Please have a look at Cayman Biomedical Research Institute's (CaBRI)website at cabrimed.org. CaBRI is a non-profit institute whose parent company is Cayman Chemical Research & Development.
CaBRI has undertaken the endeavor of gathering patient histories, treament plans, tissue sections where possible and survival statistics with the aim of compiling a SNUC database. The database will bring together most, if not all, of the available information into one site. The database will become an invaluable resource and tool for physicians, patients, family members and friends to access for cutting edge research,new developments, effective treatment strategies and support links.
If you would like to become a part of this database or donate in any way, please contact me directly at amy.edwards@cabrimed.org.
Let's beat this together.