Latest messages for CancerCompass discussion http://www.cancercompass.com/message-board/message/all,61092,0.htm Sat, 25 May 2013 00:00:00 GMT Sat, 25 May 2013 00:00:00 GMT http://backend.userland.com/rss RSS.NET: http://www.rssdotnet.com/ My daddy is taking zytiga and he is hungry all the time. I think it is from the prednisone. He is also having swelling in his ankles, I don't know if that is a side affect or not.I pray for peace for everybody that has a family member taking this medication and dealing with cancer. lesharon40 Sat, 26 May 2012 00:00:00 GMT On Apr 23, 2012 4:07 PM papa6336 wrote: Dr. Potter, I hope this is something you might help with.  My dad (age 86) has been on Zytiga/Prednisone since March 13.  He was previously on Lupron/Casodex when that combination ceased working.  Dad seemed to improve almost immediately, but began having possible side effects after the 3rd week.  I might add that he had a 10 day regimen of radiation on a spot on his spine during that time as well.  He is dealing with symptoms of terrible weakness, burning and pain in his stomach and constant gnawing hunger, even when he has just eaten, and taste buds that seem to be rebelling -- hardly anything tastes right anymore.  He has been so miserable that he wants to stop taking Zytiga/Prednisone and see if he feels any better.  His oncologist did have him cut back the dosage to 500 mg Zytiga/5 mg prednisone, but that hasn't helped (a week ago).  We know that the prednisone must be tapered off rather than abruptly stopped, but what we can't find out is if there are any complications if he stops taking Zytiga abruptly after he has tapered down the dosage of prednisone?  He's reluctant to stop the Zytiga since his psa did drop from 325 to 250 in the first few weeks, but decided he needs to stop and see if these symptoms go away.  Can you help?The side effect of increased appetite while on Zytiga has been reported several times. He could try reducing the dose of Zytiga to 1 tablet (250 mg) daily since it still works at that dose. This dose is being tested at the University of Chicago where the effect of increased absorption with food is being investigated.ytiga has also been tested as a single agent without prednisone so some of the side effects that are due to prednisone can be avoided whentaken as a single agent. Taking a low dose of Zytiga may be the answer. An alternative approach would be to try salvestrols which are natural anticancer agents. These do not have any serious side effects so are safe to take long term and avoid the side effects of hormonal therapies. gerrypotter Tue, 24 Apr 2012 00:00:00 GMT Dr. Potter, I hope this is something you might help with.  My dad (age 86) has been on Zytiga/Prednisone since March 13.  He was previously on Lupron/Casodex when that combination ceased working.  Dad seemed to improve almost immediately, but began having possible side effects after the 3rd week.  I might add that he had a 10 day regimen of radiation on a spot on his spine during that time as well.  He is dealing with symptoms of terrible weakness, burning and pain in his stomach and constant gnawing hunger, even when he has just eaten, and taste buds that seem to be rebelling -- hardly anything tastes right anymore.  He has been so miserable that he wants to stop taking Zytiga/Prednisone and see if he feels any better.  His oncologist did have him cut back the dosage to 500 mg Zytiga/5 mg prednisone, but that hasn't helped (a week ago).  We know that the prednisone must be tapered off rather than abruptly stopped, but what we can't find out is if there are any complications if he stops taking Zytiga abruptly after he has tapered down the dosage of prednisone?  He's reluctant to stop the Zytiga since his psa did drop from 325 to 250 in the first few weeks, but decided he needs to stop and see if these symptoms go away.  Can you help? papa6336 Mon, 23 Apr 2012 00:00:00 GMT Hi John, Thanks! I'm glad to hear that you're one of the success stories - I'm hoping that my father is as well! His doctor didn't seem to think that there were any active clinical trials going on right now, but I'll have him double check. If not, I'll call J&J again to see if I can get somewhere with them. I hope that the treatment contiunes to work well for you! Best of luck! :) ~Erin carebearcutie16 Wed, 18 Apr 2012 00:00:00 GMT I have been on Zytiga for over 2 years, on a Clinical Trial for Patients who have not undergone Chemo, I do not know if there are any Trials accepting new participants, but other than being in an Insurance scheme that cover the full cost of treatment, the only other avenue, would be to apply to Johnson and Johnson for treatment under compassionate grounds. I live in Australia and Zytiga has not been approved for treatment and I cannot see it happening any time soon, at least you are able to obtain this medication, but at US$5000 per month, I guess it is well out of reach for the average person. As you maybe, aware Zytiga is not a cure, it only offers an extendsion of life, in some people, I am one of the lucky ones, that it has worked for and is still working, unfortunately the are many patients that it has not worked for and they have dicontinued useing it. I wish you all the luck in the world, that it will work for your Father and you are able to find a way of obtaining this drug in a way that you can afford.  Johnfwf Wed, 18 Apr 2012 00:00:00 GMT My father has metastatic prostate cancer (it's in his spinal cord) and he's been suffering a great deal (barely able to get out of bed most days). His doctor started him on Zytiga today. He's on medicare etc... But the copay is still $2500/month for Zytiga. Another one of his many medications is $1000/month. I know that Zytiga has a program to get the medication for $20/month but medicare patients are ineligible. My parents are using most of their retirement money to pay for this... They're not broke (yet) and insured thus rendering them ineligible for most of the programs that I've seen. They also applied through ACS, but they currently don't have any funding. Does anyone who's been though this have any ideas/advice? carebearcutie16 Wed, 18 Apr 2012 00:00:00 GMT Thanks for the support. I'm on the macrobiotic diet currently. I believe it's helping. Dannic7 Thu, 15 Mar 2012 00:00:00 GMT Thats great news ! I reckon if Zytiga is working for you fantastic ! Make sure you combine a good diet with that to give yrself the best chance ever. Brone Thu, 15 Mar 2012 00:00:00 GMT Just got my psa. Started Zytiga February 1st with 900 psa, today I'm at 500, with no pain! Dannic7 Thu, 15 Mar 2012 00:00:00 GMT On Mar 12, 2012 8:25 PM rjcrossley wrote: On Mar 12, 2012 6:42 AM Brone wrote:  Well we are fresh back from our monthly appointment.  