F.A.P. Familial Adenomous Polyposis

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F.A.P. Familial Adenomous Polyposis

by fingers505 on Sat Dec 17, 2011 12:49 AM

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F.A.P. is a rare disease affecting 1 in 10,000. is there anyone here who also has this disease?

RE: F.A.P. Familial Adenomous Polyposis

by hoggwild on Tue Mar 27, 2012 08:01 PM

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On Dec 17, 2011 12:49 AM fingers505 wrote:

F.A.P. is a rare disease affecting 1 in 10,000. is there anyone here who also has this disease?

Yes, there are other people out here with this disease. I was diagnosed with it when I was 16 years old. I had almost all of my colon removed. I will soon be 50, and just diagnosed with NUMEROUS stomach polyps. In the process of choosing a treatment plan, also seeing a Geneticist to find out my precentage for developing cancer of the stomach.

RE: F.A.P. Familial Adenomous Polyposis

by opalstone on Fri May 04, 2012 06:37 AM

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On Mar 27, 2012 8:01 PM hoggwild wrote:

On Dec 17, 2011 12:49 AM fingers505 wrote:

F.A.P. is a rare disease affecting 1 in 10,000. is there anyone here who also has this disease?

Yes, there are other people out here with this disease. I was diagnosed with it when I was 16 years old. I had almost all of my colon removed. I will soon be 50, and just diagnosed with NUMEROUS stomach polyps. In the process of choosing a treatment plan, also seeing a Geneticist to find out my precentage for developing cancer of the stomach.

I plan on being tested for this at Mayo Clinic in July! I have lots of stomach polyps, it was diagn. as Fundic Gland Polyps, last July. I have a daughter, age 21 and a son, 18. I'm so scared for them. I just pray I get all of this figured out. Please get back to me. I'm 48 yrs. old. I hope you are doing  well.

RE: F.A.P. Familial Adenomous Polyposis

by opalstone on Fri May 04, 2012 06:40 AM

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On Dec 17, 2011 12:49 AM fingers505 wrote:

F.A.P. is a rare disease affecting 1 in 10,000. is there anyone here who also has this disease?

I will be tested in July for this. Please get in touch with me.

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