Anyone with AML

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I have been in remission for a year and went through 3 chemo treatments. I am still worried about future. Any information on this subject would be deeply appreciated.

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Bobbie_Y

Hi, My name is Bobbie. AML? I think that is in the same group of disorders that my husband has. He has Myelofibrosis (bone marrow) if this is correct, please write, I'm very interested. He takes Gleevec and Thalidomide.

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Frank_W

Dear Bobbie, Thanks for writing but my cancer (though bone marrow related) is a blood cancer and not the same as your husbands. I wish him all the luck in the world with his and hope he recovers. Tell him and you to to pray and have faith - it helped me get through some rough times. I'll pray for him also. BEST OF LUCK. May he do as well as I did. Frank W.

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Paulette_G

Hi. The meds you mentioned are used for CML. Another type of leukemia. My best wishes, Paulette

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Paulette_G

From March of 2001 to October of 2001, I had 4 rounds of chemo for AML. Up until the 3rd of October, I was in remission. Then I begun feeling bad again and finally had the BMB. Confirmed I am out of remission. Now the game plan is chemo until a donor is found for a BMT. I am looking for alternatives. Hope to hear from you in the near future. Best wishes, Paulette

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Frank_W

Paulette sorry to hear you are out of remissiom. I go for BMB tomorrow nov. 4th. It will be a year since I've had one and am very nervous about the outcome. Hope you get a donor. Please feel free to get in touch with me anytime. Sometimes it helps to talk about it. GOD BLESS YOU You'll be in my prayers, Frank

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Lori_M_2

Hi, My mother is the one with AML. She is in her first relapse right now. She was diagnosed in April 2002. She was able to do her induction therapy and 3 consolidation therapies until her marrow never recovered. Her platelets never raised above 74 to do a 4th. She was diagnosed on Feb 6, 2003 with a relapse. Unfortunately Mom doesn't want to know anything and believe that her Dr.'s know everything and can do no wrong. He was also the one that told her the entire last 6 months that she had beaten this and was going to be fine. Please don't take offense to my anger towards him. Paulette, she seems to be in the same position as you, waiting for a donor. I have taken the burden of knowing everything I possibly can about the disease. Sometimes I don't think the Dr.’s like me knowing as much as I do but since Mom doesn't want to I feel someone needs to question them. Frank, should you still be looking for answers feel free to contact me and I will do my best to guide you in the right direction. Best of wishes to both of you. Sincerely, Lori M.

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Spider32

My wife is a three year survivor oct 25 ,very scary we try to take things one day at a time ,she is going through a lot more than me Im a caregiver and a husband to her but she has ups and downs try to stay positive do what you can for exercise and eat right and the sky is the limit there are some very encouraging and awesome stories out there and some scary ones hang in ther you are doing it!I know a friend of my dads a male who also had a tranplant over five years ago he exercises a lot and seems to be just like he was before but my wife has not been as active very important as hard as it may be do what you can every day hang in there and when feeling down try to think of something pleasant to get yopur mind off that stuff it does not help.

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Spider32

I don't know much about this one because my wife had a bmt but I wish we had an opportunity to look at this the issels treatment check it out on the net

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Spider32

I know the feeling lori I am a caregiver for my wife check out the issel treatment on the net don't know much about it but if my wife hadn't allready had a bmt I would be looking into this more ,they have been pretty helpful with other questions I have had on chronic graft versus host a side effect of the bmt .

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