Dad's PSA had gone back up to 1400 in January ( 800 in Nov ) and then dropped down to 1100 March.  So there is a tendency for it to be increasing but as we ALL know PSA is not the be all and end all.  Dad will have scans next month to chart his bone mets.  We were told to expect an increase but he has NO pain, so they say that he is still able to stay on the trial of Zytiga.  They may do chemo again ?? to agressively attack any hot spots.  There is also another trial he may qualify for down the track if he needs too.  A bit of a shock as he looks fab, has put on weight and has no pain. Day at a time, Day at a time. Brone Is he on any antioxidants I know high doses of antioxidants help me in 2008.Ha ! Am trying !!! RJ... Only if antioxidants include white sugar, white bread, cake and another helping of whatever !! Am trying to push the fact that he should .... but am grateful he feels so well that he continues to eat with such unbridled enthusiasm. Brone Mon, 12 Mar 2012 00:00:00 GMT On Mar 12, 2012 6:42 AM Brone wrote:  Well we are fresh back from our monthly appointment.  Dad's PSA had gone back up to 1400 in January ( 800 in Nov ) and then dropped down to 1100 March.  So there is a tendency for it to be increasing but as we ALL know PSA is not the be all and end all.  Dad will have scans next month to chart his bone mets.  We were told to expect an increase but he has NO pain, so they say that he is still able to stay on the trial of Zytiga.  They may do chemo again ?? to agressively attack any hot spots.  There is also another trial he may qualify for down the track if he needs too.  A bit of a shock as he looks fab, has put on weight and has no pain. Day at a time, Day at a time. Brone Is he on any antioxidants I know high doses of antioxidants help me in 2008. rjcrossley Mon, 12 Mar 2012 00:00:00 GMT  Well we are fresh back from our monthly appointment.  Dad's PSA had gone back up to 1400 in January ( 800 in Nov ) and then dropped down to 1100 March.  So there is a tendency for it to be increasing but as we ALL know PSA is not the be all and end all.  Dad will have scans next month to chart his bone mets.  We were told to expect an increase but he has NO pain, so they say that he is still able to stay on the trial of Zytiga.  They may do chemo again ?? to agressively attack any hot spots.  There is also another trial he may qualify for down the track if he needs too.  A bit of a shock as he looks fab, has put on weight and has no pain. Day at a time, Day at a time.  Brone Mon, 12 Mar 2012 00:00:00 GMT Jo, I'm new to this board and have never replied to an email. However, your message motivated me to respond. I was diagnosed with stage 4, gleason 10, bone mets, with over a 5000 psa. I was give 24 months to live last April at the tender age of 50. I was placed on Casodex, Lupron and Xgeva immediately, but became resistant to Lupron within 6 months. I was put on Zytiga in January and by the 3rd week I noticed that my bone pain has practically gone away. I will get my psa test this tuesday.( currently at 900). I am very hopeful. Dannic7 Mon, 12 Mar 2012 00:00:00 GMT Dear Bronwyn Thanks for telling us about your dad and its great he is playing golf again. I read in your blog that his PSA was as high as 3000 at one point. Considering that he was in such a bad way, the fact that he is now responding to Zytiga is an encouragement to others considering this treatment. I was interested to hear about your dads hungry appetite, and I have never heard of this as a side effect before, so maybe its just your dad ! Surely a good appetite is a sign of good health so just be pleased he is eating well. gerrypotter Sun, 11 Mar 2012 00:00:00 GMT Dear Jo, My dad has successfully been on Zytiga for nearly a year.  I'm happy for you to email me a private reply and i will give you our details, or you can follow our drama by following my posts. My dad's PSA was in the 1000s, he had radiotherapy and 5 rounds of chemotherapy, before starting zytiga.  He is 69 and has started playing social golf again.  ( just 9 holes ) In May last year, we never thought he would survive, severe unmanagable pain, swelling, depression etc etc. My dad loves fruit but he loves everything else better. The bad stuff I mean and lots of it infact I asked once whether that was maybe a side effect...as he has such an increase in appetite although I believe it is probably a psychological one.Maybe Prof Potter if you are reading  this you might be able to answer that ?? His obsession with food is actually overwhelming sometimes and I feel guilty telling him to just 'calm down'. Hope this helps. Bronwyn  ps Jo. I'm in Australia Brone Sun, 11 Mar 2012 00:00:00 GMT Can you sir see at the bottom of your message where it asks if you wish this email to be private? Please don't insult my intelligence regarding wanting telephone numbers published on the internet. So glad to hear Zytiga is working for you.  