One patient with glioblastoma still alive nine years later
by Grandmomof7 on Tue Nov 08, 2011 02:22 AM
My husband is declining and he's so angry. How do I cope with it?
I can't say or do anything without getting my head bit off!
by Tere1 on Thu Dec 22, 2011 05:44 AM
I've been there. I remember just breathing deeply and saying- I'm so sorry you have to go through this. I'm doing my very best at caring for you. I love you. and I would turn around and walk away and say. When you want to talk I'll be here.
Poor guy! Life must stink when everything you thought you had control over is taken away. And there's absolutly nothing you can do but to submit yourself to treatments that will prolong life, but will end anyway.
Hang in there. being a caretaker is a difficult road to travel.
You are in my prayers.
by msocrealtor on Thu Dec 22, 2011 06:13 AM
How long has it been since the diagnosis and what type of treatments or therapies is he having? Have you researched natural alternative treatments? My friend just got diagnosed and it is devasting for everyone. I feel for the both of you, it's so difficult.
by debz3j on Thu Jan 26, 2012 04:32 PM
Unfortunately this is the way things are w/some GBM patients depending on where their tumors are located. Went through the same thing w/my husband. They can't control it and I almost felt like I could've bitten my tongue off trying not to "feed" into his rants. I would not trade being his caregiver for the world even during the worst. Just a few days before he passed, he was calmer, nicer and finally let me cry about his/our situation.
Take a deep breath and try to remember the person he used to be! It's got to be hard as a patient knowing things are beyond your control. And they must worry a lot about leaving us all behind.
Being a caregiver is one of the hardest things to be. Make sure you try and get some time to yourself.
Strength and prayers,
Wife of Jimi dx 2009 gone to God 10/29/10
by Grandmomof7 on Thu Jan 26, 2012 04:49 PM
Yes, being a caregiver is a very hard, emotional job.
The personaility changes and makes it very hard to understand when they yell at you. I cried alot!
W/O Rudy, dx March 2010, became an angel 12-2011
Miss him so much, we'd been married 40 years.
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