But it's too early to make blanket recommendation, expert says
by constantsorrowm on Mon Jun 20, 2011 12:56 AM
Can anyone out there help me with info . I'm 1 year post stage 3 throat cancer . Everything has been going good . My teeth are cracking and breaking due to getting nuked . So ok , going to get them removed and get dentures = life goes on right . But now my jaw is locking up and it's painful , and it's getting worse . Before after 1 minute of pain my would loosen up when I was trying to open it to where I could eat . Now 2 months later I go through about 5 minutes of pain before I can eat . Doctors says " Yeah this happens , you have to live with it ." The nurse said she knew a guy who had to blend his food . Talk to the doc and he says = yeah you'll probably have to do that . What I'm wondering is how long can you live when you start drinking food steady . I know that like if people have to do steady dialisis they usely can't go 10 years without sucumming . I asked about ultra sound treatment and he said that wouldn't help . Anyone have any hopeful insight . I don't exspect to live pain free but I want to get as many years as I can . Plus I'm wondering when I'll become a burden to others . 1 year , 5 years , 10 years . I know when I couldn't eat during treatment I lost weight to where I was wasting away till the feeding tube went in . Then I stepped out of the grave but was just bearly hanging on . Any words of wisedom out there . Thanks for reading this .
by emilys on Mon Jun 20, 2011 02:53 AM
I don't know of anything that would cause your jaw to lock up. I had problems with my parotid glands and they swelled up and it led me to discover I have TMJ, were the jaw collapses into your skull. Before that happens, your jaw locks up, could that be it? You get it many ways, but one is by constantly clenching your teeth, like I did from constant pain. Alot of people, all they do is juice, and they live long and super healthy lives. You need to see a dentist about your jaw to find out what is happening before you drastically change the way you live, since something else is going on.
by constantsorrowm on Mon Jun 20, 2011 04:05 AM
Thanks . The oncologist and the E.N.T. doctor say this happens sometimes because of the radiation treatments . I'm getting fibrosis also of my neck . My neck is getting rock hard physically right now . But it could be worst . I'm alive , so I'm blessed . But I'm worried .
by PopPop on Mon Jun 20, 2011 01:23 PM
Sorry to hear all the problems that are coming your way now. I have a few questions if I may. First on your teeth, do you use Flouride Trays or brush with a Flouride Gel twice a day after brushing your teeth after eating?
Secondly, around your face and neck, do you have swelling now? basically a build up of fluids? I ask because you may be experiencing a delay reaction of the Lymphnode system where the fluids don't move and fliuds build up and everything swells, causing tightness in the face and neck. I had that happen roughly 2-3 months after my final treatment and I was barely able to open my mouth to eat yogurt. If the answer is Yes to the build up of fluids, there is a gentle massage you can do to start the Lymphnode system to move and start reducing the tighness in the face and neck which may be causing your jaw area to tighten up.
My Best to You and Everyone Here
by donnyboy on Fri Jan 06, 2012 07:18 PM
Get Botox shot!!!
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.