any survivors stage 4 colon cancer metastasis liver

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any survivors stage 4 colon cancer metastasis liver

by jinane on Thu May 05, 2011 02:09 PM

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my husband just turned 34 years old,and was diagnosed with stage 4 colon cancer metastasis liver,lymph nodes are not attacked ...pleeeaaaaaase any "GOOD" survival stories,im open to everything.

he had done 4 chemo (avastin +eloxatin) we have a scan on may 11th and then 4 more cycles of chemo...he is on xeloda as well between chemos.the side effects of chemos and xeloda r supportable,a little fatigue and some numness in his hands,and his feet and hands r turning dark!!!!..

i ve read on z net that 5 % of stage 4 cancer can life up to 5 years!!!!!!!!!!!!!!!!! it s soooo depressing to read such things,he is young..

RE: any survivors stage 4 colon cancer metastasis liver

by Jengen12 on Thu May 05, 2011 06:22 PM

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My mom has stage 4 colon cancer in both lungs an liver....Its coming up 2 a year in June

so i've met people that have been fully cured and have had stage 4 colon cancer for more then 10 years and still are living today.

Research is not even close to what we can do now a days don't believe statistics. Poeple die of alot other causes before the cancer even takes them. 

RE: any survivors stage 4 colon cancer metastasis liver

by jinane on Thu May 05, 2011 07:58 PM

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On May 05, 2011 6:22 PM Jengen12 wrote:

My mom has stage 4 colon cancer in both lungs an liver....Its coming up 2 a year in June

so i've met people that have been fully cured and have had stage 4 colon cancer for more then 10 years and still are living today.

Research is not even close to what we can do now a days don't believe statistics. Poeple die of alot other causes before the cancer even takes them. 

thanks jengen12...i know pple die from 100000 causes!!! but i dont know, i have never thought that death is around til now!!! i dont think anyone will think that he will lose som1 !!

RE: any survivors stage 4 colon cancer metastasis liver

by thesecretchef on Sun May 08, 2011 04:37 PM

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My husband is 51and also has stage 4 colon cancer w/ liver and pancreas metastasis. I can't give any survival stories yet because he's just about to start his 2nd cycle. But I can tell you I understand how freaked out you are. 10 weeks ago our lives were sent into a tail spin and I haven't recovered yet. We are lucky in that I don't have any young children...ours are grown and married. We've been married for 34 years (as old as your husband is). My heart hurts for you and your husband, but I know that God answers prayers. We have everyone in every religion possible praying for the healing of my husband. And I will certainly remember your husband in our prayers too. I know how hard it is to be positive..I fight with it every day. But you must stay focused on the good, the milestones, the beauty in being with him each day. I still cry, sometimes more than once, but for me it's my release. Our "gift" in this situation is we will live each day KNOWING it could be our last. We will leave nothing unsaid. We will never stress over stuff that isn't important...we'll enjoy each day as the gift that it is. God bless.

RE: any survivors stage 4 colon cancer metastasis liver

by asuehiro on Sun May 08, 2011 07:03 PM

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Hi,

My wife was diagnosed with colon cancer just over 3 years ago and it had spread to her liver, lungs, and several lymph nodes.  She was also made aware of the 5% survival rate  and it hit me real hard, but she wouldn't believe it...and she still doesn't.  At this point she still does the chemo and her next session is this coming Monday.  She started off with the Folfox 5 regimen.  I remember she had the "numbness" (neuropathy), too, but not for a long time now.  She hasn't suffered any redness in her hands or feet, but her bouts with diarrhea can be unpredictable and doesn't seem to really matter what she may have eaten.  My feeling is that the chemo can be very harmful, but theoretically less harmful than the cancer, so the diarrhea shouldn't be a surprise.

The good news it that her CEA count (a tumor marker in her blood) has fallen to about 2...and that is good since most of us "healthy" people with no known cancerous tumors have a CEA of maybe 2.5 or less.  We all have cancer cells lurking within us, but our immune system keeps them from becoming a problem.  She had a CT scan this past March and her cancer has shrunk a lot so the chemo is working. They will actually let her take 3 months off in July to give her body some time to recover.  She was told that she will have to be on chemo for the rest of her life, although new cancer treatments are happening all the time, so maybe one day she may be rid of her cancer.  In the meanwhile, she is getting used to living with her cancer since she can't get rid of it just yet.  I am thankful she is still alive and with me. The longer she can hang on, the better the chance that a new "cure" will be found.  So, try to be positive.

