Lung Cancer survivor 6 years gets carcinomatous meningitis

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RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by cinesylle on Sun Mar 11, 2012 09:06 PM

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On Mar 11, 2012 8:16 PM Maria3512 wrote:

My dad died this morning. At least he is no longer suffering.
Hi Maria. I was just reading your message thread and came to your final message that your dad passed away this morning. I'm so sorry to hear that, and even though you are a total stranger to me my prayers are with you and your family. My dad has gall bladder cancer that has spread to the lungs...we only found out in December and he is just deteriorating before our eyes. He's not in pain but already lost 30 lbs and is getting darker and darker. It's just a lot of pain and turmoil right now. So take care and keep strong over the next few days.

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by raven97 on Mon Mar 12, 2012 12:17 AM

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Maria, So sorry and know where you are coming from. Know that there is no suffering anymore and he is at peace. You are in my thoughts thanks for helping me, finding me on this huge internet and responding with such love openness feeling and understanding as we have shared this journey though brain cancer. Bless you and I hope you find peace as well in the future. Please know that you did your best and I know your father knows that. I will keep you updated.- Irene

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by Johnr_1 on Mon Mar 12, 2012 04:42 AM

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On Dec 24, 2011 4:30 PM raven97 wrote:

Hi, My sister six years ago at 37 was diagnosed with stage four lung cancer. She survived by taking Tarceva/Avastin. But she had to battle 3 brain tumors with cyber knife after having seizures. A month ago she had blinding headaches, confusion and double vision which messed up her sight permanently. At the ER she was tested with spinal tap the only way to see cancer in the fluid and lining of the brain and spinal cord. The doctor said as lung cancer survivors live longer this is a progression of lung cancer. (so make sure you ask your doctor for a spinal tap if you are a long term survivor) They had to put a port in her head but she was on Avastin a long time and hemorrhaged and it paralyzed her on the left side. They have given her weeks as this cancer moves fast and attacks the nervous system. I will post a link for more on it. She is 42 now. I just wanted to address this and warn as long term lung survivors will get this more and more.  http://www.ehow.com/about_5167093_carcinomatous-meningitis-t reatment.html"" target="_blank" rel="nofollow">http://www.ehow.com/about_5167093_carcinomatous-meningitis-t target="_blank" rel="nofollow">http://www.ehow.com/about_5167093_carcinomatous-meningitis-t

I have found this Website to be very helpful with all kinds of Cancer issues and Solutions:

http://liveforeverwithcancer.com/

Johnr_1

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by Maria3512 on Tue Mar 13, 2012 02:29 AM

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Hi, thank you for your kind words. My dad fought this horrible disease for so long and he gave it his all. He was a true fighter and wanted to live but Unfortunatly this illness is stronger then any of us. I hope your father recovers and I hope for strength for your family to get though this.

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by Maria3512 on Tue Mar 13, 2012 02:34 AM

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Irene, thank you. I'm glad we at least found each other. It's been helpful to connect with someone who knew exactly wgat we are going through. I'm heartbroken and can't believe he is gone. The funeral was beautiful and so many people came. I hope he saw how loved he was. Please keep me updated on your sister. You are in my thoughts. Stay strong.

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by raven97 on Thu Mar 15, 2012 04:25 PM

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Maria, I am so glad the funeral was beautiful. My sisters headaches are still happening. We are on Hospice in home. She is aware she is at home the birds are singing and the breeze is coming through the window and at night she can see her little girl and hear the peepers. So I think as long as we keep the pain down she is doing well. Talking a little still. We are glad she is home. We dont haave to go back and forth from the hospital and she does not feel alone. It is more work for all of us, meds bath, diper changes but she is happy to be here. ((Hugs)) to you.

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by raven97 on Thu May 31, 2012 03:30 PM

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Hi Maria my sister passed May 22,. It was very peacefull and I was by her side along with her little girl. She could not swallow any more so she went downhill fast. The funeral was wonderfull as well. I hope you are doing well. I am trying to find a new balance after taking care of her for six months and go back to my life in AZ. Take care and thanks for sharing. Hopefully this will help others.  

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by cinesylle on Fri Jun 01, 2012 03:32 AM

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Hi Maria and Raven97

My dad also passed away, om May 23rd. and sorry realized in my post said it had spread to his lung, but was actually his liver. He died 6mths, 1 weel and 1 day after he was diagnosed. we are still so very sad. I feel like in a dream and will wake up and he will be there. It seem like he was good one day, then he had a seizure, was hospitalized for 10 ddays, came home for about 6 days, then he died. it happened too quickly. but you all know how feel, because you have lost your loved ones as well. - hate this thing called cancer!

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by Maria3512 on Fri Jun 01, 2012 03:53 AM

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I'm so so sorry about your sister. I'm glad she went peacefully with her loved ones around her. It's going to be hard to get back to your previous life. It's been 2 1/2 months since my dad passed and I still break down often. I miss him, you will miss your sister and at first will feel so lost because you have had the routine of caring for her for so long. The first few weeks were so hard all I wanted to do was go to the hospice as it was my routine for months. Your sister was a fighter, she held on for a long time. I'm crying as I'm writing this. I cry for you, your sister, myself, my father and so many others that have been affected. I thought about you often, you have been in my prayers as well. Im glad at least we found each other through this horrible time to be able to share our experience and grief. Good luck, I'm so sorry.

RE: Lung Cancer survivor 6 years gets carcinomatous meningitis

by Maria3512 on Fri Jun 01, 2012 03:58 AM

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On Jun 01, 2012 3:32 AM cinesylle wrote:

Hi Maria and Raven97

My dad also passed away, om May 23rd. and sorry realized in my post said it had spread to his lung, but was actually his liver. He died 6mths, 1 weel and 1 day after he was diagnosed. we are still so very sad. I feel like in a dream and will wake up and he will be there. It seem like he was good one day, then he had a seizure, was hospitalized for 10 ddays, came home for about 6 days, then he died. it happened too quickly. but you all know how feel, because you have lost your loved ones as well. - hate this thing called cancer!

I'm sorry about your father. There isn't much that can be said to help with our grief. I hope they can see us and know how much we miss them and how loved they are. It's hard to talk about my father he's been gone almost 3 months and it's still surreal. I'm so sad that he won't see my daughter grow up but happy that he met her.
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