I wanted to know individuals who were succesful with Provenge, Zytiga, etc. At least there may be hope. Hope my husband will find one of these miracle drugs that can help him too. Joholland Sun, 11 Mar 2012 00:00:00 GMT Talk about attitude! Do you really think that users of Zytiga want their telephone numbers published on the internet? I know you are angry and frustated because the person you love, is suffering and in pain from yhe effects of Prostate Cancer, but please don't shoot the messenger, who is trying to find, if not a cure, then a means of prolonging the lives of sufferers like myself and millions of other people. Yes, I am on a Phase III trial of Zytiga, for people who have not had chemo, I started the trial in February 2010, after all the conventional treatments had failed, other than chemo, which I will not have under any circumstances. So I am stilll alive and enjoying life, after being diagnosed in 2002, with inoperable and very aggresive PCa which had spread out side the capsule, I was given 6 to 12 months to live. I am sure that Zytiga has extended my life and QOL, I am 72 and can still play golf everyday, weather permitting. We should be down on our knees, thanking people like Prof Gerry Potter, for dedicating their lives, to find a cure for this killer of men. If, by reporting Gerry as a fraud and he is banned from this site, you have done a great disservice to all who may gainn  some hope of a cure or at least an extention. I hope that the chemo that your husband is about to ubdergo is succesfull and extends his life for many years to come.   Johnfwf Sat, 10 Mar 2012 00:00:00 GMT Dear Hairiam, I am sorry to hear that your husband only responded to Zytiga for a short while. The clinical trials showed an 80% responses rate, so this means that 20% of patients with advanced prostate cancer will not respond to Zytiga. I have always known that there would be non-responders to Zytiga since it is a hormonal therapy and some prostate cancers remain hormone unresponsive. It is the hormone independent cancers that are the hardest to treat which is why I developed salvestrols to treat this condition. The new drug XL-184 (Cabozantinib) is also a very promising treatment for advanced prostate cancer and could well help your husband. I know there is a Phase I clinical trial of XL-184 in combination with Zytiga. Would it be possible for your husband to take part in one of the new trials on XL-184. The early results look encouraging for this agent and its worth trying if possible. gerrypotter Sat, 10 Mar 2012 00:00:00 GMT Dear Jerry,I have not had anytime to come on here lateley because my husband has been very sick.I do want to make sure I do tell you my husband did the best with Zytiga while it worked.He at least had a good summer while it worked but it didnt last long for him but nothing has worked very long for him but every day counts.Hes had some bumps down the road surgery because he lost feeling in his legs and then radiation to the brain and is going to start chemo next week that he dreads but that is the only option right now until the XL-184 gets approved here.I must say I cant believe all the negative comments.Everyo ne needs to stick together and be positive! Positive brings positive results! Cancer is a horrible disease and it is hard to see your loved one go through this... I can vouch for that.               hairiam Fri, 09 Mar 2012 00:00:00 GMT Dear Jo, I also came on this website because I truly care about people suffering from cancer and the consequences this has on their carers. Please at least believe me when I say this. I do care about people with cancer which is why I have spent the last 30 years researching and developing new treatments fro this deadly disease. I have spent the last 20 years at the very forefront of cancer research and I am proud of my achievements. I will leave it up to others on this website to vouch for the effectiveness of Zytiga and Salvestrols. All I have heard so far on this website are sceptical, critical, and negative comments about medications that they know nothing about. Surely there must be someone on this site benefiting from Zytiga with something good to say ? gerrypotter Thu, 08 Mar 2012 00:00:00 GMT Hey inventor: I reported you as fraud just to make sure you are who you are. I am the wife. Your attitude does not display professionalism and care for the helpless wives that are tired of seeing people like you give false hope.  Where are the telephone numbers of all the individuals I asked you for? Hello all you individuals on compass that are survivors of Zytiga, Provenge and the other expensive medications out there, my husband are I are awaiting patiently for you to tell us you are living proof of salvestrol..Inventor does all the cancer hospitals know about you? Humm why is Vanderbilt, MD Anderson not telling us.. Please don't get an attitude with me. I came on here to help all the other patient's suffering from this deadly disease from people like you. I am the one seeing my husband suffering, in severe pain and in bed all the time. I am the one who is with him when he gets his chemo and the excrutiating pain is is in afterwards. So, I am awaiting patiently for all these men that are benefiting from the wonder drugs/supplements.. Joholland Thu, 08 Mar 2012 00:00:00 GMT Dear Jo, If you cant believe anything the inventor says then why ask their opinion. Surely as the inventor of Zytiga I should know more about this medication than anyone else on the planet ! So if you choose to disregard my opinion that is entirely up to you. Have you ever thought of a natural approach and giving mother nature a chance ? There is only one real cure for cancer and that is salvestrol. This is mother natures way of destroying cancer cells in the human body. These are non-toxic natural molecules extracted from fruit. Thats all just fruit extracts. So fruit extracts cure cancer its that simple. People have been using herbs and fruits to cure cancer for centuries but the natural methods have been almost lost due to the power of the almighty pharmaceutical industry. The pharma industry is just pouring out yet more poisons to try and defeat cancer, but these are futile attempts to tackle a complex disease. The only good drugs for cancer are those that have been intelligently designed to work with the body and not against it, such as Zytiga. This drug specifically targets the enzyme responsible for prostate tumour growth so destroys prostate cancer and its metastasis. The natural salvestrols work intelligently with the body and are readily absorbed. Once inside the bloodstream they are delivered to the tumour. When inside the tumour