Bladder removal

10 Posts | Page(s): 1 

Bladder removal

by yoli5 on Thu Dec 15, 2011 01:13 AM

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My husband has been diagnosed with bladder cancer. The cancer is not inter muscular yet,  however several doctors are recommending that he get the bladder removed. Has anyone been treated with BCG?  Can anyone give us insight on recovery time after surgery and what we can expect?

RE: Bladder removal

by SandraLambert on Thu Dec 15, 2011 05:39 AM

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If I might lead you to another web-site that is strictly for Bladder Cancer patients. This site has very little on it. It's the Bladder Cancer Network.

http://www.inspire.com/

There are hundres of people sharing their experiences and I know it will helpo and guide you.

RE: Bladder removal

by daleman1955 on Thu Feb 23, 2012 10:44 AM

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On Dec 15, 2011 1:13 AM yoli5 wrote:

My husband has been diagnosed with bladder cancer. The cancer is not inter muscular yet,  however several doctors are recommending that he get the bladder removed. Has anyone been treated with BCG?  Can anyone give us insight on recovery time after surgery and what we can expect?

I had mine removed along with my prostate & 20 lymph noads i was walking around the hospital after 3 days and virtually back to normal after 3 weeks. Hope all goes well.

 

RE: Bladder removal

by ROBERTLL on Sat Mar 10, 2012 07:47 PM

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On Dec 15, 2011 1:13 AM yoli5 wrote:

My husband has been diagnosed with bladder cancer. The cancer is not inter muscular yet,  however several doctors are recommending that he get the bladder removed. Has anyone been treated with BCG?  Can anyone give us insight on recovery time after surgery and what we can expect?

I was diagnosed with stage one carcinoma insitu last a Aug.  I immediately was started with six instillations of BCG.  There was a change in appearance of the bladder but biopsyies showed cancer not only in the bladder but in the uretors and kindys.  There is some question as to whether the other appearances of the cancer might have been from contamination by going into ane through the bladder.  After healing from the biopsies. Ithen went through six instillations of mitomycin-C.  Again there was a change appearance but biopsies again were negative.  My local urologist then requsted a second opinion from the urology department at Johns Hopkins (I have family nearby).  I took all biopsy slides with me to my appointment there the 7th of February.  The doctor at JH concurred with the diagnosis and suggested anothe round of six BCG treatments this time adding interfuron to the BCG.  I had my first instillation this past Monday.  I doubt that this will be of any great help.  If you would like to be informed of future outcome/s let me know.  By the way I am an 81 year old male.

Robert

 

 

 

 

RE: Bladder removal

by SandraLambert on Sun Mar 11, 2012 03:19 AM

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Please go to the Bladder Cancer Advocacy Network at:

http://www.bcan.org/

It is the best. I wish I had found this when my husband was still alive and we were going through this...

RE: Bladder removal

by SandraLambert on Sun Mar 11, 2012 03:20 AM

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Please go to the Bladder Cancer Advocacy Network at:

http://www.bcan.org/

It is the best. I wish I had found this when my husband was still alive and we were going through this...

RE: Bladder removal

by SandraLambert on Sun Mar 11, 2012 03:20 AM

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Please go to the Bladder Cancer Advocacy Network at:

http://www.bcan.org/

It is the best. I wish I had found this when my husband was still alive and we were going through this...

RE: Bladder removal

by davidsmom on Thu Mar 15, 2012 05:54 AM

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Our son was diagnosed with bladder cancer, we did the bcg, and the mitamyican, they told us that it was still a stage one since it wasnt thru the muscle wall,  what we were not told was the many other ways it will leave the bladder, and his spread to the lymph nodes, making him go into surgery a stage one, and coming out with a stage four. Please, Please get the bladder out, get a pet scan first, to see if there is spread you dont know about,  this is supposed to be a slow growing and high cure rate but when it hits the blood stream, and you are watching the muscle, it could be moving very quickly.  I do not want to sound like an alarmist, but we lost my son a year ago on March 30th.  To a disease that was supposed to be the easiest one to cure.  The surgery is hard..and from what we saw, doing it robotically places you at risk of cancer being left behind.  Dave went into the ICU after the surgery, he had an 8 inch incision.  But due to his internal make up, there was not enough to make a neon bladder. So he had a stoma.  He was heavily medicated for the first 48 hours, and by day three, with groaning and moaning, he started walking around the unit. By day five he was unstoppable.  His pain was under control, and he was hungry.  Our happiness was so short lived, because we were then told that the cancer was in the lypmh nodes.  Please get second opinions, please demand care he deserves, and tho it seems radical,to have the bladder out, it will save his life.  Please know if you would like to talk, i work nights, as a chemo nurse, crazy huh... but i will be more than happy to  help in any way.  I am in MI and a phone call away...God bless you both.  debi   Davidsmom

RE: Bladder removal

by wvleroyhayes on Thu Mar 15, 2012 01:05 PM

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Yep, mine spread quick, to the ribs and a lung.

RE: Bladder removal

by zassefudge on Fri Mar 16, 2012 11:19 AM

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my husband had his bladder and prostrate removed in 2008  he was in hospital for three weeks more due to his diabetise, but walked out and started working the monday, he was 64 yrs old, he has not looked back and has been cancer free ever since.  I had my bladder and my uterus removed in January 2012 and was in hospital for eight days and then discharged, it did take me three months to really feel good, but felt no pain after the third day and the biggest problem for me was to get use to to replacing the stoma and bag, that can be a bit scary so I would advise anyone getting their bladder removed to get someone to really help and explain, I am cancer free and the doctor is very happy, you need to eat good food and no smoking or heavy drinking, I am 61.  Hope this helps a bit.

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