One patient with glioblastoma still alive nine years later
by bootsma on Wed Aug 24, 2011 02:02 AM
My 47 year old husband was diagnosed May 2011 with colon cancer just months after his sister passed away from the same disease. He had a colonoscopy a year and a half before the diagnosis and it was clear.
He has had the tumor removed, has a bag and has just finished his 3rd round of chemo. We are very thankful he is managing quite well. He has quite a cough and shortness of breath b/c of the tumors in lungs.
All your stories are encouraging. Would like to hear more about people with the lung involvement. Does this necessarily make the prognosis worse than if it was just to the liver and lymph nodes?
Also, what are the important numbers to follow. Can someone explain them a little more?
Thank you so much
by joanne.r on Thu Aug 25, 2011 03:27 PM
Hi: The numbers for the liver are the most important from everything I have read and told from Doctors the lung portion is curable but the liver is the hardest to get the chemo to penetrate but in certain area's they can cut it out and the liver regenerates itself. My partners was down in his lower so it spread down but he had a lymph node by his heart too.
Talk to the doctor or I can give you an email for the doctor he saw in Germany and he could give you another opinion. They are more advanced than us. But I found it was always better to question everything especially before any changes are done. The doctor is probably holding off treatment to the lungs to see if they can get the other tumors under control first but it doesn't hurt to ask what the intend to do to help him with the cough and breathing problem.
My prayers are with you take care and keep asking. I dig some paper work out of my boxes and see what counts were high lighted in his reports.
by cabbage on Tue Aug 30, 2011 10:44 PM
I have syage 3a in 1 lymph node. I am getting oxaliplatin 5 fu and luekovorin. My #12 round was today. The numbers to follow are liver funtion tests (ALT and AST), abs neutrophils (same as granulocytes)should be 1,5 before treatment, Hgb (red blood cells) and WBC (white blood cells tend to drop and need monitored. I always got my lab results and watched them closely. Keep your chin up and focus on that you will beat this, Attitude is everything. I always keep the promis to myself that I will finish this chemo and close the cancer chapter in my life. (I still have to get ct scans every 3-4 months to keep a close check on this) I have spoken to several coloc cancer patients at my chemo and the cancer in the ones that was in the lung had good results with the chemo. Good luck and God bless,
by DSMEAL56 on Fri Sep 09, 2011 05:45 PM
I was diagnosed with stage 4 colon cancer in July 2001 at the age of 45. At that time it was in my liver also. I had surgery and 9 month of chemo. Six month later it came back in my lung a and I had surgery to remove a portion of my right lung. More chemo and then a good couple of years. Now it has returned in my liver and I have numerous tumors in my abdomen. I have been on chemo for the last three years and have been given every drug for colon cancer. In April I had a chemo embolization. That is where the chemo is injected directly into the blood vessels to liver tumors.
I just had a PET scan this morning and get the results Monday. I believe that the cancer has been growing as I think I can feel it in my abodmen.
When I was diagnosed I was given a time of of "one, two, maybe even three years" and I celebrated 10 years of life after cancer this past July when I was given three at the most!! I've tried to remain positive, I still work full time and continue to make plans for the future. I have placed myself in God's hands and have found a place of peace in all of this and no longer worry about doctor reports.
The single most inspiring thing I have ever been told was from my 29 year old son. He said "You are the strongest person I have ever met and you inspire me and everyone you meet." I never set out to be an inspiration to anyone, I just wanted to spare my family as much pain as possible, but hey have surrounded me with love and compassion and they make me proud everyday.
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