cells they undergo metabolism to destroy the cancer cell from within. So they work with the human body to selectively destroy tumour cells leaving the healthy cells unharmed. So this is a safe therapy for cancer that does not suffer from the side effects seen with chemotherapy and is completely pure and natural. gerrypotter Thu, 08 Mar 2012 00:00:00 GMT Please let me know how you progess with Zytiga and what side-effects you experience. Its always useful to know the whole picture. My dietary regimen is based on eating the maximum amount of salvestrols from the diet. These are found in all organic fruits and vegetables. You can find a lisst of fruits and vegetables which are richest in salvestrols from the websitewww.salvestrol.caand find the article on the "Green & Red Diet". Meat does not contain salvestrols, but this does not mean that you have to cut it out completely. So you can enjoy eating chicken etc so long as you include at least 100g of vegetables with it. Each 100g of fruit or veg contains 20 points of salvestrol. So the maximum you can get from the diet is about 100 points per day. For cancer therapy you really need a much higher dose of 6000 points per day which you can only get by taking supplemements. So for cancer prevention the diet is adequate but not for actively fighting cancer. Salvestrols are a natural approach to cancer therapy and have been used to combat metastatic cancer in the bones. Heres one example: Helped Cure My Brother in Laws Lung Cancer These salvestrols were used to knock out my Brother-in-Laws lung cancer over a period of two months. This natural non-toxic treatment made the tumors in his lungs, back, and pelvis 'melt away'. His doctor calls him the "Miracle Man". His doctor is not allowed to use 'alternative medicines', so I did the research, bought the salvestrols and had them shipped to him in mid-July 2010. By mid-September 2010, all tumors are gone from his lungs and back and the one in his pelvis is half the size and shrinking. Makes me a believer. One note he told me was that the Salvestrols 'upset his stomach'. Make your cancer victim a "Miracle" person also. Great support from the Shen Clinic.   gerrypotter Thu, 08 Mar 2012 00:00:00 GMT RE: Zytiga byWaterlooDonon Thu Mar 08, 2012 03:43 AM Quote |Reply gerrypotter: Help me understand Zytiga. How does it work ? When is it used ? Why so many negative  and angry posts ? How does it`s effectiveness compare with Salvestrol Platinum ? What are Zytiga`s limitations ? Is Zytiga designed to cure pc or is it`s use simply to lower PSA scores ? As always I look forward to hearing back from you. WaterlooDon gerrypotter Thu, 08 Mar 2012 00:00:00 GMT I am the spouse of a man who has been battling metastatic prostate cancer since 2008. Please inventor of Zytiga give me the number of the individuals who have been on this medication longer than 2 plus months. How can we believe anything the inventors say. My husband is dying. I feel so helpless.  Provenge did not work. He was worse after his treatment with Provenge. Tell all the victims and their spouses that Salvestrols work. Give me the telephone numbers of survivors. I am waiting patiently.  Joholland Thu, 08 Mar 2012 00:00:00 GMT On Mar 06, 2012 11:25 PM gerrypotter wrote: Hi Ricky, I am the inventor of Zytiga so it is really good to hear of people like yourself that are doing well on it. It is immensely satisfying to see a drug that you have designed helping so many people. I've only ever heard positive feeback about it and it has kept people alive for over 8 years. I have also heard there are alot of people who had months to live that are still alive from the phase II trials 4 years ago. After inventing Abiraterone Acetate (Zytiga) back in 1990, I then went in search of similar drugs that could target all types of cancer. This research was rewarded by the discovery of salvestrols which are active against all forms of cancer. Salvestrols can even be used to treat hormone independent prostate cancer that has relapsed following hormonal therapy. So salvestrols work beyond Zytiga to specifically target cancer cells in the human body and destroy them. They are safe to take even in very high doses and have worked against every type of cancer that they have been tried.Nice post. I am about to go on Zytiga this week, exhausted Taxotere which had little effect. Current PSA ~ 30. Metastatic prostate cancer to the scapular, vertebrae T-1 through T-6, thoracic and hips. Wondering if you could post an accurate regimen for breakfast, lunch and dinner rather than suggesting salvestrols. Does this mean you can't eat meat, chicken, fish, bread and other stuff that people normally during the course of a day. Just wondering and would like to try some natural help. Thanks. POOKIETRAIN Thu, 08 Mar 2012 00:00:00 GMT Hi Ricky, I am the inventor of Zytiga so it is really good to hear of people like yourself that are doing well on it. It is immensely satisfying to see a drug that you have designed helping so many people. I've only ever heard positive feeback about it and it has kept people alive for over 8 years. I have also heard there are alot of people who had months to live that are still alive from the phase II trials 4 years ago. After inventing Abiraterone Acetate (Zytiga) back in 1990, I then went in search of similar drugs that could target all types of cancer. This research was rewarded by the discovery of salvestrols which are active against all forms of cancer. Salvestrols can even be used to treat hormone independent prostate cancer that has relapsed following hormonal therapy. So salvestrols work beyond Zytiga to specifically target cancer cells in the human body and destroy them. They are safe to take even in very high doses and have worked against every type of cancer that they have been tried. gerrypotter Tue, 06 Mar 2012 00:00:00 GMT No I didn't have to fail chemo, there is a provision wriiten that as long as you have a rising psa. You can qualify, Zytiga is prescribed with prendisone 5mg 2x a day. I have no side effects at all. Besides the insurance, my doctors office got in touch with Co- Pay