One patient with glioblastoma still alive nine years later
by hlr080841 on Fri May 13, 2011 07:07 PM
My dad was diagnosed with AML subtype M0 on 4/7/11. He went straight to a cancer center for 7 and 3. He had a very tough time, but he made it through. They want to do 5 and 2 consolidation in a week or two and then discuss the possibility of a bone marrow transplant.
We are so scared. I have heard the side effects of a bmt can be horrible. Doctors say he has a 20% chance with just consolidation and a 30% with a transplant. He is 69. We are thinking he is so young and that we should give it the best shot possible and go with the bmt, but we also know it could kill him. Are there any survivors out there who went all the way? Anyone who got graft vs. host badly and came out okay? He is exhausted at this point, but not willing to give up and neither are we. Any stories that could help us?
Thank you so much for taking the time to read this. Any help would be greatly appreciated.
by Rivera on Tue Feb 25, 2014 02:12 AM
My mom is 66 and will be having her BMT in 2 weeks. Prayers are always helpful, also everything depends on the individual person. I have hope and faith.
by JUNIEMOOTS on Sat Mar 01, 2014 01:48 PM
I AM 71 AND AWAITING A STEM CELL TRANSPLANT FROM MY SISTER WHO IS ONLY A 50% MATCH. HOWEVER, SINCE JOHN HOPKINS "BROKE THE CODE" (WHATEVER THAT MEANS!) THE RISK IS ONLY 2-3% LESS THAN A 100% MATCH. I HAVE HAD 2 ROUNDS OF CHEMO - FIRST DIDN'T DO MUCH TO BLASTS SO THEY DID A MORE AGGRESSIVE ROUND HERE AT HACKENSACK UNIVERSITY HOSPITAL. WILL GET A BONE MARROW BIOPSY SOON TO SEE HOW THAT WORKED OUT AND THEN HOPEFULLY ONTO STEM CELL TRANSPLANT. I KNOW THIS IS RISKY, BUT IS THE ONLY CHANCE FOR CURE.
by JUNIEMOOTS on Sat Mar 15, 2014 01:57 PM
I AM 71 AND CURRENTLY IN REMISSION FROM AML AFTER 2 ROUNDS OF AGGRESSIVE CHEMO. MY DOCTORS AND HOSPITAL ARE AT HACKENSACK U. HOSPITAL IN NJ, AN IMPORTANT TRANSPLANT CENTER. I WILL BE RECEIVING A STEM CELL TRANSPLANT IN ABOUT 2 WKS FROM MY SISTER WHO IS ONLY A 50% MATCH. HOWEVER, THEY HAVE BEEN HAVING GREAT SUCCESS WITH THIS SIBLING TRANSPLANT. THE MAIN DANGER AS I HAVE BEEN TOLD IS THAT SINCE YOU HAVE NO IMMUNE SYSTEM AFTER TRANSPLANT (TAKES ABOUT A YR TO KICK IN), YOUR BODY IS SUBJECT TO ALL KINDS OF VIRUSES, BACTERIA, ETC., SO BLOOD TESTS 2X A WK ARE IMPORTANT TO NIP ANYTHING IN THE BUD. IT'S ALSO A GOOD THING IF YOUR DAD HAS BEEN PHYSICALLY ACTIVE. ONE OTHER POINT: REMEMBER THAT STATISTICS ARE GATHERED OVER YEARS AND DO NOT NECESSARILY REFLECT WHAT IS GOING ON NOW. A BMT IS THE ONLY HOPE FOR A CURE SO KEEP THE FAITH! AND GET THE BEST DR.'S AND HOSPITAL YOU CAN FIND.
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