Here is something your husband may want to try since he the side effects of his chemo have been rough on him.  My wife has been fasting for 48-hours prior to each chemo session.  She has been doing this for about 2 years I believe.  The reason she does the fast is because there is a scientist at USC who was awarded a grant to do clinical trials using fasting to curtail the negative side effects of chemo.  His theory is that fasting allows non-cancerous fast growing cells (hair, nails, skin, gastro-intestinal system, etc.) to put up a protective shield against chemo's onslaught, but cancer cells (which are also fast growing) don't seem to have that ability so the cancer cells still get destroyed, but the good cells are not harmed as much.  This may be why my wife has been able to tolerate the chemo so far.  I would say that roughly 70% of her hair remains and has quit falling out.  Also, she doesn't suffer from neuropathy anymore and she doesn't suffer from really bad fatigue.  She works 3 days a week, so she can still function normally to a certain extent.  I recently read that at least 10 other people are also doing fasting on their own, and probably because the side effects of chemo were just too much for them.  The also have been following the work of this USC scientist.  You can look him up on the web.  His name is Valter Longo. Maybe your husband may want to be included in his ongoing clinical trials if it is feasible for you.  We decided to just do it on our own because my brothers read about his experiments and let me know about it.  I told my wife she should try it on her own and we haven't looked back since.

My wife will be 56 later this month, so don't let the 5% statistic depress you.  The longer he can survive, the greater the chance that advancements in cancer treatments will occur and survivability rates will be greater.  You have to be positive.  Who knows what the body does biochemically when the will to survive is strong?  But look up Valter Longo and his theory of fasting and the lessening of chemo's side effects. Maybe being "proactive" in the battle with cancer instead of just going to chemo and have strangers pump drugs into your body does something biochemically beneficial.  I know my wife accepts fasting as doing her part to beat her cancer.  Good luck.

 

Alvin

RE: any survivors stage 4 colon cancer metastasis liver

by jinane on Sun May 08, 2011 08:23 PM

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thanks asuehiro for your reply,,,i will be praying for your wife,truly...

on wednesday we will have a scan (after z first chemo cycle) i just wish everything will b ok...all i can wish for now is that he be one of z very lucky persons who will be able to overcome cancer...really. or at least to be able to live with it easily...

i have mailed valter longo,and he replied and im waiting now for the scientific study he made to show it 2 z oncologist ...so we can find z best adjustment before and after chemo...

i dont have the results of his tests,but within z next 2 or 3 days i will ask his dr. to mail them to me so i can post them,to be able to know more ...

best luck

RE: any survivors stage 4 colon cancer metastasis liver

by asuehiro on Sun May 08, 2011 11:14 PM

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Jinane,

 

Thank you for your prayers.

I'm glad you contacted Dr. Longo and even more glad that he wrote back so quickly.  Here is a link to an article about his research.  It is too early yet for him to release his findings because the clinical trials are still ongoing, but the article did reveal some interesting information by 10 people who are doing the fasting on their own outside of his own study.  Pay attention to figure 2 which summarizes the changes in chemo side effects.  You will notice that there was a great reduction in fatigue, weakness, and nausea after doing some kind of fasting.  I can tell you from my wife's experience that this is true.

http://www.prostate-cancer.org/pcricms/sites/default/files/P

 

I can also tell you that there will be skepticism about fasting from the hospital staff because it has yet to be a proven and widely accepted practice, but I personally feel that fasting for 48 hours is not a health risk unless there happens to be other health issue involved.  My wife finds it to be more of an inconvenience, but a small price to pay to avoid some of chemo's side effects. In fact, at least one of those 10 people have been fasting has been doing it for 120 hours at a time.  I jokingly asked my wife if she would like to do the "120-hour fast" and she said "No way".

 

I hope your husband keeps his spirits up and fights the good fight.  I think if the side effects from chemo can be decreased and made more tolerable, he will feel more positive and definitely more comfortable.

We'll be cheering for him.

 

Alvin

RE: any survivors stage 4 colon cancer metastasis liver

by jinane on Mon May 09, 2011 02:27 AM

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thanks alvin

i will visit z link ,,,and convince my hubby into this

i think i will fast with him in z begining...

hope this goes smoothly

best

RE: any survivors stage 4 colon cancer metastasis liver

by Cptmac on Mon May 09, 2011 07:57 PM

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On July 22nd, 2004 I was diagnosed with Stage IV colon cancer with mets to the liver and lymph node.

I was given six months to live but told I oculd die at any minute. 

I went to a top rated hospital, signed up for a Stage II clinical trial and have no evidence of disease since September of 2004.

RE: any survivors stage 4 colon cancer metastasis liver

by Cptmac on Mon May 09, 2011 07:57 PM

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On July 22nd, 2004 I was diagnosed with Stage IV colon cancer with mets to the liver and lymph node.

I was given six months to live but told I oculd die at any minute. 

I went to a top rated hospital, signed up for a Stage II clinical trial and have no evidence of disease since September of 2004.

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