advocate group which picks up what the insurance does not. This drug is truly a blessing. Rich I hope all goes well and thanks for the email. Rick rickyd2000 Thu, 23 Feb 2012 00:00:00 GMT On Feb 22, 2012 7:43 PM rickyd2000 wrote: Hi I am taking Zytiga now for 4 months now and it is great, the drug has lowered my PSA from 165 to 3. I am in remission now and in the 7th year of treatment. And I have stage 4 prostate cancer with bone mets. My recommendation is take the treatment.Hi. Great news! Did you have to fail chemo before getting Zytiga? I'm on chemo now, 5 rounds and one to go which has held my PSA @30. I'm hoping to get on a Zytiga trial with another drug as it would be no insurance hassle. I have bone mets as well. Best of luck. Rich. POOKIETRAIN Thu, 23 Feb 2012 00:00:00 GMT Hi I am taking Zytiga now for 4 months now and it is great, the drug has lowered my PSA from 165 to 3. I am in remission now and in the 7th year of treatment. And I have stage 4 prostate cancer with bone mets. My recommendation is take the treatment. rickyd2000 Wed, 22 Feb 2012 00:00:00 GMT Hi Jean. My dad is sort of the same as yr husband but his treatment is the reverse. ( sort of )  He knew he had advanced prostate cancer with unbelievable PSA in the 100s then 1000s.  His scans showed pin prick metastases in his bones esp spine, shoulder.  He then had an accident at golf, a disc had collapsed and he was in phenomenal pain and everything was out of control.  BUT finally his pain medication was worked out, he had 6 rounds of chemo but finally the side effect ( a lung condition ) became too much.  He also had radiation to help with the pain.  After the chemo he had a 6 week break and he started to feel poorly.  He was invited to go on the Aust Zytiga trial and luckily for dad he is going really well.  He feels so much better than he has for a long time.  He has even played golf 12 holes twice ! That is something none of us thought he would do, EVER again.   It sure isn't easy, he travels a great distance every 2 weeks for his consultation, every 4 weeks he has a zometa infusion (bone strengthing).  He still gets constant urinary tract infections and has a permanent sub pubic catheter, that he hates ! His positive 'get it done' attitude has helped for sure. Hope you are doing OK ! And lots of love to yr husband. Brone Thu, 08 Dec 2011 00:00:00 GMT thank you so much for your email. My husband is beside me and he wanted me to tell you he can relate.  My husband still has hope.  Joholland Tue, 06 Dec 2011 00:00:00 GMT My husband has stage 4 prostrate to the bones .He has done Zytiga and it didnt work for him either.He was on Cabataxel but he ended up in the hospital anemic from a low red blood count.While he was in the hospital he got up to walk to the bathroom and fell because he had no feeling in his legs.They removed 2 tumours which were pushing on his spinal cord and he is able to have feeling in his legs agin-very scary.He was diagnosed in june of 2010 and he has been fighting this awful cancer.I wish I could give you better news but he has tried it all so far.We are hoping they come out with a miracle drug soon before this stuff takes over his entire body. :( hairiam Tue, 06 Dec 2011 00:00:00 GMT On Dec 02, 2011 11:10 PM awilder wrote: I thought you couldn't get Zytiga in Australia, My Uncle's doctors just recommended he take it but said they can't get it there?I live in the US. How could I get it for him? thanks Zytiga just the $5000.00 brand name  The drug called abiraterone, how it works is! It works inside the cancer cell by blocking the function of an essential enzyme in the synthetic pathway of testosterone. But I think I get a better result by just have my Soy milk and my 6 crush up apricot pits  every day All the best Ray rjcrossley Sun, 04 Dec 2011 00:00:00 GMT I thought you couldn't get Zytiga in Australia, My Uncle's doctors just recommended he take it but said they can't get it there?I live in the US. How could I get it for him? thanks awilder Fri, 02 Dec 2011 00:00:00 GMT On Oct 31, 2011 12:44 PM Joholland wrote: do you only stay away from sugary foods, no bread and lots of nuts? He came back from MD Anderson Friday and has been in bed in severe pain from the Neulasta.  Are you still on the Lupron? Have all lesions on your bones disappeared? When should we see a difference if we start on this diet? I wonder why more men are not doing this if it works? Thanks so much for responding. We are willing to try anything and we do appreciate others for their guidance and help. jeanHi jean my heart gos out to you I just know what your both must going though. like the very groung is falling away from your feet. you know  I never for get that look I never  saw that look on my two sons but I watched  my wife and two  daughters go though it. The look on there faces  I will  never forget.  when my doctors told us there was nothing more then they can do for me. My heart gos out to you and especially to your  husband. I know now what it like. your fighting to keep him as long as possible We man want to be strong for our family but cancer robs us of this. but even though The cancer dos makes us weak. a new strength comes in to play. a will to fight to the last to  stay alive as long as possible so we can help then as long as we can it been four long years I can see the love and compassion in my wife and two daughters I never wanted them to see me this way.  but cant be helped and even though I in remission now I can still see that look  its a look like I be dropping dead any minute now. Im sure they havent probable have the frunal director phone number on speed dile. but Im going to live a long time now I can feel it     rjcrossley Tue, 08 Nov 2011 00:00:00 GMT Hi Jean tell him not to lose hope just yet there are other ways and as I said I know where he is at.  as I was once there to in 2008. Doctors wrot me off  becaurse of a heart conditions I never knew I had. And back then I was in so much pain,,,,,,,,,,, death could not come quick enough.  