Survival Rate??

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Survival Rate??

by Momwriter on Mon Jul 31, 2006 12:00 AM

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My mother was just diagnosed with stage 1 endometrial cancer and will be having a radical hysterectomy soon. I have been looking up info on survival rate, and all I run across is the 5 year survival rate, which is quite good. But what I am really looking for is some answers in real world terms. Does the 5 year rate mean she is likely to only live 5 years after her surgery? What are her chances of living out a full, natural life? She is only 51 and in very good health, with no other medical problems. I know no one can tell me how long she will live or if this caner will kill her, but there must be statistics out there on how long these cancer patients typically live. Please help as I am worried to death!

Survival Rate

by Normajoyce on Fri Oct 20, 2006 12:00 AM

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Hello Kyle I think your mother is probably going to be just fine. How did she fare after surgery? I'm 63 AND was diagnoised in Sept. 2001 with Stage 3 endomentrial cancer. I had total historectmy, radiation followed by chemo, (taxol, ciscplatin & doxirobison.]in the past year I have had 3 recurrances in lymph nodes in my neck and most recently para-aortic. After the first reoccurance in lymoh nodes in my neck a year ago this month, my doctor gave me about 6 months But here I am, still fighting. I am now a patient at Duke Cancer care and their approach is to treat this like any other chronic disease and that is evertime it pops up somewhere to start me on a form of treatment, so fAr just radation, saving chemo for when it gets worse. I'm a big supporter of clincal trials because they follow you the rest of your life and in my case anyway have been very thorough. So far this cancer has not spread to any of my vital organs but I know that will happen eventually. Your mom should try to lead a very healthy lifestyle as regards diet and exercise. I think that has definitely prolonged my life. My thoughts are with you. Norma J

RE: Survival Rate??

by Badwishes on Sat Dec 16, 2006 12:00 AM

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This is what I am wondering too.  What are my chances of surviviing this??

I was diagnosed a week ago so do not know much yet 

RE: Survival Rate??

by Trishpm on Mon Jan 08, 2007 12:00 AM

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On 7/31/2006 Momwriter wrote:

My mother was just diagnosed with stage 1 endometrial cancer and will be having a radical hysterectomy soon. I have been looking up info on survival rate, and all I run across is the 5 year survival rate, which is quite good. But what I am really looking for is some answers in real world terms. Does the 5 year rate mean she is likely to only live 5 years after her surgery? What are her chances of living out a full, natural life? She is only 51 and in very good health, with no other medical problems. I know no one can tell me how long she will live or if this caner will kill her, but there must be statistics out there on how long these cancer patients typically live. Please help as I am worried to death!

A five year survival rate usually shows statistics on patients followed for five years after their diagnoses..  It has no predictions whatsoever past the five years.  If her cancer is treated successfully (and since it is at an early stage, the odds are overwhelming that it will be treated successfully), it will not shorten her life expectancy. 

 If your mother has not yet had her surgery, the stage of her cancer cannot be known for sure.  Endometrial cancer is a surgical staging; that is, until the uterus is removed examined by the pathologist her stage cannot be known because the spread within the uterus is unknown.  I hope that a gynecological oncologist is doing her surgery (find one at http://www.wcn.org/interior.cfm?diseaseid=12&featureid=4 ).  It would be better to wait to have a gyn-onc do the surgery than have a regular gyn surgeon.  The surgery should include sampling of para-aortic lymph nodes.  See http://www.cancer.gov/cancerinfo/pdq/treatment/endometrial/p more information about endometrial cancer.

I am a nine year survivor of endometrial cancer, stage IIB. 

RE: Survival Rate??

by Karenanne_1 on Tue Jan 16, 2007 12:00 AM

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It was discovered that I had blood in my stool in July 2005.  After having a colonoscopy, the surgeon said "surgery".  On October 6, 2005 most of my intestines were removed, a colostomy was put in place - I was FULL of Endometrial Stromal Sarcoma!  The odd thing about it is that I had a complete hysterectomy in January 1995!

I was taken off my hormone replacement medication and put on tamoxifen.  When this didn't stop the spread (after a CT in July 2006), I was changed to arimidex.  In mid-February I will have another CT Scan to see it that has stopped it.

 This is VERY frustrating to me - knowing that this "monster" is growning inside of me and I have not control of it!

I have read that it will spread to other organs and bones.  In July, it was found on my lung.  What next!  What is my survival rate?

 This is very disturbing to me - I have "bad" days every so often and just cry.  I know I am still here - but for how long?  What is my future health going to look like?

Thank you for listening.

