Small study showed high accuracy but hurdles remain, two experts said
by mollierose on Sat Aug 20, 2011 06:10 AM
hi I'm new here and this is my first post. We just found out that my mom is having a whipple procedure done this next week. She has a tumor on the head of her pancreas. Today they called with the results of the biopsy and they say that it is cancer but looks real small and is contained! There is nothing in the lymphnodes. I'm thankful for that but earlier this week they told us it didn't look like cancer and the cancer blood test came back normal. So this is hard to hear today.
I guess I'm here for encouragement and need some questions answered. Can she have a lot of years after this surgery? She's 68 and is healthy. Never has smoked or drank a drop of alcohol in her life.
Thanks to any who respond. I love my mama so much!
I believe in Jesus and know He is in control..I pray for her continually. I just would like to talk to people too.
by omabina on Sat Aug 20, 2011 06:20 AM
Just hang in there - I was diagnosed with pc at age 67 and I am 72 now!!! and doing very well - no enzymes and no other medications. I also had endometriosis and had a total historectomy shortly after the whipple - then chemo and radiation and more chemo afterwards, in 2006 I was pretty much a couch potatoe for almost the whole year.... but now life is good - except for the regular 6 months check ups - a very nervwrecking time - but sofar soo gooooood! and everything is functioning well..............
by mollierose on Sat Aug 20, 2011 06:33 AM
thanks for your reply. was your tumor cancerous?
by mollierose on Sat Aug 20, 2011 06:35 AM
On Aug 20, 2011 6:20 AM omabina wrote: Just hang in there - I was diagnosed with pc at age 67 and I am 72 now!!! and doing very well - no enzymes and no other medications. I also had endometriosis and had a total historectomy shortly after the whipple - then chemo and radiation and more chemo afterwards, in 2006 I was pretty much a couch potatoe for almost the whole year.... but now life is good - except for the regular 6 months check ups - a very nervwrecking time - but sofar soo gooooood! and everything is functioning well..............
On Aug 20, 2011 6:20 AM omabina wrote:
I'm sorry for that last response. I realize it was cancer since you took chemo and radiation. So was the cancer in your lymphnodes?
by omabina on Sat Aug 20, 2011 06:53 AM
no - not in lymphnodes - tumor was about 1 cm big - I had turned jaundice while at the docs office for annual checkup! I was very lucky - I had surgery shortly thereafter in a small town hospital - never even asked my surgeon how many of these procedures (if any) he had done..... but I trusted him totally! I must carry the gene as my brother died from it 2 years prior of my dx --- he was blind, a bachelor, smoked, didn't eat right and led a stressful life - by the time it was discovered it was too late for him. My doc believed in taking baby steps with the recovery and I was 3 days in intensive care and a total of 21 days in hospital and 6 weeks later had the historectomy - I had a PET scan a couple of weeks ago because my tumor marker was slightly up - had to wait almost 2 weeks for the results: finally "completely negativ" what a relief! good for another 6 months! I say! - good luck and god bless..........
by omabina on Sat Aug 20, 2011 07:14 AM
please don't hesitate to ask me any questions - I am more than willing to share my cancer journey! since i had 2 completely different cancers we got a second oppinion about the treatment afterwards and went to get that at the Seattle cancer center, formerly known as Fred Hutchinsons - my pc tumor was also very contained.... I got gemzar - xeloda - and Megace - Megace for appetite enhancer (gaining weight) and also to keep the endometriosis at bay - Sabine
by squand on Sat Aug 20, 2011 02:33 PM
I had my whipple july9th 2010,worst thing for me was gaining weight,I lost a total of 65 lbs,was down to 120 from 185,finally gained some weight back to 150 now but it took ovr a year.Listen to your doctor and ask these people all the questions you want, they are very knowledgable....And remmmember it takes time to recover so don't hurry....
Never smoking will help tremendously during recovery..
by rich5 on Sat Aug 20, 2011 05:21 PM
I had my Whipple in 2009 at the Mayo Clinic in Jacksonville Fla.
it was not maligment but a growth on Bile Duct was causing
an enzime problem, DR Asbun tryed to operate with a Robot
but in the end had to revert convetional opening,It has been
2 years now. I was weighed at 200 lb. now am at a steady 175. Good luck to all who are having this procedure.
by TimothyG on Sat Aug 20, 2011 06:27 PM
I had the Whipple January 5 of this year at UCLA Medical Center. One week in the hospital, four weeks recovery before returning to work. Four months of Chemotherapy which started March 1. CT and MRI are now clear and I have the Summer free from treatment. Next scan will be in October. It is major surgery and her newly configured digestive system will require some getting used to, but I am sure she will do just fine. She is fortunate to be able to have surgery and to have a loving supportive family. God bless you both!
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