My husband was diagnosed with ALL at 35 (see previous posts under ALL) and I have not posted in a long time.
He went through ALL treatment for 2 years and finished in Nov 05. Ever since his treatment was over, his white's have been slightly elevated. The Dr. wanted to wait for a few months to see if they came down..she thought it could be an accumlative effect from the prednison etc.
Last week she decided to do some extensive blood work...the results came back with the marker of CML (aka the Philidelphia chromosome). He has had CML the ENTIRE time and we had no idea. God only knows how this went undetected for 3 years of biopsies etc.
The ALL was actually a secondary off shoot of the CML know as a 'blast'. So, here we go again. We are scheduling consults with Dr's at MD Anderson in Texas as well as Fred Hutchinson in Seattle. He was just put on Gleevec, so we will wait to see how that works. From my research, the only true cure is a BMT...any feedback from anyone would be greatly appreciated. We are terrified, but in war-business mode this time.
Beth