 Karen (age 56)

(in Michigan)

RE: Survival Rate

by Quakyone on Wed Apr 11, 2007 12:00 AM

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On 10/20/2006 Normajoyce wrote:

Hello Kyle I think your mother is probably going to be just fine. How did she fare after surgery? I'm 63 AND was diagnoised in Sept. 2001 with Stage 3 endomentrial cancer. I had total historectmy, radiation followed by chemo, (taxol, ciscplatin & doxirobison.]in the past year I have had 3 recurrances in lymph nodes in my neck and most recently para-aortic. After the first reoccurance in lymoh nodes in my neck a year ago this month, my doctor gave me about 6 months But here I am, still fighting. I am now a patient at Duke Cancer care and their approach is to treat this like any other chronic disease and that is evertime it pops up somewhere to start me on a form of treatment, so fAr just radation, saving chemo for when it gets worse. I'm a big supporter of clincal trials because they follow you the rest of your life and in my case anyway have been very thorough. So far this cancer has not spread to any of my vital organs but I know that will happen eventually. Your mom should try to lead a very healthy lifestyle as regards diet and exercise. I think that has definitely prolonged my life. My thoughts are with you. Norma J

This is reassuring.I am 40. My MOM is 66 & going in for oncology results after being diagnosed w/ same issues.How can i find a clinical study? I need my Mom w/ me as long as possible.I am a 6+ yr. recovering alcholic-addict.I lost my Dad to alcoholism & now This.I don't know how but ,I've got to be strong enough to be there for my Mother,who never smoked ,Drank Alcohol,or any other bad habits.I wish the best for all..

RE: Survival Rate??

by Quakyone on Wed Apr 11, 2007 12:00 AM

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On 1/8/2007 Trishpm wrote:

 

On 7/31/2006 Momwriter wrote:

My mother was just diagnosed with stage 1 endometrial cancer and will be having a radical hysterectomy soon. I have been looking up info on survival rate, and all I run across is the 5 year survival rate, which is quite good. But what I am really looking for is some answers in real world terms. Does the 5 year rate mean she is likely to only live 5 years after her surgery? What are her chances of living out a full, natural life? She is only 51 and in very good health, with no other medical problems. I know no one can tell me how long she will live or if this caner will kill her, but there must be statistics out there on how long these cancer patients typically live. Please help as I am worried to death!

A five year survival rate usually shows statistics on patients followed for five years after their diagnoses..  It has no predictions whatsoever past the five years.  If her cancer is treated successfully (and since it is at an early stage, the odds are overwhelming that it will be treated successfully), it will not shorten her life expectancy. 

 If your mother has not yet had her surgery, the stage of her cancer cannot be known for sure.  Endometrial cancer is a surgical staging; that is, until the uterus is removed examined by the pathologist her stage cannot be known because the spread within the uterus is unknown.  I hope that a gynecological oncologist is doing her surgery (find one at http://www.wcn.org/interior.cfm?diseaseid=12&featureid=4 ).  It would be better to wait to have a gyn-onc do the surgery than have a regular gyn surgeon.  The surgery should include sampling of para-aortic lymph nodes.  See http://www.cancer.gov/cancerinfo/pdq/treatment/endometrial/p more information about endometrial cancer.

I am a nine year survivor of endometrial cancer, stage IIB. 

My MOM's n the Hysterectomy stage of same situation,I'm scared senseless,but you have given me a lil' relief ,somewhat Thank You & God Bless.Rod W. --- Message edited by CancerCompass staff: for personal protection, email address removed.  Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

 

RE: Survival Rate??

by momandpartner on Sun Sep 09, 2007 12:00 AM

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I need help or words of encouragement from someone who knows is living, etc with this...

My 36 y.o. partner was diagnosed with endometrial cancer stage 1agrade3clear cell poorly differentiated cancer of the uterus with a full radical hysterectomy on June 12. we were just told on Tuesday 9.4.07 that her cancer had returned and there is activity visible via PET scan at the vaginal cuff and along the surgerical incision site. Her surgeon says its a very bad sign when I asked him if we could beat this. Her radiologist said they were cautiously optimistic and that they were approaching this aggressively and were calling the treatments "curative" meaning they thought they would be able to get ahead of it. She's only 36. I'm only 35. We've been together for over 15 years, she's my very best friend, my very best everything and we have a 10 y.o and an 8y.o. we have attended healing ceremonies, prayer services. They started radiation and this Thursday will begin chemo...

I am terrified of being left alone. She has always been my rock. Can someone with this survive to go on and live a long and happy healthy life? Please someone help us. Are there trials to get her into? She's taking megace and doing the carrot juice diet also...

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