Zytiga

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RE: Zytiga

by rjcrossley on Tue Oct 11, 2011 07:45 PM

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On Aug 03, 2011 11:27 PM jayconrs wrote:

Congratulations for going into remission.  My Dad has extremely aggressive prostate cancer and is now being taken off Taxotere and put on Zytiga.

Can your Naturopath prescribe to you a little compassion?  You completely disregard the question, you immediately criticize a brand new medication that you obviously don't know anything about and in your opinionated process, offend others who actually take this form of treatment seriously.  If anyone has any information or experiences with Zytiga, please let me know.

Jayconrs Im so sorry if I upset you I never meant to.  Im just full of greft and remorst for the lost of a few my dear frends You see at my age Im running out of frends.  Im ex Australian Army and and a lot of us who were in the army were all about the same age. at the later stages of our life  a lot of us had developer prostrate cancer around about the same time. And lately quite a few of my mates have died from two forms of cancer. frends I have know for a great part of my life. So I have been to a lot of funerals over the past five years. you know its not fun geting that phone call and then learning abot  an other  good friend who dieing of cancer. haveing been though this. I know having cancer robs you not just of you life bit it also robs you of your Dignity as well . I tryed to help but not one of my frend would do as I did to fight my cancer,  in the end they all eventually died of either throat cancer or prostrate cancer.  I watch as my dear frends with prostrate cancer went in to the same stage of cancer as I did. they all went on to driugs like Zytiga it change them.  but in the end nothing worked.  Later can you please tell me is the Zytiga helping him. Because I realy want it to see it work. What I trying to say is I just feel After 100 years of fighting cancer there got to be a better way then this a slow lingering death.   

RE: Zytiga

by Joholland on Sat Oct 15, 2011 03:27 PM

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On Jul 31, 2011 4:23 AM hairiam wrote:

Does anyone out there take the new drug Zytiga???

 

yes, my husband has been on it for 90 days. his psa went from 125 to 60. He has been in pain again.  He had his psa checked last week with pcp and psa is back up to 95. is this normal? 

RE: Zytiga

by hairiam on Tue Oct 18, 2011 01:47 AM

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Hi there,sorry to hear your husbands psa is backup.myhusband had his psa checked after being on zytiga since the end of june and his psa is back up to266.westarted chemo again today-not real happy about it.i think it worked for the first month but when we were there in aug. They thought it wasn't working anymore so they kept him on it for 6 more weeks to see if it leveled out or went up.?

Rebecca

 

 

RE: Zytiga

by Chrystalluna on Tue Oct 18, 2011 03:17 AM

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My husband has Stage 4 proaste and started Zytiga a month ago.  His recent PSA jumped to 58.  His oncologist is giving it another month to see if it may work.  It is very disheartening. The side effects of this drug have been minimal for my husband, mostly extreme night hot flashes. He was 48 when he was diagnosed (he is now 51) and it has been a struggle every day.  We have tried the natural products and they may have helped in the beginning.  I am now looking into possibly going to see Dr. Burzinski in Houston. I don't know if anyone ever heard of him, but he seems to help alot of people.

  I think all cancers can be cured, you just need to find the right treatment.  AND, that is the big question.  Do not give up. 

 Also, about Ray.  I have been in touch with him for a few years.  The guy is just trying to help, not hinder.  He truly has a heart of gold.  I wish I lived in Australia, just to meet him.

RE: Zytiga

by jayconrs on Thu Oct 27, 2011 05:24 PM

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Hello.  I'm sorry for the delay in this response.  I just wanted to say thanks for sharing with me what you've been going through and not to worry about offending me.  I know how scary this is and empathize with with you.  I'm sorry for everything you have gone through and seen. 

I haven't been through what you've been through and don't know if I would be as strong.  You sound like a very caring person with the best of intentions.  Your friends are/were lucky to have you in their lives.  I know the emotional struggles this disease brings on but I refuse to allow this cancer to define us. 

 You say cancer robs you of dignity but I see in your message someone who tries to help, someone who cares  - someone with strength and dignity.  No, we are human and cancer can't take that away from us! 

FYI - my Dad's psa has dropped considerably since taking zytiga 2 months ago so we are focusing on day to day and trying to make the most of his latest improvements.  Anyway, again, please let me know how you are and what's working/not working.  I'll do the same regarding dad.  Thanks again.