My doctors told me they were out of opitions on how to treat me. That It was becaurse of my heart condition I could  not have any treatment bar radiation. at the time  I was so weak.  the treatment would probable have killed me.  so because they could not treat me. They told me I would be dead in a only few years. When i went back to my family doctor he  told my wife he was concerned that one night  while I was asleep I could  very well roll over in bed and  brake my spine.  and be come a parar.  after seing beby my naturopath it took me only few months  to get the prostrate bone mets under control so I could sleep more then a few hours at a time but it took me four years to get my PSA down to were it is now. The first thing I was told to do was go off all sugary foods then go on a detox program but this took time. so  in the mean time Debby put me on to  high dose of vitamins. the main ones were  6000 mg of  vitamin C and 8000 iu of vitamin D. a day.  just this little bit did help. I also had to eat foods that I would never go near before you see there are foods that help our immune system fight cancer foods like cabbage and foods that contain isoflavones like soy these minic testoserone takeing it place on the cancer cell blockijng it from geting testoserone there are other  foods that contain sulfur compounds like garlic and onions that a re good to I got most of my diet from a book Debby put me on to called "Foods that fight cancer" "prevening and treating cancer though diet" by richard beliveau phD & denis Gingras phD  Hope this helps you both. The way it help me.  god bless you,  both of you.   Ray       rjcrossley Mon, 31 Oct 2011 00:00:00 GMT do you only stay away from sugary foods, no bread and lots of nuts? He came back from MD Anderson Friday and has been in bed in severe pain from the Neulasta.  Are you still on the Lupron? Have all lesions on your bones disappeared? When should we see a difference if we start on this diet? I wonder why more men are not doing this if it works? Thanks so much for responding. We are willing to try anything and we do appreciate others for their guidance and help. jean Joholland Mon, 31 Oct 2011 00:00:00 GMT Jean sorry about husband I had prostrate bone met to my ribs lower back and jaw but after four years of what my naturopath put me on Im in remision and I sem find now the diet was proty strick no sugary foods no bread lots of nuts it seem to have worked but it took time   rjcrossley Mon, 31 Oct 2011 00:00:00 GMT yeah Im afrade it is.  PSA from 125 to 60 just means the adenocarcinoma cancer tissue still there but cant produce PSA. The way it works is  the Zytiga is stopping the sex hormone testosterone from getting to the cancer tissue. Tis is what I found with my cancer that there are other hormones like the hormone insulin that come from eating excess sugar.  that use to beable to also put my psa up. So even if his PSA dos go down its because he still got the same amount of cancer tissue in his body that are just wating for a a hormone to come a long. so they can pruduce PSA  my psa use to go up this way.  until I was told to lay of the excess sugar it work for a while event though I still get them done to me the penal cells and Psa test I find them all most  use less as I still cant have treastment even though I dont need to any more as my doctor said Im still  in remision.     rjcrossley Mon, 31 Oct 2011 00:00:00 GMT On Aug 22, 2011 3:06 AM hairiam wrote: Thank-you for adding your comment about the uncompassionate person that I don't wish to get feedback from.I cannot believe people that don't know anything about a drug can talk like that about it.My "" target="_blank" rel="nofollow">http://it.My " target="_blank" rel="nofollow">it.My husband is doing very well on zytiga so I will be sure to let him know.I also will be taking him off my friend list as I do not need negativity in my life especially with someone that has NO clue what the drug does.The "" target="_blank" rel="nofollow">http://does.The " target="_blank" rel="nofollow">does.The drug does not stop the body from producing hormones it stops the spread of the disease!On another note I hope your dad does as well on zytiga as my husband is doing.He "" target="_blank" rel="nofollow">http://doing.He " target="_blank" rel="nofollow">doing.He started end of June after going off taxotere also and is doing extremely well!My husband was diagnosed June 14 of 2010 with stage 4 prostrate to the bones so he is also very aggressive.I hope this helps in some way and gives you and your dad hope as it has us?  Hi there: My name is Jean and my husband was on Zytiga. Zytiga did not work for him. Is Zytiga still working for your husband? I surely, hope so. My husband had chemo today. the name of the chemo is cabazitaxel. My husband has the aggressive cancer with metastasis. Just hoping the drug works for some forms of cancer. jean Joholland Fri, 28 Oct 2011 00:00:00 GMT On Oct 27, 2011 5:24 PM jayconrs wrote: Hello.  I'm sorry for the delay in this response.  I just wanted to say thanks for sharing with me what you've been going through and not to worry about offending me.  I know how scary this is and empathize with with you.  I'm sorry for everything you have gone through and seen.  I haven't been through what you've been through and don't know if I would be as strong.  You sound like a very caring person with the best of intentions.  Your friends are/were lucky to have you in their lives.  I know the emotional struggles this disease brings on but I refuse to allow this cancer to define us.   You say cancer robs you of dignity but I see in your message someone who tries to help, someone who cares  - someone with strength and dignity.  No, we are human and cancer can't take that away from us!  FYI - my Dad's psa has dropped considerably since taking zytiga 2 months ago so we are focusing on day to day and trying to make the most of his latest improvements.  Anyway, again, please let me know how you are and what's working/not working.  I'll do the same regarding dad.  