My husband was diagnosed at age 55 3 years and 7 months ago. He had surgery, radiation, BCNU. He did alternative therapies as well -vegetarian diet, energy treatments (like reiki) and had a fighting attitude. He has been on anticonvulsant therapy since the surgery and remained high functioning.The fatigue and short term memory loss, mild seizure issues finally made him quit work (the center of his life) a type A personality about a year and a half ago. He has had MRIs every 2 months which have not changed. Two weeks ago he had a grand mal seizure, & trileptal was added to his treatment. So far his neurologist is not talking of a recurrence but he gets scanned again soon. Two years ago he tried Temodar (preventatively) but he was sick as a dog and did not tolerate it.
My question is whether this bone tired fatigue, much worse in the past 2 weeks is due to the anticonvulsants. His balance is suddenly worse, his stamina, short term memory are worse. His appetite has increased, always hungry, gaining weight, but does still not eat meat, or sweets. He naps 3 times a day and 10 hours at night. We've been so optimistic beating the odds. Does anyone recognize any pattern among long term survivors? We might be in denial, because he has done so well but we don't want to be blindsided,still have things to do!
Any thoughts?