GBM - latest treatment available ?

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GBM - latest treatment available ?

by Amol07 on Thu Oct 20, 2011 09:32 AM

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HI, My mother has been diagnosed with GBM grade 4, on 6th of october 2011. She was operated and the tumor was removed on 07th of october 2011, she is recovering now and we are searching for the best available treatment for GBM. Could anyone please advise us on line of treatment available world wide and further activities. My mother is 61 now.

Thanks a lot for sharing...

RE: GBM - latest treatment available ?

by ColleenDyman on Thu Oct 20, 2011 10:19 AM

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My father was diagnosed with exactly the same last year. They said there was nothing they could do for him. I hope that, within a year, this has changed and that you will find successful treatment. Regards.

RE: GBM - latest treatment available ?

by John_Bham_uk on Thu Oct 20, 2011 10:50 AM

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ok thanks for your message to us all,for anyone to say that there is little hope is not much of a doctor.your right there are new meds coming on line all the time i was given 6 mths over 5 yrs ago i too have a gbm the only treatment ive had is chemo and radiotherapy although i eat and drink as healthy life i dont do without a few beers or a good time all that has to carry on.i would say just listen to your docs and hospitals dont go down the road of trying to take all these money grabbing suppliments thatdont do anything best wishes john

RE: GBM - latest treatment available ?

by Amol07 on Thu Oct 20, 2011 10:52 AM

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Thanks a lot John, its really encouraging to hear this...

RE: GBM - latest treatment available ?

by aunismom on Sun Oct 23, 2011 05:41 AM

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My biggest regret is that we did not fight for my mom and take her some place that knew more about GBM and the treatment.  Although she was treated at a cancer center they did not have a neurooncologist and her doctor's specialty was breast cancer.  Please look into Duke, MD Anderson, etc.  I feel guilt that we did not do more research. 

RE: GBM - latest treatment available ?

by Grandmomof7 on Sun Oct 23, 2011 11:33 AM

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On Oct 23, 2011 5:41 AM aunismom wrote:

My biggest regret is that we did not fight for my mom and take her some place that knew more about GBM and the treatment.  Although she was treated at a cancer center they did not have a neurooncologist and her doctor's specialty was breast cancer.  Please look into Duke, MD Anderson, etc.  I feel guilt that we did not do more research. 

We've researched from the beginning of my husband's journey  and we still are.

We've contacted everyone around the country to help him, after our Med Oncologist told us there was nothing more to offer.

It's a long journey and we're all in it together.

RE: GBM - latest treatment available ?

by galluzzotiny on Sun Oct 23, 2011 02:43 PM

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i feel your pain, my mom was dx on july 2011 and had chemo and radiation and know we are waiting for another mri on nove 1 and then we will tasske it from there. its not easy watching them fail and get so weak and neurologically impaired, my mom is being weaned off the decadron and her gait is so weak , i do not know , what to do. we are fighting all the way , but let me know if you find something for this beast of a dx, we can only hope and pray.

my mom isd 67 years 0ld

keep in touch eida

RE: GBM - latest treatment available ?

by Grandmomof7 on Sun Oct 23, 2011 06:21 PM

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On Oct 23, 2011 2:43 PM galluzzotiny wrote:

i feel your pain, my mom was dx on july 2011 and had chemo and radiation and know we are waiting for another mri on nove 1 and then we will tasske it from there. its not easy watching them fail and get so weak and neurologically impaired, my mom is being weaned off the decadron and her gait is so weak , i do not know , what to do. we are fighting all the way , but let me know if you find something for this beast of a dx, we can only hope and pray.

my mom isd 67 years 0ld

keep in touch eida

They weaned my husband off decadron several times, but he's been on a very low dose for awhile now.

He continues to grow weaker, feels bad when he cannot help at our place any longer. We have 3.6 acres to take care of. This has been our home for 19 years now. He'd wanted to sell it when he got sick and get something easier for me to care for, but the kids are agreed this is home and to stay here. They have to help me alot though.

We continue the fight daily, praying for a miracle. Not sure what I'd do if I lost him, we've been married 40+ years. He's 59 yrs. had planned on doing some traveling and golfing when he retired, but that did not happen. he was diagnosed 2 months before his planned retirement.

Margee'

RE: GBM - latest treatment available ?

by Cristiana on Sun Oct 23, 2011 07:00 PM

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Look for Parp Inhibitor Trial, in the best centers research Hospitals My brother is taking it with no side effects and great results All the best Cris

RE: GBM - latest treatment available ?

by GBMhubby on Sun Oct 23, 2011 11:29 PM

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In response to the question about what is the treatment for newly diagnosed GBM, the best proven therapy remains that of the Temodar (temozolomide) protocol (Stupp, circa 2002) as described at the link below.  When that treatment fails (recurrence), the common practice is to go into a trial or to Avastin (bevacizumab).  Avastin provides what is considered a transient benefit to about 40% of users.  Research continues, with an average of two new medical journal publications a day on the subject of glioblastoma.

http://www.brainlife.org/reprint/2007/mason_wp070700.pdf

http://www.dovepress.com/getfile.php?fileID=7027 

http://www.brainlife.org/reprint/2010/Khasraw_M100105.pdf

 

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