Thanks again.Hello: My husband is in Houston, Tx. He went to MD Anderson Hospital today for chemotherapy. The name of the treatment is Cabazitaxel (Zometa). I am beginning to think these so called cancer drugs (provenge, Zytiga) are a rip off. How much did the insurance companies pay for the provenge? How much did the insurance companies pay for the Zytiga? Zytiga did not work for my husband, nor did the provenge.   He was told yesterday he has an aggressive form of prostate cancer with bone matestasis.  Does anyone have this form of cancer and if so, does anybody have a drug that is working? We are desperately looking for a medication that will extend his life. Jean Joholland Fri, 28 Oct 2011 00:00:00 GMT Hello.  I'm sorry for the delay in this response.  I just wanted to say thanks for sharing with me what you've been going through and not to worry about offending me.  I know how scary this is and empathize with with you.  I'm sorry for everything you have gone through and seen.  I haven't been through what you've been through and don't know if I would be as strong.  You sound like a very caring person with the best of intentions.  Your friends are/were lucky to have you in their lives.  I know the emotional struggles this disease brings on but I refuse to allow this cancer to define us.   You say cancer robs you of dignity but I see in your message someone who tries to help, someone who cares  - someone with strength and dignity.  No, we are human and cancer can't take that away from us!  FYI - my Dad's psa has dropped considerably since taking zytiga 2 months ago so we are focusing on day to day and trying to make the most of his latest improvements.  Anyway, again, please let me know how you are and what's working/not working.  I'll do the same regarding dad.  Thanks again. jayconrs Thu, 27 Oct 2011 00:00:00 GMT My husband has Stage 4 proaste and started Zytiga a month ago.  His recent PSA jumped to 58.  His oncologist is giving it another month to see if it may work.  It is very disheartening. The side effects of this drug have been minimal for my husband, mostly extreme night hot flashes. He was 48 when he was diagnosed (he is now 51) and it has been a struggle every day.  We have tried the natural products and they may have helped in the beginning.  I am now looking into possibly going to see Dr. Burzinski in Houston. I don't know if anyone ever heard of him, but he seems to help alot of people.   I think all cancers can be cured, you just need to find the right treatment.  AND, that is the big question.  Do not give up.   Also, about Ray.  I have been in touch with him for a few years.  The guy is just trying to help, not hinder.  He truly has a heart of gold.  I wish I lived in Australia, just to meet him. Chrystalluna Tue, 18 Oct 2011 00:00:00 GMT Hi there,sorry to hear your husbands psa is backup.myhusband had his psa checked after being on zytiga since the end of june and his psa is back up to266.westarted chemo again today-not real happy about it.i think it worked for the first month but when we were there in aug. They thought it wasn't working anymore so they kept him on it for 6 more weeks to see if it leveled out or went up.? Rebecca     hairiam Tue, 18 Oct 2011 00:00:00 GMT On Jul 31, 2011 4:23 AM hairiam wrote: Does anyone out there take the new drug Zytiga???  yes, my husband has been on it for 90 days. his psa went from 125 to 60. He has been in pain again.  He had his psa checked last week with pcp and psa is back up to 95. is this normal?  Joholland Sat, 15 Oct 2011 00:00:00 GMT On Aug 03, 2011 11:27 PM jayconrs wrote: Congratulations for going into remission.  My Dad has extremely aggressive prostate cancer and is now being taken off Taxotere and put on Zytiga. Can your Naturopath prescribe to you a little compassion?  You completely disregard the question, you immediately criticize a brand new medication that you obviously don't know anything about and in your opinionated process, offend others who actually take this form of treatment seriously.  If anyone has any information or experiences with Zytiga, please let me know.Jayconrs Im so sorry if I upset you I never meant to.  Im just full of greft and remorst for the lost of a few my dear frends You see at my age Im running out of frends.  Im ex Australian Army and and a lot of us who were in the army were all about the same age. at the later stages of our life  a lot of us had developer prostrate cancer around about the same time. And lately quite a few of my mates have died from two forms of cancer. frends I have know for a great part of my life. So I have been to a lot of funerals over the past five years. you know its not fun geting that phone call and then learning abot  an other  good friend who dieing of cancer. haveing been though this. I know having cancer robs you not just of you life bit it also robs you of your Dignity as well . I tryed to help but not one of my frend would do as I did to fight my cancer,  in the end they all eventually died of either throat cancer or prostrate cancer.  I watch as my dear frends with prostrate cancer went in to the same stage of cancer as I did. they all went on to driugs like Zytiga it change them.  but in the end nothing worked.  Later can you please tell me is the Zytiga helping him. Because I realy want it to see it work. What I trying to say is I just feel After 100 years of fighting cancer there got to be a better way then this a slow lingering death.    rjcrossley Tue, 11 Oct 2011 00:00:00 GMT My dad has just started Zytiga ( we are in Australia I'm not sure where you are ) He is doing so well on it !! but he is starving all the time, has anyone else heard about this as a side effect or is this just my dad. I know from everyones post that cancer craves sugar or is it becoz he just feels just so good. Thanks  Bronwyn Brone Mon, 10 Oct 2011 00:00:00 GMT hi Zytioa sorry but you have misunderstood me.  I was describing and knocking the drug not the patient.  I'm from Scottish decent its just  the way I think and the way I talk with people when I'm worried about them. I'm not being rude its just at 60 years of age close friends that I have know all my life are dieing and I cant seem to be able get to be with them in time. all I seem to doing is going to funerals, after there wife's and family  ring me.       rjcrossley Thu, 25 Aug 2011 00:00:00 GMT hi Zytioa sorry but you have misunderstood me.  