Burzynski

Hello,

I hope that eveyone faced with cancer is fortunate enough to go beyond what their Doctors are telling them and do some research. There is a lot out there. Some good. Some not so good. There are plenty of folks out there who don't have any problem taking advantage of the most desperate. It's hard enough making difficult decisions based on good information. Disinformation only makes it harder. I am glad that people feel compelled to post their experiences and opinions here. It's dissappointing when people feel compelled to disrupt the harmony of this place with fanatic, angry, conspiracy oriented trash. Thanks for the information, but don't interject it every chance you get. Stop suggesting that people should not have radiation or chemotherapy. It's annoying and not productive.

Radiation, like most of the drugs we take, is bad for you if used improperly. To ask why anyone would put something bad in their body you have to ask why we take any drug. Did you know that Cumadin, a commonly used blood thinner is what is in rat poison.

Most people can tell you that there is something wrong with this whole cancer business. We don't need to constantly be reminded. If you have some viable, constructive suggestions, lets hear them. Otherwise, find some other way to vent your anger and grief.

There may be more money in treating cancer than curing it. History has shown us how evil man-kind can be. There are plenty of good, caring and god fearing people, involved in this struggle, that I find it hard to believe that a conspiracy is afoot.

The research, approval, and priceing of cancer drugs is extremely frustrating for all of us. When we are desperate it becomes even more frustrating. However, a Doctor with good intentions and a good idea must have some idea about how the system works and why. Burzynski must have some idea what he is up against. He can offer his treatment while putting it through the wickets of FDA approval. Anacdotal evidence has never been proof of anything.

I think the good Doctor may have a good idea but he has either not followed the rules or there are a lot of rumors propegated by angry conspiracy theorists. Either he will be successful in bringing his treatment to fruition or he will not. In the mean time he can continue to charge exorbitant prices to wealthy and desperate people. How altruistic is that? Perhaps FDA approval would mean having to accept what the insurance companies are willing to pay. Who knows. If he really did say that radiation causes cancer to grow, then I don't think he is someone I would talk to.

I am not trying to start an argument here. Just give it a rest and get some perspective.

Cidorov

One week ago a person from this web site e-mailed me and asked if I could put him in touch with a person who was cured at Burzynski's clinic and I obliged him.
He e-mailed me back and said "I learned alot from talking to her,THANK YOU FOR PUTTING ME IN TOUCH WITH HER"I said you are very welcome.As for my anger,when your 5-year old dies in your arms on Christmas Eve, then preach to me.

Willing,

Your anger is most understandable. Your loss is unimaginable. No one would deny that. Yes. We feel sorry for you. I have met many people who have lost children. Even in their eighties, they cry that deep painful hurt as if it were yesterday. In my opinion it is the absolute worst thing that can happen to a person. There is absolutely no way to rationalize your experience. I am sorry that has happened to you and your baby. We can only hope and pray that your baby is in a better place where you will see him/her again. I will pray that for you as much as I can for the rest of my life. I have people I want to see again too.

I am not preaching to you. I am simply asking that you try to take your anger and turn it in to something positive. Comming here and spewing your anger about the problems with the system does nothing to change it. You aren't helping solve any problems or giving support by trashing science and steering folks to Burzynski's anecdotal retoric. Yours and Berzynski's arguments are without merit. Someday maybe something will come from his research. Until then he needs to follow the rules. If the rules aren't fair then he needs to use his brilliance to do something about the rules. Just because you sent someone to someone who thinks Berzynski cured them doesn't mean a hill of beans. I have no doubt that your negativity is not appreciated here. In it, however, we can feel your pain.

Don't take this as a personal attack. My heart goes out to you. I wish I could take your pain away. Surely there must be a better way to honor your child than anger. I know there is nothing that will ever change the way you feel. How you think about your feelings and how you behave about your feelings can make them easier to live with. There is a natural course of events that everyone grieves through. You may not hear what I am saying until that has run its course. I can tell you this...people who have long term problems are the people who get stuck at some point in that process and can't move on. Don't be that person. Honor your childs life by being someone healthy.

For what it is worth...I am here for you.

God bless you and give you the wisdom to make the most of your days my friend.

Cidorov