffiuclt to track the progress of this type of cancer because it has to be a certain thickness to even be picked up by a CT scan or other scans. There is a new product available on the market now that is all natural and I highly recommend people with cancer using it as well as people trying to prevent cancer. It is called MonaVie and it can only be purchased through distributors that sell through home based businesses. It is a juice that has about 30 times the anti-oxidants of anything on the US market today. I don't know what part of the country you are in, but there is a very good Gyn, On at Yale New Haven if you are anywhere near there. He is said to be one of the top in the country. Drop me a note if you are able.

Sincerely, Susan in Georgia

On 7/2/2006 Cynthia j. wrote:

DX 1/03. (6) rounds of carbo/taxol after de-bulking. CA-125 was 11 after tx ended 7/03. No signs/sympotms except for several intestinal blocks that required long stays in hopital and NG tube.....I cannot find info on where it may return...everything is about ovarian cancer? I feel lost and my Gyn.Oco is no help for answers. The cancer covered my lymph nodes and all over my spleen (both scraped/not removed)what should I be aware of? I have CA-125 evey 6mo...is that all they go by? Spoke with woman who was same as me for (4)years and now back bad in her lungs....no one said it would go to the lungs....please help. Cynthia

 

 

My mom fought a courageous battle against PPC and went home to the Lord as of April 9, 2007. Thank you for sharing your testimonies and information. She was first diagnosed in 12/05, had debulking surgery and was staged at IV grade 3. Mom went through four different chemo treatments from 2/06 through 4/07. She had the fluid drained from her lungs three times and had a "talc" procedure to help prevent the fluid build-up. My pops was the greatest caregiver for her--he oversaw her nutrition, personal care and spiritual needs. This cancer was so aggressive, it just couldn't be controlled. If there's any research out there that is about earlier detection, I'd like to know. The experience of this process has made me more sensitive to people and their loved ones facing cancer, especially when it's "terminal". We just never knew, and mom didn't either, until her last two days that it was terminal. We're so thankful to have been together through all the surgeries, treatments and now her death. She's taught me more through her dying than she'll ever know. Mom never complained about her condition, she just asked the questions, "Why?" "How?" And she fought with the determination the Lord gifted her with. Mom was 69 years old and I wanted her for more days here, but thankful she's found a beautiful garden, one she can sing and dance in without pain.

 

On 7/27/2006 Saraknitter wrote:

I was diagnosed with PPC stage 4 in October, 2004. I have outlived my prognosis - my oncologist said he was concerned about my living out the year 2005. I had 2 surgeries that fall, one complete hysterectomy and then 5 days later, I was back in surgery for a perforated bowl. I was very sick for about 6 months and had a pericentisis once a week or more for the fluid build-up in my abdomen. All this time, receiving chemo. I was just starting the 3rd kind when the asitis stopped, so I don't know if it was due to the second or third. I have been without chemo since Feb, 2006 as the cancer is still in the abdomen, spleen, lung lining, and liver. I have CT scans every 3rd month. The cancer has been "stable" since Feb. The blood test proved to be unreilable in me due to the asitis build-up. I drink Xango juice every day - and am thinking of doing the 2 week cancer "cure" with it, along with standard treatment. My oncologist knows about this juice and says it can't hurt me! Has anyone heard of this juice or the cancer center in Boston supposedly for women's cancers. To answer your question: If my information is correct - there are no roadmaps for this dumb disease. Good luck.............Sara

 

 

On 5/10/2007 Faithinhim wrote:

 

On 7/27/2006 Saraknitter wrote:

I was diagnosed with PPC stage 4 in October, 2004. I have outlived my prognosis - my oncologist said he was concerned about my living out the year 2005. I had 2 surgeries that fall, one complete hysterectomy and then 5 days later, I was back in surgery for a perforated bowl. I was very sick for about 6 months and had a pericentisis once a week or more for the fluid build-up in my abdomen. All this time, receiving chemo. I was just starting the 3rd kind when the asitis stopped, so I don't know if it was due to the second or third. I have been without chemo since Feb, 2006 as the cancer is still in the abdomen, spleen, lung lining, and liver. I have CT scans every 3rd month. The cancer has been "stable" since Feb. The blood test proved to be unreilable in me due to the asitis build-up. I drink Xango juice every day - and am thinking of doing the 2 week cancer "cure" with it, along with standard treatment. My oncologist knows about this juice and says it can't hurt me! Has anyone heard of this juice or the cancer center in Boston supposedly for women's cancers. To answer your question: If my information is correct - there are no roadmaps for this dumb disease. Good luck.............Sara

 

 Hi Sara

I am new to this site and saw your info. Just checking in to see how you are doing. My mom has just recently been diagnoised with ppc and is recouperating from her hysterectomy and going to begin chemo as soon as she can. I would enjoy corresponding with anyone. This is a tough time for me and maybe I can be of comfort to others.

Thanks, Barbara