Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

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RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by sassy50 on Sun Jan 30, 2011 09:37 PM

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I have a GBM stage 4 Ihave beening living with it for almost 9 years. It has been a tough road but with GOD by your side it is possible.I'm looking forward in becoming friends with all... Sharon from Wisconsin

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by I_love_Gary on Sun Jan 30, 2011 10:10 PM

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Hello Sharon!

I am so happy to meet you.  You give us all HOPE you know, and I don't know what brings you to this support site after all these years, but I don't care, you are so WELCOME.

9 years?  Wow.  Was it a GBM when first diagnosed?  Can you tell us a little about your story?  It would be great if you just started a new thread, introduced yourself, and told us about your history, and SO many people would be thrilled to hear it.  I can't wait!

Welcome, welcome.                  DL

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by Loveless77 on Wed Feb 02, 2011 07:00 AM

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My husband is a 2 year survivor, we go in every three months for MRI's. His was in frontal left temporal area. He is doing really good.. He did have a seizure in 2010 that sent him to ICU for 3 days. He sleeps a lot more than he used too.. I see small amounts of memory loss but nothing detrimental. We go in Friday for our next MRI praying for clear results again.... He had the Stereotatic surgery done by a wonderful DR here in California.. He really has some amazing Dr's here and great support... I was amazed at how many people here in California while we were going throught Chemo had this type of brain cancer and young as my husband who was 48 years at the time.. Good Luck in your journey and god bless

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by sarahsmiles on Tue Feb 08, 2011 06:45 AM

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I was 42 when I was diagnosed, so the age group that we are told is typical (over 50's) doesn't always conform. I am a 6 year survivor and through natural therapies and nutritional change have managed to shrink the tumor down to almos nothing. My MRI's are now annually and I am living a healthy and full life. If anyone is interested in the type of therapies I have been doing, please drop me a line. If all i was given this disease for was to help others, that's what I intend to do.

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by itspatino on Sat Feb 12, 2011 03:41 AM

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Hello everyone, I found this board while searching GBM on google, My dad whose 45 years old was diagnosed with GBM about 3 weeks ago, it has been devastating news, and I would appreciate any help/support.

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by I_love_Gary on Sat Feb 12, 2011 04:34 AM

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Oh gosh, I wish no one had to ever come looking for us, I wish there were no more brain cancers, but here you are, and here we are, and you have found a huge community of people with this in common.  We are caregivers and patients, old and young, male and female, and you can ask any question or vent your frustrations.  You are at the very beginning of a rocky road, but you can get through it, and you can help your dad through it.  Try to show him how certain you are of his ability to fight this beast, and assure him that you are there for him, no matter what. 

Your support will be valuable to him, and so will the information that you are able to glean from this site.  So welcome.  You can read old posts, meet some of the members, and post your own new comments or questions.

Hope is alive here.    DL

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by rhomentos on Tue Feb 15, 2011 02:50 PM

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Hi Sarah,

My father in law was recently diagnosed with Stage IV Glioblastoma.  It is virtually inoperable and he will be starting radiation and chemo soon. What therapies did you undergo besides natural/nutrition? I'm interested in learning more about the natural therapies you used and the nutritional regimen you followed.  Is there a published guide that you recommend? If not, can you tell me more about what you did?

Thanks so much for your help.  It's really uplifting to read stories of people who are beating this.

Best,

Jon

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by Alyssa_c on Tue Feb 15, 2011 08:42 PM

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my boyfriend who is 20 years old had a brain tumor removed 12/28/2010 on 1/1/11 he was released from the hospital with out any further information on if the tumor was cnacerious or not. He is a Marine and they told him he needed to go back to him base in North Carolina since he was home on vacation for the holidays. when he went back the Marine doctors ran their own pathology on the tumor and thats when he was diagnosed with GBM stage 4. by this time it was already late Jan 2011. they sent him back home to us so he can go through treatment with the support of his family. he just started his radiation on 2/14/2011 and his oral chemo on 2/13/2011. he was told he has 6 months - 3 years to live when he found out the news he was devisteded and hes pushing all of us away. his feelings for all of us has changed and hes just been very....mean and angry alot of the times. i dont know what to do but to give him his space like he asked but its soo hard. has anyone else heard of someone getting this cancer so young?

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by ilovemybear on Tue Feb 15, 2011 09:58 PM

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On Feb 15, 2011 8:42 PM Alyssa_c wrote:

my boyfriend who is 20 years old had a brain tumor removed 12/28/2010 on 1/1/11 he was released from the hospital with out any further information on if the tumor was cnacerious or not. He is a Marine and they told him he needed to go back to him base in North Carolina since he was home on vacation for the holidays. when he went back the Marine doctors ran their own pathology on the tumor and thats when he was diagnosed with GBM stage 4. by this time it was already late Jan 2011. they sent him back home to us so he can go through treatment with the support of his family. he just started his radiation on 2/14/2011 and his oral chemo on 2/13/2011. he was told he has 6 months - 3 years to live when he found out the news he was devisteded and hes pushing all of us away. his feelings for all of us has changed and hes just been very....mean and angry alot of the times. i dont know what to do but to give him his space like he asked but its soo hard. has anyone else heard of someone getting this cancer so young?

Hi, Alyssa!

I am so sorry to hear about your boyfriend.  Twenty is so very young. I have no wonderful words of wisdom that will take away your pain or sadness.  I can be here as a suport system for you...that is what this site is all about.  Just know he isn't angry with you, but the disease.  Just be there for him when he is ready to reach out and give him all the love you can. My husband was dx with GBM about 1 month before his 51st birthday.  Unfortunately, cancer does not seem to care about age or anything else. CancerCompass is a wonderful site, but there is another site, YASG.com (Young Adults Surviving Glioblastoma). You may have already been told about this site. If not, check it out! 

I wish you comfort at such a sad time.  No one, no matter what age, should have to go through this.

Many blessings,

Melissa

Husband dx with GBM in August of 2009/surgery Sept 2009.

RE: Looking for Glioblastoma Multiforme Stage 4 survivors (brain cancer)

by ladybugz on Wed Feb 16, 2011 02:16 AM

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Sharon -

So happy for you!  Please share your secret! My husband is 60 and was just diagnosed w/ stage4 GBM in his right temporal lobe. B/c the tumor is so vascular and involved with other veins, surgery is not possible.  he will be starting rad w/ temodar next wk.  Can you share your experience please? 

ladybugz

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