One patient with glioblastoma still alive nine years later
by pcn17 on Tue Aug 23, 2011 11:20 PM
Hello dear friends, it's been a while I've posted. Well, I made it to my 5 year check up and Cancer Free!!!
Had my PET done in May, which I said was not going to do, but since I had also had a motorcycle accident, that month went to get checked, trying to learn to drive, had hubby on the back (bad mistake) but tried anyway. I gunned it too hard, was turning left and husband was LEANING right, so there I go into the telephone pole and fence out in the country. Thanks to God after all above I ended up showing a shadow on the right lung, turns out to have been a bruse and it healed.
So I am clear on the cancer, broke my wrist, strained my shoulder, elbow, arm.
Still have all the problems as before, mucous, dry mouth, jaw hurting, ears hurting. All in all have gained 5 lbs since diagnosed. Neck disection hurts on occasion, tightness, so still on pain meds, muscle relaxers, still take pink magic, rince in baking soda, but doing much better. I've just accepted this is the new life and very grateful to be here!
Hope all are having a much more peaceful life these days and those who are new....God Bless, Faith, Hope and Love to you! Give the Lord time to work with you after all you have been through, be kind, nice, to yourself!
Thanks to all who have shared so much of their lives with us as well!
p.s. Dave, Pop-Pop, Steph, etc. thank you for all the information you have given me!!!! Love & Warm Hugz
by bvan1 on Tue Aug 23, 2011 11:40 PM
Hi pcn17, what wonderful news, can't wait until hubby reaches that 5 yr mark. Thank you for the hope bvan1
by DianeinCali on Wed Aug 24, 2011 02:12 AM
Cancer free after 5 years! That is great news! Congratulations and thanks for sharing it with us!
by ErthWlkr on Wed Aug 24, 2011 01:09 PM
Dang! And here I was thinking how I wanted to get back on a bike again....only been 35 years...
That 5 year window is a big one - and you made it. Good news to hear. I'm about to go through my 4th and looking for that 5th with great anticipation.
You've given me something to look forward to...but not the bike I think... :)
by mtkjohn1 on Thu Aug 25, 2011 01:46 AM
5 yrear is the big one
I am three and not sure what the 5 Yr thing is
Physically it is what it is but the Mental battle has gotten much better att he three yr mark
I dance most mornings when i get up with this 800 pound gorrila that is in the corner of my room and do not fight
(Have never Won One fight so WTF!!!)
be well and luagh often
just got back from HI and tried to take up surfing at 50!!
OUCH but nice to be inwater with my 14 yr old son , and he glad I was there good laughs
Calls me Shamu the great white surfer
by Julesalso on Sat Sep 03, 2011 08:17 AM
Huge congratulations to you. What a milestone to achieve and after so much that you have gone through. I dips my lid to you and wish you all the very best for many years to come.
by REDVETTE on Sun Sep 04, 2011 05:58 AM
THIS IS HUGE! So very happy to hear about your 5 year mark! Can't wait for my husband's. I have been on this forum for a long time - before as MEEMERZ - off a while and back on! The motorcyle thing - I totally get! We have had bikes for years but sold ours when my husband was diagnosed - just worried too much about the future! You and yours need to enjoy life ( and it sounds like you are ) - that is what we are doing! Hugs and prayers!!
by Oudave83 on Sun Sep 04, 2011 05:17 PM
HOMERUN PATIOLOOKS 17..dead center field 475 feet..what a shotttttttttttttttttttt........I AM SO PROUD AND THANKFUL FOR YOU...we love you and keep you in our prayers..especially for motorcycle safety lessons...LOL....one spouse lean to the left, another to the right...we all can metaphorically relate to that-haaaa
We still need you here patiolooks17...you are now a Hall of Famer after 5 years.......
gotta pull Slim Jim etc thru this!!!!!!!!!!!!!!!!!! keep Steve and Chris behaving and leading that exciting west coast lifestyle... Tony eating his Chicago hotdogs....Jeff correcting our stupid comments and being a source of invaluable info up in New York and vicinity-bailing out from Irene...............Steph mothering to each of us...Jewels with her Aussie humor........and those who fell fighting the good fight for each of us......we shall never forget........
by Oudave83 on Sun Sep 04, 2011 05:19 PM
and DOUBLE PPPPPPPPPPPPPPPPPPPPPP etc......how could we survived without the sage advise of Pop-Pop and Redvette etc we are forever indebted as your words were ingrained into our daily lives.....
by SKMalaysia on Mon Sep 05, 2011 11:46 AM
Thks for your sharing of 5 years .
Great ! It is my first target ... :) , I made it for 3 years in end June '11 .
So, about two years more, I will join the 5 years ... very soon , hahahahaha .
Anyway, I am 3 years living with it in my lung, no free cancer for me yet . But, did have good quality of life withj Lord's blessing and healing.
Just back to Chemo early last month and today have the 2nd cycle , hopefully this time will get the tumor shrink and join the NED soon .
Feel great !
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