GBM - latest treatment available ?

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RE: GBM - latest treatment available ?

by galluzzotiny on Tue Nov 08, 2011 02:07 PM

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what does the baking soda and water do????????????. for gbm ,

 

thanks eida

RE: GBM - latest treatment available ?

by Cristiana on Wed Nov 09, 2011 05:05 AM

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And also the quantities please !!! Thanks Cris

RE: GBM - latest treatment available ?

by johnlane45 on Thu Nov 10, 2011 02:16 AM

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I came across CancerCompass while doing some research on cancer and was really emotionally moved reading the messages of so many people fighting this terrible disease. I hope everyone can take a chance and review the Northwest Biotherapeutics dendritic cell vaccine that is currently being administered in clinical trials in US to extend the life of GBM patients with no toxicity of radiation and chemotherapy after the tumor has been removed. The results are so impressive it makes you wonder why it takes years for this product to pass clinical trials and be used today to save lives. Here is their link:

http://www.nwbio.com

My prayers are with you and your loved ones

John

RE: GBM - latest treatment available ?

by GBMhubby on Thu Nov 10, 2011 03:56 AM

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Careful about extrapolating the results of currently reported vaccine trials.  See:

 "Cancer Vaccines in Glioma: How to Balance the Challenges of Small Trials, Efficiency, and Potential Adverse Events"

http://jco.ascopubs.org/content/28/31/4670.full.pdf+html

Also, the criteria for selection as a trial participant may innately select those who statistically will have a longer survival time, its called selection bias and is nearly always a problem.  Fortunately, there is underway appropriately designed trials.  It would take at least 2 years of following the trial patients to see if the tumor will evolve mutations to which the vaccine is not directed, thus escaping the immunization therapy.

RE: GBM - latest treatment available ?

by johnlane45 on Fri Nov 11, 2011 11:48 AM

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Yes that is true about some clinical trials but also read the details in the 8+years of Northwest Bio's clinical trials for GBM and results are very impressive. Check out Northwest's site and also Miles for Hope with very good information:

http://www.nwbio.com

http://www.milesforhope.org/ 

They have some very detailed information on this site. I hope this information helps anyone looking for options and information.

John

RE: GBM - latest treatment available ?

by sanjeev1974 on Thu Dec 08, 2011 06:25 AM

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there are a number of treatments available.radiat ion,temodar,homeopathy,I suggest a cocktail treatment

RE: GBM - latest treatment available ?

by ladybugz on Sat Dec 10, 2011 08:41 PM

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The fact that your mother was able to have resection is a big plus. How much tumor was actually removed?

The standard treatment is about 30 days of radiation followed by a monthly schedule of temodar (pills)  until the tumor shrinks or grows. The schedule varies slightly but is usually something like 21 days of treatment and 7 off. Depending how your mother responds to the treatment, and the attitude of her doctor, will determine what the next steps will be. Read all you can and understand as best you can how this tumor lives and grows so that you can help make the best treatment decisions for your mom.

My thoughts and prayers are with you, your mother and family. Enjoy every minute you can with your mom. Hope and hugs to you.

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