I was describing and knocking the drug not the patient.  I'm from Scottish decent its just  the way I think and the way I talk with people when I'm worried about them. I'm not being rude its just at 60 years of age close friends that I have know all my life are dieing and I cant seem to be able get to be with them in time. all I seem to doing is going to funerals, after there wife's and family  ring me.       rjcrossley Thu, 25 Aug 2011 00:00:00 GMT On Aug 22, 2011 3:06 AM hairiam wrote: Thank-you for adding your comment about the uncompassionate person that I don't wish to get feedback from.I cannot believe people that don't know anything about a drug can talk like that about it.My "" target="_blank" rel="nofollow">http://it.My " target="_blank" rel="nofollow">it.My husband is doing very well on zytiga so I will be sure to let him know.I also will be taking him off my friend list as I do not need negativity in my life especially with someone that has NO clue what the drug does.The "" target="_blank" rel="nofollow">http://does.The " target="_blank" rel="nofollow">does.The drug does not stop the body from producing hormones it stops the spread of the disease!On another note I hope your dad does as well on zytiga as my husband is doing.He "" target="_blank" rel="nofollow">http://doing.He " target="_blank" rel="nofollow">doing.He started end of June after going off taxotere also and is doing extremely well!My husband was diagnosed June 14 of 2010 with stage 4 prostrate to the bones so he is also very aggressive.I hope this helps in some way and gives you and your dad hope as it has us?  Hi Hairiam I just reread my last post to you and Im sorry if i up set you. I never meant to.  Its just over the past few years I had a few frends die while on these HT drugs,  when they finally stop working, in only  a few years after taking them. they like me  had stage 5 prostrate bones cancer I had it in  my ribs my lower back and my lower jaw it was also very aggressive  and painful Im glade your husband doing well on them. and I hope he continues to do well Ray   rjcrossley Tue, 23 Aug 2011 00:00:00 GMT Thank you for your comment too.  It is very hopeful and encouraging and I wish your husband continued progress and improvement.   My Dad just stopped chemo and has taken Zytiga for a week.  It's too early to tell how effective it has been but we are all very pleased he's off chemo now and his body is starting to recover from the year of chemo he has undergone... and that he has not experienced any side effects.    Please keep me updated and I will do the same.   Thanks again!  jayconrs Tue, 23 Aug 2011 00:00:00 GMT Thank-you for your negative feedback! For your information zytiga does not work the way you said so you might want to study up on that instead of posting something you know nothing about!My husband is doing great on it! As for you attitude is everything so I hope your naturopath can help you with that.You obviously were not at stage 4 when you turned to naturopath therapy because if you are at a later stage cutting sugary foods and eating 10 ground up apricots a day does nothing for your pain in your bones!My husband starting taking high doses of vitamin D and C immediatley after he was diagnosed with stage 4 cancer.Sounds like you should be happy you are not at a later stage of cancer and naturopath therapy can be of help to  you.Please do not leave negative feedback!Didn't anyone ever tell you if you can't say anything nice don't say it? hairiam Mon, 22 Aug 2011 00:00:00 GMT Thank-you for adding your comment about the uncompassionate person that I don't wish to get feedback from.I cannot believe people that don't know anything about a drug can talk like that about it.My husband is doing very well on zytiga so I will be sure to let him know.I also will be taking him off my friend list as I do not need negativity in my life especially with someone that has NO clue what the drug does.The drug does not stop the body from producing hormones it stops the spread of the disease!On another note I hope your dad does as well on zytiga as my husband is doing.He started end of June after going off taxotere also and is doing extremely well!My husband was diagnosed June 14 of 2010 with stage 4 prostrate to the bones so he is also very aggressive.I hope this helps in some way and gives you and your dad hope as it has us?   hairiam Mon, 22 Aug 2011 00:00:00 GMT Congratulations for going into remission.  My Dad has extremely aggressive prostate cancer and is now being taken off Taxotere and put on Zytiga. Can your Naturopath prescribe to you a little compassion?  You completely disregard the question, you immediately criticize a brand new medication that you obviously don't know anything about and in your opinionated process, offend others who actually take this form of treatment seriously.  If anyone has any information or experiences with Zytiga, please let me know. jayconrs Wed, 03 Aug 2011 00:00:00 GMT On Jul 31, 2011 4:23 AM hairiam wrote: Does anyone out there take the new drug Zytiga???  Why would you bother taking it,  It just another useless Hormone Therapy  drug.  How Zytiga works is by lowering testosterone, one of the  hormone that fuels prostate cancer growth. it supposed to help men in the later stage of there cancer but if the cancer gone none hormone dependent it becomes use less In one of the  large clinical trial, the drug helped such men live about 4 months longer. O wopy do, this drag is meant for men in the later stages of cancer like I was yet when a naturopath help me when I was was heading in this later stages of cancer two years ago I went in to remission Naturopath just put me on a detox a diet of no sugary foods supplements of high dose of vitamin D and virtamin C and 10 ground up aprecots a day got me into remision. but it took me two years to get that way      rjcrossley Sun, 31 Jul 2011 00:00:00 GMT Does anyone out there take the new drug Zytiga???   hairiam Sun, 31 Jul 2011 00:00:00 GMT