One patient with glioblastoma still alive nine years later
by mollierose on Sat Oct 08, 2011 05:45 AM
So my mom is doing really great since her whipple on Tuesday. (even the nurses say they can't believe how well she looks and feels) But tonight the results came back from some of the tissue and lymph nodes that they tested and out of the 15 nodes 3 of them were cancer. They also said the tumor was at stage 2b.
I'm so new to all of this and just wanted to know if chemo and radiation really can get rid of it. Is 2B cancer something we can kick? I'm praying so much that it will!
thanks to all who reply..i just want some information on it and everyone's experiences.
by kscaman on Sun Oct 09, 2011 01:12 AM
I was stage 3 neuroendcrine tumor which had spread to one of four lymph nodes. I have been clean on MRI's for 4 years. Do you know what type of pancreatic tumor it was? Mine is found in about 1% of all pancreatic cancers I was told. A rare form, less aggressive than the more common form.
by mollierose on Sun Oct 09, 2011 05:16 AM
i don't know what type of tumor it was, I will find out. ( I will be with my mom all week at the hospital)
I guess that 2 out of 15 lymph nodes were cancer. Is that not so bad?
So happy to hear your news. So good for you!
Did you do chemo or radiation or both? If so, how long?
by mollierose on Tue Oct 11, 2011 06:58 AM
The cancer is adenocarcinoma.
by swdesertlover on Tue Oct 11, 2011 07:50 PM
My husband was diagnosed with stage 2b adenocarcinoma in September 2009 and had a whipple 4 days later. He recovered very quickly and gained back all of his weight (while taking enzymes of course). His labs came back that 6 out of 9 lymph nodes removed tested positive.
Tommy did very well on Gemzar and appeared to be cancer free for about 15 months. It then showed up in both of his lungs the first of this year. He's now on the same treatments as Rick (Folfirinox) and his last scan showed the tumors have shrunk by 50%. He feels and looks good.
The important thing is to enjoy every day and continue the fight. Remember that everyone is different and there are members on this site that are doing great after many years. My prayers are with your entire family.
by mollierose on Wed Oct 12, 2011 04:49 AM
thanks for the reply Cindy. I appreciate any info.
Glad to hear about your husband, i will be praying that he gets through this bout with cancer.
btw.what is gemzar? Is it CHemo? I know that I will get used to all this very soon. That is the one thing my mom is really nervous about. She's so scared of Chemo. She thinks she'll get so sick etc. All she's heard is horror stories. Is it all that bad? I'd like to encourage her tomorow morning.
by swdesertlover on Wed Oct 12, 2011 05:40 AM
Gemzar is the first chemo he was on. He did six months of that with five (or six) weeks of radiation in the middle. The Gemzar is very well tolerated by many people. Tommy never had any sickness (never took any of the prescription medicine he had for nausea), never lost his hair, literally no side effects except some fatigue when they combined the radiation with it. I hope her experience is like his but he continued his life as usual.
Good luck and my prayers are with her.
by The_Wife on Thu Oct 13, 2011 06:33 PM
My husband was stage 2b adenocarcinoma. His doctor said the biology of his tumor was extremely aggressive- I think how aggressive depends on how well or how poorly differentiated the cells are. I have a general idea of what that means and it's something you might want to ask your mom's doctor about. If my husband were diagnosed now, I might push for the Folfirinox chemo. Some people on this board are living far longer on that than my husband did on Gemzar. I think the side effects are worse but, hey, if it helps you live, you have to try. Best of luck to all of you.
by mollierose on Sat Oct 15, 2011 05:01 AM
I don't know the biology of her tumor. I will ask the oncologist about Folfrinox..she starts chemo in about 5 weeks. I pray it all goes well. Besides having no appetite she's doing extremely well from the whipple surgery!
by Tamatha on Mon Oct 17, 2011 02:46 AM
Hello Mollie and Welcome, I am sorry that you are having to go through this with your mom. I am going through chemo now and it isn't really bad. I am on Gemzar and Cisplatin with the Oral Medication Tarceva. I am doing very well on this treatment. I have not lost my hair, I am not sick or nausea. I have had slightly some nausea, but nothing that was of any big deal. I had my surgery last October and they were able to get it all. My margins were clean and it was not in my lymph nodes. After 8 months I went and had a CT scan and there showed a possible recurrence. Sure enough it was.... I about died and thought I can't do this again. Well..... I did and I a doing well. It is hard to believe that I am a cancer patient and that this cancer is one of the big ones. I to have an adenocarsoma tumor. Good luck to you and God bless you and your mom.
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