Diagnosed Today - Mgus

I'm new here and was just dx'ed today with MGUS. Have had the workup with onc/hema. Was told I have IgG Kappa MGUS. I know this is kinda' unknown but what does that really mean? Supposedly, there are no symptoms. BS! I have the back pain, fatigue and I get sick real easy. I'm young - only 38 but I feel like I'm 78. What should I do, get a diff. opinion? (Don't wanna' go thru another Bone Marrow Biopsy, etc) I'm trying to get a handle on this. Onc/Hema wasn't very detailed in what to do - basically, don't worry about it right now. Just get follow-ups with my PCP every 3 mos. or so. Anyone with detailed info on this dx. please contact me. I'm in the dark.

Monoclonal gammopathy of unknown significance is a non-cancerous condition. The levels of antibody in MGUS, although raised, are not as high as the amount produced in people with myeloma (cancer of the plasma cells) and some types of lymphoma. If someone has raised antibody levels but no evidence of either of these types of cancer, their condition is known as monoclonal gammopathy of unknown significance (MGUS). Most people with MGUS (approximately 4 out of 5) remain well and never develop any symptoms related to it.

I too have IgG Kappa MGUS; and I too am still in the dark as to what that really means. I was diagnosed last October. I know "they say" there are no symptoms, but from what I have read from others, and from my own experience, there is something causing similar symptoms among us! Muscular and bone pains, fatigue, low resistance to infections, shingles, numbness and tingling in feet and hands, etc. I have been evaluated at UAMS for Multiple Myeloma and also at Mayo Clinic for Amyloidosis. It seems right now to be "only MGUS" and I am to go back yearly for reevaluation at Mayo. I have tried to "keep going" and stay actively involved in our church and with our family. The Lord does give strength for what He wants me to do! With joy, dherb

Hi there.. my mother was diagnosed with myloma in november 06.. Today she had her first visit to the specialist.... She was told that she has NOT got multiple myloma but MGUS.. Can you imagine what we have been through since nov last year.. I am a single child of 39 who was brought up single handedly by my amazing mother.. I wasn,t the perfect child i thought i was.... I am so confused with the whole situation...

 I should be jumping around with joy but feel angry and hurt because of how i have been feeling and also things that have happened due to the misdiagnosis,,,   To say that at some point i even thought if only briefly of a carpark and the quick way down....

How can doctors be allowed to tell someone they have cancer.. when they obviously had not conducted the necessary tests..

Anyway to say a little word to you... Think positively... my mother is chuffed to bits to have MGUS..   Research says most people live a happy unaffected life with occasional checks to monitor progression.

Also incase i came across as a mummy,s boy...She played the dad role very well.. many a beating all deserved i expect... She retired last month at the age of 65 having worked for the police nearly 30 years..

 She has and will cope with all this far better than myself.. Anyway i,m waffling now... Take care , think only great positive thoughts and we,ll all get through somehow....

                           kind regards .. Ross Humphrey

 And i think i cheered her up when i got engaged christmas eve..xx