B cell lymphoma and supplements

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RE: B cell lymphoma and supplements

by Lrm123 on Thu Dec 01, 2011 09:18 PM

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Hey Rheinbach,

I have been diagnosed and treated. I also have another illness that compounds matters.  I have not taken supplements. Howver, I have heard many good things about them. I have taken ensure for weight gain.

You are going to get a lot of info. This is a lot to absorb. Everyone has wonderful feeback. Remember each treatment is particular to each person.

Its helpful to read up on everything. What was helpful to me was a good support system. People I could speak to and trust. Meditation is helpful. If you play an instrument this also helps. If not, listening to music is always good. Writing and jouneling are good ways to deal with this. Bring out your creative channels.

I know it is scary at first but you will get used to it and any side effects. I was able to work at a high demand job and fast pace. This was good it kept my mind off of the illness. I had to do both inpatient and outpatient treatment. When I was not at work I brought my lap top to treatment.

You will meet many wonderful people who have amazing journeys. Yes, this is scary but it opens up a brand new horizon and perpective on life.

I wish you the best

Richard

 

RE: B cell lymphoma and supplements

by Abbala on Sat Dec 24, 2011 09:12 PM

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Hi Scrubba,

Curcumin (tumeric) and Japanese Green Tea (Sencha) are the best supplements you can take for Lymphoma. I wouldn't say this unless I myself have tried it and believe me, it works. Just as soon as I learned I had the disease I started supplementing with natural therapies like the above. I take them daily. So far, I have not needed chemo, just radiation to eliminate a 9cm tumor in my groin.That was last year around this time and today I feel fine. Go ahead and do it, it's food for goodness sake. Doctors have no idea about natural therapies. It's our life and we have a right to help ourselves.

RE: B cell lymphoma and supplements

by scrubba on Sun Dec 25, 2011 12:01 PM

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Thank you for your email and glad that you are doing well, and may you continue to be healthy. There is so much conflicting information out there and for a newly diagnosed patient, it can get overwhelming. In my case, I needed to start chemotherapy as the cancer had manifested in my throat and my airway was at risk of being closed off. Natural therapies would not have worked fast enough. Although, chemotherapy is toxic and its side effects are rough, my response has been dramatically positive. Everyone's case is different, and so are our paths to healing.  I continue to take a variety of supplements, green tea extract being one of them, and it is my hope that they are helping.

Thanks for your input, and maybe someday the pharmaceutical/medical industry will work together with alternative methods to come up with therapies that will help the patient in a gentler way.

RE: B cell lymphoma and supplements

by Lrm123 on Sun Dec 25, 2011 02:03 PM

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On Dec 25, 2011 12:01 PM scrubba wrote:

Thank you for your email and glad that you are doing well, and may you continue to be healthy. There is so much conflicting information out there and for a newly diagnosed patient, it can get overwhelming. In my case, I needed to start chemotherapy as the cancer had manifested in my throat and my airway was at risk of being closed off. Natural therapies would not have worked fast enough. Although, chemotherapy is toxic and its side effects are rough, my response has been dramatically positive. Everyone's case is different, and so are our paths to healing.  I continue to take a variety of supplements, green tea extract being one of them, and it is my hope that they are helping.

Thanks for your input, and maybe someday the pharmaceutical/medical industry will work together with alternative methods to come up with therapies that will help the patient in a gentler way.

I always said that if I had cancer I would never do treatment. But when I got dx. with B-CELL Lymphoma I was in such bad shape and my thoat was closed as well. I had no other option and was hospitaliezed within 24 hours. I realize the side effects of chemo ( 4 different regimans)  and after that stem cell but I really had no choice in the matter or I would not be writing this today.

I truthfully would rather hae not gone that road but as I indicated there was no other option.

As for suppliments I drink green tea every day at least once if not twice.

No 2 individuals are the same. Some might respond very well to suppliments while others may need contemporary treatment. Sometimes you have to go with your gut. At least you are being proactive. Remeber we are still in the pioneer stage.

I wish you the best.

Richard

RE: B cell lymphoma and supplements

by healing1 on Mon Dec 26, 2011 03:00 PM

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B cell is a very aggressive form of cancer. I'm sorry to hear about chemo, but glad you'll be around to tell us all about your healing journey. Different paths, yes, different kinds of cancer at differnet stages. Sending healing thoughts.

Casey

RE: B cell lymphoma and supplements

by beecloud on Tue Jan 03, 2012 11:22 PM

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healing1 and Abbala, I am interested in learning more about your experience with using supplements. I was diagnosed with stage II DLBCL a month ago, and start chemo tomorrow. Intuitively, I was planning on doing something like what healing1 did and take breaks from the supplements on chemo days. Is there a specific reason you chose 4 days for your break?

My "prescription" so far is green tea extract, cordyceps, and turmeric and I was planning on adding inositol hexaphosphate (IP-6), as well as milk thistle, corn silk, and nettle seed for liver and kidney protection. What dosages were you taking with your supplements?

RE: B cell lymphoma and supplements

by healing1 on Wed Jan 04, 2012 03:53 AM

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The reason I chose 4 days, was because I wanted the chemo to get a chance to circulate and do it's thing and not have anything interfere with it. At that point I felt it was time to rebuild and protect. I am a colon hydrotherapist, so I did colonics on myself to assist on getting toxins out and keep from having toxins recycle. I also feel like double shots of wheatgrass helped clean the blood as well as liquid chlorophyll in my water. I didn't try to fully detox but just support and nurture my body that had just had an all out assault on it.I'm not familar with DLBCL abbreviations. Dosage? Like I said wasn't trying to majorly detox, just support the body, so no massive doses. I also liked Belle Ruth Naperstacks CD for chemo. And Doreen Blumenfeld's CD for relaxation. May the force be with you. Have fun with it if you can. My friend and I shopped thrift shops for special chemo wear and we always played scrabble and had lots of fun. Much Love, Healing1 ,aka Casey

RE: B cell lymphoma and supplements

by hunter2000 on Wed Jan 04, 2012 08:54 PM

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I have not taken one supplement since I was told I had B cell non hodgenkins lymphoma...also, I have not quit using sugar. I was told that the supplements would interfer with my therapy and to only take what I had been taking before I started my chemo. Also, when I asked about the sugar, my doctor told me this was not true. I asked because I had heard so much on the sugar feeding the cancer and she assured me that it was not true. This is what my doctor has told me and just letting you know. God Bless You.

RE: B cell lymphoma and supplements

by healing1 on Wed Jan 04, 2012 10:46 PM

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Well your doctor is unenlightened in this area. If you want directions to nutritional info to support my statement please let me know.

RE: B cell lymphoma and supplements

by Ladylacy on Wed Jan 04, 2012 11:13 PM

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When my husband was undergoing chemo and radiation for laryngeal cancer, he was told not to take any supplements because they could interfer with the chemo.  To say doctors are unenlightened in this area, if your opinion and yours alone.  Supplements can and do interfer with any medication you take regardless of what they are for.  Even the druggist will tell you this. 

Please remember each and every person is different in how they react to any treatment for any condition and what works for one, may not work for another.   And each and every person has an opinion, to which they are entitled, on how medication works on them and to say another's medication or form of treatment is wrong, just isn't the way to go about it.

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