How to Understand Pet Scan Results

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How to Understand Pet Scan Results

by Dina_l on Wed Jul 26, 2006 12:00 AM

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My dad got his pet scan results handed to him today while getting his 1st treatment with no explanation. It is hard to understand. It says order:staging 19.01 Does anyone understand what that means? Also any information would be helpful.

Pet Results

by 55kathy55 on Thu Jul 27, 2006 12:00 AM

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The pet scan is the imagining test that shows where and how much cancer there is. It uses a glucose type contrast that attaches itself to the cancer and that lights up. Your dad should have3 seen the doctor at some timeduring the treatment, at which time he should have explained the results to him. He will also have another ct done 1/2 way through his treatment cycle. I had 6 cycles of R-CHOP. I just had my 6th one and am waiting until the 8th to hav my ct done then sometime after that I will have another PET scan. I am also waiting to see the Stem Cell Transplant specialist. It seems like I just began and now it is almost over. If you can call it over while waiting for the transplant. Hang in there, and write down and don't forget to ask questions. I guess most cancer doc's thinkwe know it all, so ask any and all questions you want answered. God Bless, Kathy :)

Pet Results

by 55kathy55 on Thu Jul 27, 2006 12:00 AM

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Sorry, the staging mentioned on your dad's scan tells what Stage his cancer is, and it goes from stage 1 to iv (1-4) Most Mantle cell Lymphomas are caught at stage iv. That means if it is above or below the diaphram and how many places it is. Mine was diagnosed at stage iv because I have it in my jaws, under the arm, in my spleen, some in the diguestive lining and in the groin, also a trace in the bone marrow. Hope this helps. Kathy :)

Thanks For The Info

by Dina_l on Fri Jul 28, 2006 12:00 AM

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Kathy, Thanks for sharing. this has been such a scary time for my family. We are still trying to figure out all of the information that was thrown at us. My dad had his first chemo this week, but didn't get to see the doctor. the nurse just handed him the pet scan results with no explanation. I am trying to talk my dad into going to Houston to M D Anderson, but he wanted to stay close to home. His results didn't have the stage on it, but from the extensive areas of nodes that it noted, I'm sure his is stage 4 also. How are you feeling now? I would appreciate any info or help that you would like to share. It helps talking with someone who is going through the same thing. I wish you luck and will put you in my prayers. Dina

Hey

by Aaron on Fri Jul 28, 2006 12:00 AM

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How are you? Just wanted to say keep the faith.

md Anderson

by Auburn on Fri Nov 10, 2006 12:00 AM

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My mom was just diagnosed swith Mantle Cell 2 weeks ago. She is now at MD Anderson being evaluated. If your father has not gone out there by now, I strongly recommend it. The Drs there will work with you local Drs on the treatment. My mother will be receiving her treatment at UAB but it will be supervised and evaluated by MD Anderson. Our whole family is in shock about this. My mom had no symptoms but a swollen gland in her neck. We are waiting to see if it is in her bone marrow and on the PET scan results. How can I help her through this?

RE: md Anderson

by 55kathy55 on Mon Apr 21, 2008 12:00 AM

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On 11/10/2006 Auburn wrote:

My mom was just diagnosed swith Mantle Cell 2 weeks ago. She is now at MD Anderson being evaluated. If your father has not gone out there by now, I strongly recommend it. The Drs there will work with you local Drs on the treatment. My mother will be receiving her treatment at UAB but it will be supervised and evaluated by MD Anderson. Our whole family is in shock about this. My mom had no symptoms but a swollen gland in her neck. We are waiting to see if it is in her bone marrow and on the PET scan results. How can I help her through this?

Auburn,

Looking through all the posts and had to ask how your mom is doing, and what treatment has she gone through? Did she have a Stem Cell Transplant.

If you are willing, can you update us on her experience?

Thanks and God Bless,

Kathy in Va. (My dx was in 1/06, had 6 R-CHOP, Stem Cell Transplant and now doing 4 maintenance treatments every 6 months. 18 months post transplant.

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