RE: Zytiga

by Joholland on Fri Oct 28, 2011 02:37 AM

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On Oct 27, 2011 5:24 PM jayconrs wrote:

Hello.  I'm sorry for the delay in this response.  I just wanted to say thanks for sharing with me what you've been going through and not to worry about offending me.  I know how scary this is and empathize with with you.  I'm sorry for everything you have gone through and seen. 

I haven't been through what you've been through and don't know if I would be as strong.  You sound like a very caring person with the best of intentions.  Your friends are/were lucky to have you in their lives.  I know the emotional struggles this disease brings on but I refuse to allow this cancer to define us. 

 You say cancer robs you of dignity but I see in your message someone who tries to help, someone who cares  - someone with strength and dignity.  No, we are human and cancer can't take that away from us! 

FYI - my Dad's psa has dropped considerably since taking zytiga 2 months ago so we are focusing on day to day and trying to make the most of his latest improvements.  Anyway, again, please let me know how you are and what's working/not working.  I'll do the same regarding dad.  Thanks again.

Hello:

My husband is in Houston, Tx. He went to MD Anderson Hospital today for chemotherapy. The name of the treatment is Cabazitaxel (Zometa). I am beginning to think these so called cancer drugs (provenge, Zytiga) are a rip off. How much did the insurance companies pay for the provenge? How much did the insurance companies pay for the Zytiga? Zytiga did not work for my husband, nor did the provenge.  

He was told yesterday he has an aggressive form of prostate cancer with bone matestasis. 

Does anyone have this form of cancer and if so, does anybody have a drug that is working?

We are desperately looking for a medication that will extend his life.

Jean

RE: Zytiga

by Joholland on Fri Oct 28, 2011 03:21 AM

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On Aug 22, 2011 3:06 AM hairiam wrote:

Thank-you for adding your comment about the uncompassionate person that I don't wish to get feedback from.I cannot believe people that don't know anything about a drug can talk like that about it.My "" target="_blank" rel="nofollow">http://it.My " target="_blank" rel="nofollow">it.My husband is doing very well on zytiga so I will be sure to let him know.I also will be taking him off my friend list as I do not need negativity in my life especially with someone that has NO clue what the drug does.The "" target="_blank" rel="nofollow">http://does.The " target="_blank" rel="nofollow">does.The drug does not stop the body from producing hormones it stops the spread of the disease!On another note I hope your dad does as well on zytiga as my husband is doing.He "" target="_blank" rel="nofollow">http://doing.He " target="_blank" rel="nofollow">doing.He started end of June after going off taxotere also and is doing extremely well!My husband was diagnosed June 14 of 2010 with stage 4 prostrate to the bones so he is also very aggressive.I hope this helps in some way and gives you and your dad hope as it has us?

 

Hi there:

My name is Jean and my husband was on Zytiga. Zytiga did not work for him. Is Zytiga still working for your husband? I surely, hope so. My husband had chemo today. the name of the chemo is cabazitaxel. My husband has the aggressive cancer with metastasis. Just hoping the drug works for some forms of cancer.

jean

RE: Zytiga

by rjcrossley on Mon Oct 31, 2011 09:52 AM

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yeah Im afrade it is.  PSA from 125 to 60 just means the adenocarcinoma cancer tissue still there but cant produce PSA. The way it works is  the Zytiga is stopping the sex hormone testosterone from getting to the cancer tissue. Tis is what I found with my cancer that there are other hormones like the hormone insulin that come from eating excess sugar.  that use to beable to also put my psa up. So even if his PSA dos go down its because he still got the same amount of cancer tissue in his body that are just wating for a a hormone to come a long. so they can pruduce PSA  my psa use to go up this way.  until I was told to lay of the excess sugar it work for a while event though I still get them done to me the penal cells and Psa test I find them all most  use less as I still cant have treastment even though I dont need to any more as my doctor said Im still  in remision.    

RE: Zytiga

by rjcrossley on Mon Oct 31, 2011 09:57 AM

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Jean sorry about husband I had prostrate bone met to my ribs lower back and jaw but after four years of what my naturopath put me on Im in remision and I sem find now the diet was proty strick no sugary foods no bread lots of nuts it seem to have worked but it took time  

RE: Zytiga

by Joholland on Mon Oct 31, 2011 12:44 PM

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do you only stay away from sugary foods, no bread and lots of nuts? He came back from MD Anderson Friday and has been in bed in severe pain from the Neulasta.  Are you still on the Lupron? Have all lesions on your bones disappeared? When should we see a difference if we start on this diet? I wonder why more men are not doing this if it works? Thanks so much for responding. We are willing to try anything and we do appreciate others for their guidance and help.

jean

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