One patient with glioblastoma still alive nine years later
by tricias76 on Thu Nov 17, 2011 01:56 AM
This past week has been really difficult. Have no energy to work, but made it through the day. Trying to be strong can be so difficult. My mother is eating less. She is so tired and irritable. She wants to be alone and talks less to me. I understand that it is a process and she is disconnecting. Funny how even at 35 I still want the attention. I used to feel so guilty about it. I always made sure and tried to meet all her needs. No matter what even as sick as she is and I'm caring for her I still feel like a small hopeless child. I'm not complaining just sad and I feel like I'm losing her and it scares me. I just don't want her to suffer. I want to be strong for her.
by famtwp on Thu Nov 17, 2011 02:34 AM
Sorry you are having a hard time.
Dr. WAYNE DYER has some great books about caring for sick parents and how you can put a postive aproach to it and make it a positive experience for both.
Good luck and will pray for you and your mom.
by muigi84 on Tue Nov 22, 2011 04:47 AM
I'm also the caregiver for my mom and I lost my father when I was young. When I'm working, it's also hard to concentrate or stay focused. Even when I'm driving in the car, my mom is always on my mind. My mom also feels guilty as though she's a burden. I reassure her that she's not. I need my mom, it's like I'm taking care of my mom who takes care of me. I hope your mom is not in pain and I wish you strength.
by tricias76 on Tue Nov 22, 2011 05:05 AM
Yes it is so hard to concentrate or even do things for myself. I exercise because it alleviates stress, but I feel bad even getting up and going to work. I don't go out anymore. My mom wants me to get out and continue with life. Too be honest I feel like I'm already grieving. I am getting better at not focusing too much on how much time she has left. I want her to be as comfortable as possible. She isn't in any pain thank God fo that, but everything she does is a struggle. She still does certain things around the house just the weakness and tiredness. Her appetite is declining so I don't push her too much at this point just let her enjoy eating what she likes. I know I am going to miss her when she is gone. She feels like a burden to me but she has been a companion to me for so long. I learned so much from her. I hope you mom is feeling better also pain free. They have no idea how important they are sometimes. Always tell her and let her know how you feel.
by tricias76 on Tue Nov 22, 2011 05:06 AM
Thanks for the giving me the information about the book. I will look into it.
Thanks for your prayers.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.