Diffused Intrinsic Pontine Glioma

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Hi, I would like to share our story with you. On June 21, 2005 my daughter Hayley was diagnosed with a brain stem glioma. She died Dec. 24, 2005 she was five. We have information that we would like to share with others. Please don't make the same mistakes we did. Contact me at --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- Wanda

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Matilda

My son was diagnosed with brainstem glioma in June 2006.He has undergone 25 treatments of radiation and doctors now say that there is no treatment they can offer him.My son is a very active 11 year old whose double vision has cleared after his treatment.After radiation, his MRI has shown no change to the tumour.However, with everyday my son seems to get stronger.I am finding his diagnosis difficult to accept as anyone looking at him cannot believe his medical diagnosis.Within himself, he feels great and does not believe that he is that poorly.I am a firm believer in divine intervention and am hoping and praying, like all the other parents like me,that my son is going to fall in the 10% that survive.

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Willing

Hi, I would love to talk to you. Try the following website. randyandwandahinton@groups.msn.com Wanda

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Willing

Hi, You responded to my message. You said the doctors have given up on your son. It does not surprise me. They do Radiation and Chemo knowing that it does not work on brain tumors. Have you heard of Dr. Bruzynski in Houston Texas. He is the ONLY Doctor that has successful treated Brain tumors. His treatment is non-toxic. Please look at his website. www.cancermed.com My husband Randy is screenname Willing. I am Wanda. You can go to www.randyandwandahinton@groups.msn.com to get our email addresses to contact us. Time is running out and we want to help. Wanda

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Matilda

I received your message but I am finding it difficult accessing your website for some reason.I am desperate to get in contact.Please contact me on --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ---- if you get my message unedited.Thank you for your immediate response.Please get in touch.I am becoming more desperate each day.

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5 Posts | Page(s): 1