It was discovered that I had blood in my stool in July 2005. After having a colonoscopy, the surgeon said "surgery". On October 6, 2005 most of my intestines were removed, a colostomy was put in place - I was FULL of Endometrial Stromal Sarcoma! The odd thing about it is that I had a complete hysterectomy in January 1995!
I was taken off my hormone replacement medication and put on tamoxifen. When this didn't stop the spread (after a CT in July 2006), I was changed to arimidex. In mid-February I will have another CT Scan to see it that has stopped it.
This is VERY frustrating to me - knowing that this "monster" is growning inside of me and I have not control of it!
I have read that it will spread to other organs and bones. In July, it was found on my lung. What next! What is my survival rate?
This is very disturbing to me - I have "bad" days every so often and just cry. I know I am still here - but for how long? What is my future health going to look like?
Thank you for listening.
Karen (age 56)
(in Michigan)