Life Expectancy With Astrocytoma/oligo Tumor

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Life Expectancy With Astrocytoma/oligo Tumor

by Berts_Godmother on Thu Jul 27, 2006 12:00 AM

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This is the question I really don't want to ask! Can anyone tell me what the life expectancy is for someone (healthy 23 year old)who has a grade II malignant astrocytoma/oligo tumor. He underwent surgery and they believe they removed about 50%. He hasn't started treatment yet.

Sharon h. Astrocytoma

by Debra_J_3 on Thu Jul 27, 2006 12:00 AM

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My step-son had an astrocytoma at age two. He's now 18. Because of his young age he had some developmental delays and some motor skills issues, but other than that he's perfectly healthy. Wish you all the best. Deb

Grade2 Astrocytoma

by Bay418 on Fri Jul 28, 2006 12:00 AM

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My son, age 24 was diagnosed with a Grade 2 malignant Astrocytoma in June 2005. He has gone through surgery, radiation and is on his 7th round of Temodar. With the exception of being off a few weeks when the tumor was discovered (found due to a seizure) and again after surgery, he has continue to work and has no deficits. He has not driven because he had another seizure a week before surgery, (November 2005) but this is because he failed to take a doze or 2 of the seizure medication. We are waiting to see if the State of Maryland will let him drive again, which to him is his biggest concern. Don't dwell on the "how long". Do any of us really know how long we have? I am told that good health and a young age to start with are surely on your side. Love, support, faith and a good sense of humor gets us through this. This message board is also a great help and inspiration. Best wishes. Barb, - Paul's mom

Grade ii Astrocytoma

by Berts_Godmother on Mon Jul 31, 2006 12:00 AM

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Thank you so much for your reply. I gather that your son was dx. in June and had surgery in Nov. 2005. My Godson was operated on less than a week after dx. He had his surgery at a local Miami hospital and his surgeons can't seem to agree on how much of the tumor was removed and whether or not it had tenticles. I'm concerned that he should have waited until he could have been seen at a cancer center. Can I ask where you son had his surgery and subsequent treatment. I heard several different opinions on using radiation on a grade II tumor. Any thoughts? Has your son adhere to any specific nutritional program during his radiation and chemo. What have been his side effects to the temodar? I'm sorry to ask so many questions but your son's situation is so close to my Godsons. Thank you and good luck. Sharon

Grade2 Astrocytoma

by Bay418 on Mon Jul 31, 2006 12:00 AM

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After the initial seizure, Paul was taken to a local hospital who did a CT scan and found the brain mass. That hospital transported him to Washington Hospital Center in Washington DC. He had several MRI's done there. The neurosurgeon wanted to do a PET scan but had to release him. Insurance would pay for the PET Scan on an out- patient basis only. Pet Scan was done in July and the doctor said it was a low grade glioma. He felt it was very slow growing and probably a Grade 1, he referred us to Dr. Howard Fine at NIH in Bethesda for a second opinion and to discuss treatment options. Dr. Fine agreed that it was a low grade glioma but felt that surgery was the best option. Long story short, we went back to Washington Hospital Center and the neurosurgeon removed 95% of his 6 cm frontal lobe tumor. Pathology indicated a Grade 2 Diffuse Astrocytoma, with small parts of the tumor showing signs of possible Grade 3 Anaplastic Astrocytoma. We were then sent to a radiation oncologist and medical oncologist. Fast foward, Paul went through 6 weeks of radiation, which was targeted at the tumor bed and very close surrounding tissue only. He started the Temodar, about a week after radiation - 5 days on 23 days off. He just finished his 7th round. He did well with the radiation. Lost some hair around the area that was targeted. He was tolerating the chemo fine until about his 4th round. Now he is ill - throwing up, stomach trouble for a day or so afterwards. He said by the time he feels the best, it's almost time to start the chemo again. He is not taking any supplements at this time. Sorry if I have rambled, but I think he is doing really well. He sees his oncologist every 3 months now and has an MRI done every 3 months. He will most likely be on the seizure medication for life. He was on steriods for probably the first 6 months of this ordeal and has been slowly taken off. All I can say is take a deep breath, be positive and know that this is a long journey of doctors and treatments. Hope I have been of help. Feel free to stay in touch. God bless to you, your Godson and his Mom. Barb

Re: Life Expectancy on Astro/oligo

by Lisamm on Tue Aug 29, 2006 12:00 AM

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I had a grade IV astrocytoma in 1997 and was 20 at the time. I had surgery, radiation, and chemo and am doing fine now with very minor cognitive deficits. I would not put a lot of stock in statistics, people outlive them all of the time and everyone is different. I would spend time getting lots of second opinions and learning how to be a strong self-advocate. I consulted five different doctors at the time of diagnosis and got five different opinions and ultimately decided on the medical team who seemed the most positive and had been spoken highly of by other surviviors.
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