One patient with glioblastoma still alive nine years later
by mollierose on Fri Nov 04, 2011 04:38 AM
so my mom who had the whipple 4 weeks ago. she had to go in last week for a drain to be put in cuz there was a leakage which was collecting fluid and created a pool. She has now had it in for about a week .
I'm just wanting some more info. on this. Has anyone had a leak after a whipple and come through it? I know she's feeling better but sometimes it makes her nervous and myself when you read all the problems with a leak on the internet.
Any info will help!! Thanks.
by Whippleschmiple on Sat Nov 05, 2011 04:45 AM
I had a chyle leak (not uncommon I don't think) not a pancreatic leak which required a jackson-pratt (JP) drain, sqeeze bulb drain, I left hospital post pylorus preserving whipple with it and over a few weeks problem cleared up on its own with a low fat diet, but not sure it is the same type of leak. I am wondering if it was 2-4 weeks +/- and he took it out while I was still draining some; but I left with it so if I never had it initially it may have been needed longer. I never had a problem after that and am fine nearing 16 mos. post whipple. good luck. If your mom's were a chyle leak mine was from an extensive lymphatic resection (not a bad thing). They tested the fluid in the drain when I was inpatient. Ask what type of leak.... the drain probably prevented fluid buildup in my abdomen. I left hospital with jtube on lower left and JP on lower right, I used to laughingly think I looked like a scifi character. Ask if they have reason to be concerned or not, I am sure many causes. J
by Whippleschmiple on Sat Nov 05, 2011 04:47 AM
Also, is she in top hands at a top center or not? If not and if not satisfied with answer, I would get another opinion. I felt very confident my doc had done over a hundred whipples and was trained at one of the best. Sometimes post whipple complications no big deal, not always, so again ask....
by mollierose on Sat Nov 05, 2011 05:59 AM
Oh she's at a great hospital and a great thorough dr who is from the mayo clinic.
Yes it is a pancreatic leak and she does have the jackson pratt draining tube.
any different info on that?
by claretea on Sun Nov 06, 2011 01:14 AM
my sister came home with a drain tube after her whipple for a leak, she had it in for about 5 weeks and it was still filling up for roughly 3-4 weeks, she started getting a pain from it and had to go back into hospital and get it removed, we were told it was because her body was healing and pushing the drain out? i am not sure of the name of the drain she had sorry but it came from the pancreas in a thick tube and attatched to a bag on her side, a nurse came out every other day to change the bag for her
by Whippleschmiple on Sun Nov 06, 2011 02:42 AM
I got the impression the JP drain was commonly used and needed. I liked having to drain it so it wasn't such a huge thing. I would temporarily disconnect my feeding tube and cover up and then go to the food store---didn't have the courage in a small town to look obvious, I was relatively young for all this and couldn't stand looks of pity/fear then.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.